Josie's Momma
05-07-2005, 11:53 AM
As I posted before I had an EEG done on my four year old daughter last Friday to see about seizures. I was told the results would be faxed to her doc by Wednesday. I call Thursday was told someone would get back with me... I called three times, no response. Called Friday to complain and get results, talked to a nurse and was told they would call back. Well they did twice. Once because they called the wrong hospital and once because they couldn't spell her last name right (very common name) and it is in her charts. I was told they would call back with results. NOW I have to wait till Monday for any answers. In the meantime I am still sick with worry and have no idea what she is going through.
Has anyone else been through this type of treatment with their doctors, PCP, if so how did you handle it? The stress of not knowing is HORRIBLE when it is your baby!!
Josie's Momma
Has anyone else been through this type of treatment with their doctors, PCP, if so how did you handle it? The stress of not knowing is HORRIBLE when it is your baby!!
Josie's Momma
Sponsor
kayakmom
05-07-2005, 01:22 PM
It is so frustrating to be promised the result sand have to wait.....
I am also waiting 2 weeks for results on my DD's EEG last week. it is hard. More so when you have to call so many times and they seem NOT to know what the hospital or child's name is!!
Hang in there. Waiting is hard. A friend of mine calls it hurry up and wait disease, we HURRY up to all these tests then we have to WAIT for answers from them....
I am also waiting 2 weeks for results on my DD's EEG last week. it is hard. More so when you have to call so many times and they seem NOT to know what the hospital or child's name is!!
Hang in there. Waiting is hard. A friend of mine calls it hurry up and wait disease, we HURRY up to all these tests then we have to WAIT for answers from them....
Olibetgeocaca
05-08-2005, 09:24 AM
I have used alternative treatments in favour of orthodox medicine for over 30 years now....with dramatic results. I have helped family and friends and seen massive changes in their health.
On one occasion I did research for a friend of mine who had grand mal epileptic fits every day and was on the strongest medication available.....she accepted the results of my research and the fits stopped immediately....all was well for 3 weeks till the next appointment with her doctor came up, and he was furious....... even though she had enjoyed 3 weeks free from fits....when she told him what she had been doing. He threatened to strike her off his books if she continued with this nonsense, so she went back to the medication and having the fits!!
Because of the results I got from her I recommended my research results and made visits to other sufferers....children in particular ..... and finally was invited to the Clinic to give a talk....doctors there listened, but were not convinced that it was wise to move away from orthodoxy!!!
Epilepsy is a lack of magnesium. The solution is simple....try it!!
Take half a teaspoonful of EPSOM SALTS in fruit juice every morning
It works.
It does you no harm.
All the best.
_________________
A friend is someone who can see right through you and still likes the view!
On one occasion I did research for a friend of mine who had grand mal epileptic fits every day and was on the strongest medication available.....she accepted the results of my research and the fits stopped immediately....all was well for 3 weeks till the next appointment with her doctor came up, and he was furious....... even though she had enjoyed 3 weeks free from fits....when she told him what she had been doing. He threatened to strike her off his books if she continued with this nonsense, so she went back to the medication and having the fits!!
Because of the results I got from her I recommended my research results and made visits to other sufferers....children in particular ..... and finally was invited to the Clinic to give a talk....doctors there listened, but were not convinced that it was wise to move away from orthodoxy!!!
Epilepsy is a lack of magnesium. The solution is simple....try it!!
Take half a teaspoonful of EPSOM SALTS in fruit juice every morning
It works.
It does you no harm.
All the best.
_________________
A friend is someone who can see right through you and still likes the view!
Josie's Momma
05-08-2005, 01:03 PM
I am definitely going to do that with her... that is actually very interesting. Even if the results come in ok I think I will try it.
Thanks for the info!!!
Thanks for the info!!!
kayakmom
05-08-2005, 01:41 PM
I would check with the neuro before giving this to your child. TOO much magnesium can be a problem as well as too little.
Glad it worked for you, though....
Glad it worked for you, though....
Josie's Momma
05-08-2005, 04:12 PM
LOL That's a good idea... it seems everything is bad and good for anything. Just depends on who you ask I guess. I will talk to the neuro... IF I ever even get results!!! GRRRR
Lisa*Guthrie
05-09-2005, 04:55 PM
Hi Josie's Mom
Yes, waiting is horrid! We had to wait on DNA results for 6 weeks!
