lynnp
05-19-2005, 08:17 AM
I was wondering if those who are on Flagyl can share with me a little regarding dosage, effectiveness, side effects, and how long you have been on it. I have been reading articles about the effectiveness of Flagyl for chronic Lyme.
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raleigh86
05-19-2005, 04:04 PM
I'm on 500 mg twice daily of Flagyl. Each time I take it gets better. The first round of Flagyl, I was also taking Levaquin. I had a hard time on Levaquin and harder time taking Flagyl with it.
I just spoke to my doctor's office. She said if you get 3 days of Flagyl, that's good. I usually can stick it out for the 5 days. I have learned to start out with 1/2 pill twice a day on the first day. Then I don't seem to have a problem the remaining 4 days taking it.
Hope this helps.
Raleigh86
I just spoke to my doctor's office. She said if you get 3 days of Flagyl, that's good. I usually can stick it out for the 5 days. I have learned to start out with 1/2 pill twice a day on the first day. Then I don't seem to have a problem the remaining 4 days taking it.
Hope this helps.
Raleigh86
sleeperwoken
05-19-2005, 04:10 PM
Me too, 500 mg twice a day. I take it for one week, then break for a week. I take other abx constantly, but pulse the flagyl. My temperature is closer to normal on the flagyl week. It drops considerably on the off week.
raleigh86
05-19-2005, 04:29 PM
Sleeperwoken:
I only take Flagyl 5 days a month. I wonder if this will change and I'll take it more often?
Raleigh86
I only take Flagyl 5 days a month. I wonder if this will change and I'll take it more often?
Raleigh86
lynnp
05-19-2005, 05:29 PM
I'm on 500 mg twice daily of Flagyl. Each time I take it gets better. The first round of Flagyl, I was also taking Levaquin. I had a hard time on Levaquin and harder time taking Flagyl with it.
I just spoke to my doctor's office. She said if you get 3 days of Flagyl, that's good. I usually can stick it out for the 5 days. I have learned to start out with 1/2 pill twice a day on the first day. Then I don't seem to have a problem the remaining 4 days taking it.
Hope this helps.
Raleigh86
What do you mean by stick it out and that you had a hard time with it. What symptoms does it give you?
I just spoke to my doctor's office. She said if you get 3 days of Flagyl, that's good. I usually can stick it out for the 5 days. I have learned to start out with 1/2 pill twice a day on the first day. Then I don't seem to have a problem the remaining 4 days taking it.
Hope this helps.
Raleigh86
What do you mean by stick it out and that you had a hard time with it. What symptoms does it give you?
sleeperwoken
05-20-2005, 07:49 AM
The first time I took flagyl, my I felt like my body was extremely run down and I had a serious depression. I could not get out of it. Someone told me to increase my B12 and that seemed to help quite a bit. Now I take flagyl with no problems but it took a while for my body to be able to handle the dose. I increased slowly.
AngelaA
05-20-2005, 07:14 PM
I'm in my 2nd week of Flagyl treatment. My dosage is 250mg 3 times a day for 30 days. I am also taking Zithromax 500mg every other day for a month. I am feeling really bizarre. Yesterday I got really sick as I hopped into a hot car and drove to the dr. I started getting really dizzy and confused. I fell off the scale at the doctor's when the nurse went to weigh me. By the time I saw my dr I was sweating profusely despite air conditioning and could not think to tell the dr half the things I needed to and had trouble forming words. I am assuming the Flagyl is causing this from getting an overload of neurotoxins dumped into my system. The Flagyl makes me feel weird in the stomach, very nauseated and not wanting to eat much. If I do force myself to eat a big meal then I feel like I am going to vomit. My friend who is on Levaquin and Flagyl has the same nauseated feeling. Another thing my sweat smells really strange since starting the Flagyl. The night sweats which were cyclic in the past are now every night and very intense since starting the Flagyl. I suspect I have Babesiosis but haven't been tested for it yet. Anyone know if Babs is affected by the drug?
PS: I just found out not to use anything containing alcohol when using Flagyl. I just thought that meant drinking it. But a friend who is a D.O. informed me that it also includes alcohol in any cosmetics and mouthwashes, etc. That means liquid Samento is out of the question while using Flagyl.
