Hi all! I'll try and keep my story short but about 6years ago I developed tingling down the right side of my body and numbness I was mis diagnosed with a cerebellum ataxia. Later in the years my symtpoms continued I woudl have drop falls, clumsy, fatigue, headaches, swalloing problems, extreme pain, digestion problesm....I have asthma so I'll connet my breathing problems to that but after years I went in for an MRI thinkign I had MS cause I have the classic symptoms and my uncle has it. I got diagnosed with a rare brain malformation called chiari malfmormation and syringomyelia. I had the surgyer 3 months ago and my spinal fluid seems to be flowing, yet my symptoms persist and starting to get back to as bad as they were before the surgery. The surgeon has sent me back to get nerve conduction testign for possible carpal tunnel but I doubt that one cause I have total right side pain and weakenss and numbness.....I am not sure if I woudl have ALS either but I thought I may as well post in case someone has suggestions of other things wrogn or stuff to look out for etc etc thanks

hi kirafaye

your various symptoms sound more like lyme disease than als.

please visit the lyme threads and ask for help there.

jon

I'v looked at lyme's disease and it doesn't match much ta all except the stuff that is prevaliant in all disorders.....plus I heard getting it in australia is pretty rare or something like that. I'v been research for years about different disorders. Thank you for answering though

It sounds as if you do have classic symtpoms of Chiari I Malformation and syringomyelia. I was diagnosed in 1994 and had surgery. My syrinx never totally went away, and I still have weakness and pain. Sometimes it is worse than other times. I have learned to live with the weakness in my left lower leg, it is the pain in my back that is more bothersome. I have found that the neurosurgeons don't deal well with the pain aspect of it. Since surgery isn't an option now there is nothing they can really do. I am still searching for answers as to my pain, but it can be very frustrating. I wish you the best of luck!