I appreciate all the help and support you provide on this board. I wonder if some of you could help with perspective on symptoms my husband has been experiencing.

About 6 months ago, he began experiencing fasciculations in his feet, developed exercise intolerance (could not perform at his earlier levels and tired extremely easily) and was slow to recover from some minor injuries. He had am EMG and nerve conduction test, which did not show any affirmative indications of ALS. Over the past 6 months, the fasiculations have progressed steadily up through his legs -- they can be visible under the skin as a rolling movement. He does not have foot-dropping or difficulty with fine motor skills, but does not feel he can exercise or engage in his usual activities.

He will be going back for follow up examinations -- which we hope, with the passage of time, will show more conclusively what is going on. Do you have any experience or words of wisdom? Thank you,

Marie

hi marie

i want to share my opinion with you and your husband. i have a dx of als. i also was dxd with lyme disease. lyme is very confusing and surrounded in conflict. convential drs are fed outdated info and state governments are forced to pass new laws to get more uniform treatment standards and improve testing. no lyme test is completly reliable and that is fda and cdc quoted. you need to find a lyme expert to be properly evaluated. lyme is confused with more than 300 different diseases and missed as much as 80 % of the time. please visit the lyme threads and ask for others input there.

jon

unfortunately als takes a while to diagnosis. they watched my husband and followed up every three months with emgs. It just takes time, and they want to rule everything else out. my husband started out with muscle atrophy in his hand and fasiculations in his arm. fasicullations are different than muscle twitches--they are a constant "rolling" of the muscles. Good luck to you, i hope your husband is diagnosed with something more treatable and curable than als.

Thank you, its the reference to "rolling" that seems similar -- sometimes like watching a worm under the skin move across the muscle. I appreciate your help, we'll see if we have any more specific information after the next neurologist visit. In today's world of "instant information," its tough to wait months, though we know that many people go more than a year before knowing one way or the other.