Okay I just need to vent. I am so very frustrated by everything. Why can't I get a definate dx? I read a post once where a person asked if they can send man to the moon and machines to mars why can't they improve diagnostics? (not an exact quote as my memory is crappy)
I filed for disability due to my neck problems (no doubt about this one, they know exactly what is wrong) cervical fusion C5-6 in 1994 and C6-7 protruding disc with arthritis in same location. Major Depression (no doubt about this one either. 2 suicide attempts and a hospitalization for suicidal thoughts. All since 1994 and trying to deal with pain and not always being able to)
Now on to the part I want to vent about. 2 neuros say Partial Complex epilepsy. I have been taking anti-seizure meds for over a year. No improvement, actually "episodes" became more frequent. Sleep study says possible Narcolepsy. My neice talked to her teacher who is a neurologist and he says the "episodes" I describe sound like narcolepsy. Now get this: My neuro disagrees with it being narcolepsy!!!!!!!!!!!!!!!!
How will I ever get my life back if I cannot get a proper diagnosis so I can get proper treatment?
How will I ever get approved for disability if I cannot get a straight diagnosis? I am at my wits end. I try so hard to keep a positive attitude. I keep telling myself that life will get better once they get this thing figured out.
Sorry folks, I just needed to get this off my chest. I guess it is no wonder that SSA has denied me to the point of waiting for a hearing date.

Okay I just need to vent. I am so very frustrated by everything. Why can't I get a definate dx? I read a post once where a person asked if they can send man to the moon and machines to mars why can't they improve diagnostics? (not an exact quote as my memory is crappy)
I filed for disability due to my neck problems (no doubt about this one, they know exactly what is wrong) cervical fusion C5-6 in 1994 and C6-7 protruding disc with arthritis in same location. Major Depression (no doubt about this one either. 2 suicide attempts and a hospitalization for suicidal thoughts. All since 1994 and trying to deal with pain and not always being able to)
Now on to the part I want to vent about. 2 neuros say Partial Complex epilepsy. I have been taking anti-seizure meds for over a year. No improvement, actually "episodes" became more frequent. Sleep study says possible Narcolepsy. My neice talked to her teacher who is a neurologist and he says the "episodes" I describe sound like narcolepsy. Now get this: My neuro disagrees with it being narcolepsy!!!!!!!!!!!!!!!!
How will I ever get my life back if I cannot get a proper diagnosis so I can get proper treatment?
How will I ever get approved for disability if I cannot get a straight diagnosis? I am at my wits end. I try so hard to keep a positive attitude. I keep telling myself that life will get better once they get this thing figured out.
Sorry folks, I just needed to get this off my chest. I guess it is no wonder that SSA has denied me to the point of waiting for a hearing date.

Insist on getting a "sleep study". That will prove narcolepsy or maybe even sleep apnea. If SSA won't pay for it, get your regular doctor to refer you to a "sleep center".