PS: I just found out not to use anything containing alcohol when using Flagyl. I just thought that meant drinking it. But a friend who is a D.O. informed me that it also includes alcohol in any cosmetics and mouthwashes, etc. That means liquid Samento is out of the question while using Flagyl.
Exdancer
05-24-2005, 12:56 AM
I'm on 500mg of flagyl twice a day for 5 days every month while pulsing other meds also and I havent really had a problem with the meds besides feeling a little mroe rundown then usual, Angela, any idea why you can't use anything with alcohol while on it? I mean if you're not swallowing it i didn't think it would hurt anything. I'd be curious to know why, TIA!
AngelaA
05-24-2005, 01:58 AM
Exdancer -Its something called "antibus" reaction if my Lyme brain remembers correctly. Even alcohol absorbed through the skin or muscous membranes will react with Flagyl. An osteopath told me this and it was the first thing out of her mouth when I said I was taking Flagyl and feeling weird. BTW- There first few days of Flagyl was no biggie. The weird things started happening around day 7. The sweats are the worse, 3 times as bad as they were before and weird dreams, weird feelings in my thigh this morning and a few days ago I swear it felt like something biting me from the inside out. I let out a yelp it hurt so bad and looked to see if there was a bug on me, but did not see anything.
GomezNC
05-24-2005, 08:14 AM
I take Flagyl 500 mg twice a day, but only 3 days a month. I am taking it with Levaquin and the combo makes me really sick. They stopped the Flagyl for a while and now I am back on it. I took it yesterday and was sick in the bathroom all day. I can't stand the stuff! I can really tell a difference on the days I dont take it. I don't feel near as bad.
Betterdaysforme
05-24-2005, 12:47 PM
Exdancer -Its something called "antibus" reaction if my Lyme brain remembers correctly. Even alcohol absorbed through the skin or muscous membranes will react with Flagyl. An osteopath told me this and it was the first thing out of her mouth when I said I was taking Flagyl and feeling weird. BTW- There first few days of Flagyl was no biggie. The weird things started happening around day 7. The sweats are the worse, 3 times as bad as they were before and weird dreams, weird feelings in my thigh this morning and a few days ago I swear it felt like something biting me from the inside out. I let out a yelp it hurt so bad and looked to see if there was a bug on me, but did not see anything.
Hey Angela,
I know what you are talking about. I don't take flagyl but the other day I was doing a foot bath and after about 15 minutes I swore the cord had to have gotten into the water. About 2 inches from my toes on the left foot I got what felt like an electrical shock. Very weird sensation. Hope it was the critters trying to bite back because I was ticking them off and evicting them from their comfortable quarters. :D
betterdaysforme
Hey Angela,
I know what you are talking about. I don't take flagyl but the other day I was doing a foot bath and after about 15 minutes I swore the cord had to have gotten into the water. About 2 inches from my toes on the left foot I got what felt like an electrical shock. Very weird sensation. Hope it was the critters trying to bite back because I was ticking them off and evicting them from their comfortable quarters. :D
betterdaysforme
AngelaA
05-24-2005, 08:10 PM
Betterdays- Was that a hot water foot bath? The spirochettes don't like it hot, you may have really angered them!
AngelaA
05-24-2005, 08:14 PM
It seems every is on low doses of Flagyl, it makes me wonder why I am having to take 750mg for 30 days. I am just miserable on this stuff.
Betterdaysforme
05-24-2005, 11:18 PM
Betterdays- Was that a hot water foot bath? The spirochettes don't like it hot, you may have really angered them!
Hey Angela,
Yep, it was as hot as I could get it. I am really trying to get them moving. When I'm too down for a full bath I figure this is better than nothing. Maybe that is why my rear end is dragging today. They're trying to get back at me.
I will keep it up though. I'm 100% Irish and maybe even more stubborn than them.
betterdaysforme
Hey Angela,
Yep, it was as hot as I could get it. I am really trying to get them moving. When I'm too down for a full bath I figure this is better than nothing. Maybe that is why my rear end is dragging today. They're trying to get back at me.
I will keep it up though. I'm 100% Irish and maybe even more stubborn than them.
betterdaysforme
lynnp
05-24-2005, 11:35 PM
Hey Angela,
I know what you are talking about. I don't take flagyl but the other day I was doing a foot bath and after about 15 minutes I swore the cord had to have gotten into the water. About 2 inches from my toes on the left foot I got what felt like an electrical shock. Very weird sensation. Hope it was the critters trying to bite back because I was ticking them off and evicting them from their comfortable quarters. :D
betterdaysforme
What do the hot foot baths do and are they just hot water or do you add anything to it?