But, please know that EEG results can be miss leading...
I have 2 children with Epilepsy. My oldest Jenna has always had a normal read, whereas my youngest has always had an abnormal read. They have to "catch" a seizure for it to show them something enless the overall brain activity is off in someway as is with my little one.
Good luck, take a deep breath and hug your little one!
Love and light,
Lisa
Yes, waiting is horrid! We had to wait on DNA results for 6 weeks!
But, please know that EEG results can be miss leading...
I have 2 children with Epilepsy. My oldest Jenna has always had a normal read, whereas my youngest has always had an abnormal read. They have to "catch" a seizure for it to show them something enless the overall brain activity is off in someway as is with my little one.
Good luck, take a deep breath and hug your little one!
Love and light,
Lisa
niecsey
05-09-2005, 05:04 PM
Ho did you work the connection with magnesium out? please
Josie's Momma
05-10-2005, 08:32 PM
Quick update.
I call the doctor's office AGAIN today. I finally got someone who had enough sense to find out what was going on. This was of course after I said something to the effect of let me speak to the Office Manager. At any rate, he did some quick research and come to find out the place where we got the EEG done is not releasing the results. Her pediatrician is calling them personally to get the results. He is awesome at stuff like that. Hopefully (crossing fingers) I will have some info tomorow. Even if it is normal I know that doesn't nesasarily (spelling?) rule it out as Lisa said. It will just be nice to know SOMETHING at this point!!!
Thanks for letting me vent.
I call the doctor's office AGAIN today. I finally got someone who had enough sense to find out what was going on. This was of course after I said something to the effect of let me speak to the Office Manager. At any rate, he did some quick research and come to find out the place where we got the EEG done is not releasing the results. Her pediatrician is calling them personally to get the results. He is awesome at stuff like that. Hopefully (crossing fingers) I will have some info tomorow. Even if it is normal I know that doesn't nesasarily (spelling?) rule it out as Lisa said. It will just be nice to know SOMETHING at this point!!!
Thanks for letting me vent.
kayakmom
05-15-2005, 10:05 PM
I am so sorry you are having to fight so hard to get those results.....Hoping the pede is successful and gets them soon! So hard to wait....
Travis from MN
05-16-2005, 03:05 AM
Thankfully they never "lost" my tests. I have had to come back for blood work before due to fowl ups (wrong vile type used). But thats about the worst for testing.
ER messups, they tried writing a script for a nonexistant pill after I told them it didn't exist with the wrong instructions they still followed through (besides, what would some stupid patient in the ER know). When I read the scribble I shook my head, waltzed upstairs a few hours later to Neurology and told the nurse this script has more errors than the newspaper does in one collum. She looked at it, looked at me, then asked "you can read these?". I told her after all the fowl ups I have had, I NEED TO! She mentioned in passing I should technically go back down to ER to have it corrected, but, ~RIP~ being there were multiple errors she would save them the embarassment and fix it up there <grin>.
My usual problem is name spelling. they LOVE to add letters to my last name in a few ways depending on who is behind the desk.
I can recite my patient ID#'s no problem, county case #'s, state ID#'s, state health ID, (drives them batty that you remember those). County told me one time that they don't USE the ID#'s that they assign us; it's simply for records on the computer!! I have so many different tag#'s from agencies/hospitals/counties/whatever I must look like catalog items when you line them up under my name.
--Travis
ER messups, they tried writing a script for a nonexistant pill after I told them it didn't exist with the wrong instructions they still followed through (besides, what would some stupid patient in the ER know). When I read the scribble I shook my head, waltzed upstairs a few hours later to Neurology and told the nurse this script has more errors than the newspaper does in one collum. She looked at it, looked at me, then asked "you can read these?". I told her after all the fowl ups I have had, I NEED TO! She mentioned in passing I should technically go back down to ER to have it corrected, but, ~RIP~ being there were multiple errors she would save them the embarassment and fix it up there <grin>.
My usual problem is name spelling. they LOVE to add letters to my last name in a few ways depending on who is behind the desk.
I can recite my patient ID#'s no problem, county case #'s, state ID#'s, state health ID, (drives them batty that you remember those). County told me one time that they don't USE the ID#'s that they assign us; it's simply for records on the computer!! I have so many different tag#'s from agencies/hospitals/counties/whatever I must look like catalog items when you line them up under my name.
--Travis