baddoey
04-11-2005, 04:38 PM
This question doesn't mean to sound depressing, but it is mostly directed to people that have had MS for the last 15 years plus. I read this board and there is much hope there about the research that is happening, but hasn't this been going on for the last 15 years? How much do you really think this is going to help us? when the interferons came out on the early 90s they were touted as a cure, but as we know know they are a mixed blessing. and with the whole tysabri fiasco I just don't know if I want to be hopeful. . getting let down is almost worse. I'm newly dxed, mild symptoms (going on copaxone soon) . . I do my thing - I run, take supplements, positive attitude, but I also consider myself a realist and since they don't really even know what causes this awful thing, it just doesn't seem that reassuring that they are going to find something that is going to help without some pretty bad side-effects. I hope this makes sense. . just don't want to put any faith in a pipe-dream. . any other doubting MSers out there?
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sunshine149
04-11-2005, 04:55 PM
I believe there won't be effective treatment for MS until they understand how people get it, until then, treatments are shots in the dark. Not ones I'm personally willing to mess with...
LaDeeDa
04-11-2005, 05:20 PM
I have had MS for many years. I have always held out hope for a cure and will continue to. When the ABC drugs became available, it was a giant step towards that goal. I may not live long enough to see a cure in my lifetime, but I firmly believe it will happen eventually and then MS will only be something to read about in old medical textbooks.
baddoey
04-11-2005, 09:22 PM
thanks for the feedback. . I know I'm not a patient person, so I hear all of these things going on, but the results are few and far between .. I'll keep my fingers crossed for all of us.
Paige1
04-15-2005, 12:23 PM
I'm with you Baddoey....we read those stories about a cure being imminent for so many years and finally say..yea right. I don't worry too much about it though these days cuz I've been taking the LDN for 3 years and hey, if there is no cure I feel that I will not progress any further then I am right now so I don't worry too much about it. I see the news reports and don't get anywhere near as excited as I used to. I don't think I will see an actual cure for MS in my lifetime so what's to get excited about? Anyway, that is my take on all this and just know you are not alone in your negative thoughts regarding all this.
Deb92204
04-15-2005, 12:43 PM
Hopeful about research...? Hmmm.... I suppose one can only hope, but I too don't think we're going to see any soon... look what happened to that new drug they came up with... it killed people... I happened to see my neurologist a week after all that "news" and she asked me about it. I told her in no uncertain terms would I even consider it. She said it only happened to people taking it and another MS medication and tried to justify the new med by saying it's taken only once a month, compared to what I'm taking 3 times a week. Um... no.... I'll stick with the Rebif. I was newly diagnosed on 9/22/04. First day of autumn. Apparently the Rebif is doing it's job. My last MRI in March showed a reduction of the lesions on spinal cord and no lesions have popped up in the brain. Good news! Also, no new lesions showed up on spinal cord. I'll stick to what's working, cause with my luck and Murphy's Law.... I'll be a statistic with that new drug. No thank you.