DOES ANY ONE HERE HAVE THROMBOTIC THROMBOCYTOPENIC PURPURA
I LIKE TO TALK TO SOME ONE ABOUT THAT GOING THOUGH THE SAME THING I'M GOING THOUGHT SOME ONE THAT TOOK PREDNISONE AND THE SIDE EFFECT
:bouncing:
:p

Veronica24,

I don't know how similar the two diseases are, but I had ITP (Idiopathic Thrombocytopenia Purpura). I have been on Prednisone several times for various lengths of time. Feel free to ask any questions you may have!

-Jakedog

i think they are alike in so ways will did not have any question i just want to talk about i just wonder if there was any one going throught the same thing i going thorught: the medical bills the docotor prednisone and dealing with blood problems
i a women that i work with has itp

I had TTP, but had a really easy time compared to many people. One of my male cousins had ITP. They never suggested prednisone for me, but my boyfriend and one of my cousins have taken prednisone. My friend didn't take it for long I don't think so she didn't have many side effects of that, but my boyfriend did experience some side effects. The male cousin who had ITP had a spleenectomy. For my treatment, I had plasma pheresis, blood transfusion and plasma infusion (or was it platelets?).

i have the same things done to me to doctor talking about doing the spleenectomy on me i believe it called plasma infusion i think so i can not remember it been out of the hospital for10 month now and off the prednisone for almost 2 months now
did you gain any weight i did and having trouble losing too if you did not take prednisone what did you take?????

My daughter has ITP and she is 7months pregnant. It has been hard to deal with. I believe your problem is the same. Her doctor has been useing (IGG )to treat her along with predisone. With IGG treatment we have heard , you may be able to get off the predisone. The IGG in some cases keeps the patients stable for some time if not for good. This did work on my daughter at first but her platlets continue to keep going down. She goes down to 0 . We are on are way to Duke UV for other treatments because of her pregnancy. Hope I have been of some help .

My daughter has ITP and she is 7months pregnant. It has been hard to deal with. I believe your problem is the same. Her doctor has been useing (IGG )to treat her along with predisone. With IGG treatment we have heard , you may be able to get off the predisone. The IGG in some cases keeps the patients stable for some time if not for good. This did work on my daughter at first but her platlets continue to keep going down. She goes down to 0 . We are on are way to Duke UNV for other treatments because of her pregnancy. Hope I have been of some help .

i was wonder if i could even have kids with the history of ttp i have read about that come back for women if they get pregant i was not sure about how the child would be if you could do the treatment or take the medince with it really all i wanted to do is talk about with someone i just keep it to my self :wave:

HI I HAD TTP GOING ON 6 YEARS FREE OF THE DISEASE. I HAD THE SPLEEN REMOVED AND ALL THE OTHER FUN THINGS.. I ALSO HAD VERY BAD THINGS HAPPEN.. I LOST TWO CHILDREN WHILE I CARRIED THEM. I STILL HAVE ALL THE WEIGHT THAT I GAINED WHILE ON DRUGS PRESCRIBED DURING THE ORDEAL. BUT I AM PROUD TO SAY I HAVE A HEALTHY DAUGHTER THAT IS 7 YEARS OLD AND NO SIGN OF THE DISEASE.

:bouncing:

VERICA I HEARD THAT TTP IS NOT HERIDITARY.. THAT CAME FROM MY DOC.. I HAVE TWO OLDER DAUGHTERS FROM A PREVIOUS MARRIAGE AND I WORRIED ABOUT THAT TOO. BUT HAVING CHILDREN LIKE MY LAST POSTING WITH TTP IS REALLY HARD.. :confused:

i don't know if i will ever be bless and have children of my own i hope i do but i was scared that i could past it own i heard so many different things someone told that could i thought read somewhere that there very small chances that it could but most like it would not how many time did you have the ttp. two for me thanks you writing :wave:

VERICA I HEARD THAT TTP IS NOT HERIDITARY.. THAT CAME FROM MY DOC.. I HAVE TWO OLDER DAUGHTERS FROM A PREVIOUS MARRIAGE AND I WORRIED ABOUT THAT TOO. BUT HAVING CHILDREN LIKE MY LAST POSTING WITH TTP IS REALLY HARD.. :confused: