My daughter had her cf test done and she was 48. In BC they won't send you to children's unless it is 50 or above. She was on zithromax and pulmicort nebs when the test was done. She is 5 and this is her third pneumonia(atypical) and she has had numerous ear infections(tubes), bronchitis a couple of times, croup a couple of times and has always been mucusy. She is on day 5 of Zithromax and still has a mucusy cough although is doing a bit better. I am worried that the mucus is not all dried up and it will sit and bacterialize again. What you you think? She I push for genetic testing? No history in my family...but I don't know about my dad's dad's side.
dannysmom
05-09-2005, 02:12 PM
I don't know much about the sweat test, my son was diagnosed using a genetic blood test. But I do want to say that it doesn't matter that there is no family history. There is no family history in our case and I'm sure in many others. I would say that if you really feel in your gut that more testing needs to be done than push for it. You know your child better than anyone and if you feel somethings not quite right, try to figure out what it is. Good luck to you.
cfmommy
05-09-2005, 04:20 PM
The Cystic Fibrosis Foundation has a lot of information - just read a publication of theirs a few weeks ago after someone asked about sweat test results. We have no family history either. DS's sweat test came back normal. If you think there is something wrong with your child, keep pursuing it.