tooobuzi
04-12-2005, 09:22 PM
I know everyone probably feels the same way I do, if not more so,so I hate to complain. I am just so..so..I don't even have words for it. It is beyond frustrated, it is beyond tired, and beyond upset.
I am still waiting for some sort of dx. I just went for more tests today, an evoked potential and another MRI. This makes the third MRI in 4 months. When I was done with the EP I asked how things looked and the woman told me things looked normal. On one hand that is great news, on the other it is horrible news. It means yet another test that is not telling the doctors anything. I am so confused because how in the world are all these tests coming up normal and I am steadily having all of these symptoms? I am standing at the desk to sign in for my test and have to hold on to the counter because I am so dizzy. I have so many problems on a daily basis I just don't understand how ANY tests can come back normal! When the tests were finished today on the ride home I just cried. They are either going to come back normal or they are going to finally give the doctor some information he needs. Neither one is good. Yes, I want normal test results, but it just means I continue to wait for things to get worse before I finally get some help.
I am so tired of having to tell my boyfriend every single time he asks how I feel, that my world continues to spin. The dizziness is never ending and the fatigue goes right along with it. I am anything but Normal, yet that is what all my test results show.
I hate to vent but I really have no one else to vent to that has any clue what this is like.
Sorry
I am still waiting for some sort of dx. I just went for more tests today, an evoked potential and another MRI. This makes the third MRI in 4 months. When I was done with the EP I asked how things looked and the woman told me things looked normal. On one hand that is great news, on the other it is horrible news. It means yet another test that is not telling the doctors anything. I am so confused because how in the world are all these tests coming up normal and I am steadily having all of these symptoms? I am standing at the desk to sign in for my test and have to hold on to the counter because I am so dizzy. I have so many problems on a daily basis I just don't understand how ANY tests can come back normal! When the tests were finished today on the ride home I just cried. They are either going to come back normal or they are going to finally give the doctor some information he needs. Neither one is good. Yes, I want normal test results, but it just means I continue to wait for things to get worse before I finally get some help.
I am so tired of having to tell my boyfriend every single time he asks how I feel, that my world continues to spin. The dizziness is never ending and the fatigue goes right along with it. I am anything but Normal, yet that is what all my test results show.
I hate to vent but I really have no one else to vent to that has any clue what this is like.
Sorry
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lah
04-13-2005, 12:18 AM
I think just about everyone here can relate to what you are saying. I know it also gets old hearing to "hang in there" and to try not to let it get you too down. I am in the same kind of situation as you. I just want an answer other than I don't know or try to relax. (Ugh!) :rolleyes:
Please don't feel like you have to apologize for venting. We all need to sometimes, I know I do. I know I can't really say anything you haven't already heard so take comfort in the fact that you aren't the only one out there feeling like this. :)
Please don't feel like you have to apologize for venting. We all need to sometimes, I know I do. I know I can't really say anything you haven't already heard so take comfort in the fact that you aren't the only one out there feeling like this. :)
blueslvr53
04-13-2005, 12:30 AM
HEY!.............You go right ahead and vent all you want. Im right here with you! I know what an awful feeling it is when you want to be so happy that the tests come back neg, but you still feel like crap and no one can tell you why. Did they say anything about the mri? Do you have the same symptoms everyday or do they change? For me it is always something different but it is daily. Last night I had a new one, my fingers and toes ached sooooo bad. It
felt like when you smash your finger and it throbs and throbs....
Is the Clariton not helping anymore? I havent had a chance to ask my Doctor because she has been on vacation. I also am so tired of people always asking me how I am feeling and I never have a good answer. I am starting to feel guilty about it. I almost wish they would not ask.......even though I appreciate it. Well just know that you are not alone and you are in my thoughts and prayers............Hope you feel better........Deb
felt like when you smash your finger and it throbs and throbs....
Is the Clariton not helping anymore? I havent had a chance to ask my Doctor because she has been on vacation. I also am so tired of people always asking me how I am feeling and I never have a good answer. I am starting to feel guilty about it. I almost wish they would not ask.......even though I appreciate it. Well just know that you are not alone and you are in my thoughts and prayers............Hope you feel better........Deb
tooobuzi
04-13-2005, 06:49 AM
Thanks you guys-
Yeah, you do start to feel like a constant complainer. I think my boyfriend actually is surprised when I can respond with a "Not too bad today."
Deb, I don't have the pain in my joints although when I have to walk a lot like at a mall I feel like I am about 90 years old. I guess stiff would describe it.
I have just started to pay attention to exactly when I am getting those shocking feelings. I think it might be after any unusual amount of activity, such as walking in the mall or doing the little workout I do at home (situps, leg lifting etc.) I am going to pay more attention to it to see if it happen other times as well.
I never know what my symptoms will be for the day. I can usually count on dizziness and tingling in my feet everyday. I just never know how severe it will be. The dizziness lately has been VERY bad and no, the Clariton is not working. So much for that!! As I sit here now I am trying to decide if I will go into work as my world is just spinning right now.
Thank you so much for the support!!
Yeah, you do start to feel like a constant complainer. I think my boyfriend actually is surprised when I can respond with a "Not too bad today."
Deb, I don't have the pain in my joints although when I have to walk a lot like at a mall I feel like I am about 90 years old. I guess stiff would describe it.
I have just started to pay attention to exactly when I am getting those shocking feelings. I think it might be after any unusual amount of activity, such as walking in the mall or doing the little workout I do at home (situps, leg lifting etc.) I am going to pay more attention to it to see if it happen other times as well.
I never know what my symptoms will be for the day. I can usually count on dizziness and tingling in my feet everyday. I just never know how severe it will be. The dizziness lately has been VERY bad and no, the Clariton is not working. So much for that!! As I sit here now I am trying to decide if I will go into work as my world is just spinning right now.
Thank you so much for the support!!