I am hoping someone can help one of our parents. I am placing this message on her behalf as she does not have access to the Internet and I will pass any replies on to her.

Jane has a 6 month old boy with cerebral palsy and blind reflux. He has had reflux since 11 weeks old. He sleeps in 40 minutes slots during the day but does sleep well throughout the night. His weight has been a bit down but he is now putting some weight on. One of the problems she is having with this is that he needs his medication adjusted each time his weight moves - he seems very sensitive to even minor medication adjustments and it can take days to get him back to a good status.

His parents have tried cranial osteopathy and are about to try rescue remedy. He is under the care of a pediatrician and takes the drugs cisapride and lossic (has also been taking Zantac).

Jane would love to hear from other parents who are in similar situations and some of the solutions they have found. I think one of the biggest questions she has is - will he grow out of it? Or is it going to be a long term condition? She is really not sure what to expect.

Any replies will be welcomed.

Michelle Hill
Information Manager
New Zealand CCS Inc.
Email: info@no.ccs.org.nz

Providing services to people with disabilities