i have read almost all the posts on here, and i have replied to a couple too. I notice that people dont really give much hope, they are trying to find a cure but they dont really want the children to be normal and live the life that they deserve to live.

I am 22 i have had CP and Epilepsy all my life, and i can tell you from experience that yes the kids you talk about on this board your sons and daughters are gonna have a tough time but instead of asking when people like me die, and yes i have read those posts and frankly i dont like to think about that. Ask yourself how special this child is what is she or he gonna do in life, bring it up a notch, yes you can and are supposed to be concerned but dont make the children feel like they arent worth anything.