I know what you are talking about. I don't take flagyl but the other day I was doing a foot bath and after about 15 minutes I swore the cord had to have gotten into the water. About 2 inches from my toes on the left foot I got what felt like an electrical shock. Very weird sensation. Hope it was the critters trying to bite back because I was ticking them off and evicting them from their comfortable quarters. :D
betterdaysforme
What do the hot foot baths do and are they just hot water or do you add anything to it?
AngelaA
05-25-2005, 01:31 AM
lynnp- My dr told me when on antibiotics to take bathes 102 F or hotter. Reason being is lyme spirochettes normally live in your muscle tissue, tendons and ligaments. The heat from the hot water drives them out of the tissue in search of a nicer (cooler) place to live. As they travel through the bloodstream it allows the antibiotics to "get at them" killing them much more efficiently. You can add epsom salt, hydrogen peroxide and essential oils to detox the body because as the spirochettes die they release neurotoxins. I remember my chiro telling me years ago when one is sick to dump a pound of epsom salt in a hot bath because it had been proven it will draw toxins out of the kidneys.
Betterdaysforme
05-25-2005, 09:36 AM
Hey Angela,
I haven't added anything to the hot footbath water because it is also a massaing unit. I wonder if it would do any good to add the epsom salts/peroxide mix. I just don't want anything to get caught in the electrical part of it and screw it up. Any advice or experience with this?
betterdaysforme
I haven't added anything to the hot footbath water because it is also a massaing unit. I wonder if it would do any good to add the epsom salts/peroxide mix. I just don't want anything to get caught in the electrical part of it and screw it up. Any advice or experience with this?
betterdaysforme
Exdancer
05-25-2005, 04:22 PM
Thanks for the info Angela I'v been wondering about how that works, I guess I better slack of on mouthwash and body sprays when im on flagyl then! I'm beginning to wonder why I'm not having any kind of a reaction to the emds mesides being a lil more rundown then usual.
Betterdaysforme, another fellow scot/irish here! I'v got the red hair and fair skin to prove it! I think our stubournness will eventually win out! :)
Betterdaysforme, another fellow scot/irish here! I'v got the red hair and fair skin to prove it! I think our stubournness will eventually win out! :)
AngelaA
05-25-2005, 08:38 PM
Exdancer feeling a little more rundown than usual is a sign of herxing. The treatment affects people different. Don't feel like you have to feel like crap during the treatment, because some people never do. I know of someone treated for Lyme 15 years ago and she said she never had the herxing she hears others complain about. She had a PICC line, took oral antibiotics for several years and said it never really bother her. Now she is very energetic and says she feels great. She is around 65 and has the energy of a teenager.
Oh and by the way one doesn't have to give up on oral hygiene because there are mouthwashes that do not contain alcohol. I know for certain Tom's of Maine mouthwashes do not contain alcohol and many other brands like you would find at healthfood stores are alcohol-free. Tom's is probably the easiest to find because I often see it in Target & Walmart. Their cinnamon flavor is really good. They have a new one that is lemon-lime which is a bit "different".
Oh and by the way one doesn't have to give up on oral hygiene because there are mouthwashes that do not contain alcohol. I know for certain Tom's of Maine mouthwashes do not contain alcohol and many other brands like you would find at healthfood stores are alcohol-free. Tom's is probably the easiest to find because I often see it in Target & Walmart. Their cinnamon flavor is really good. They have a new one that is lemon-lime which is a bit "different".
AngelaA
05-25-2005, 08:43 PM
Betterdaysforme- Are you talking about those Dr. Scholl's electric foottubs that heat the water and vibrate? I used to have one and it seems like maybe the manual did say not to use epsom salt due to corrosion. Do you still have the manual? Maybe check their website to see if they have an online manual. I did get some of those mixes that you see in the footcare aisle in drugstores that are suppose to moisturize and relax the feet and those never hurt my machine. However I don't think those will clear neurotoxins, but nonetheless still enjoyable to soak in.
Betterdaysforme
05-26-2005, 12:34 AM
Thanks for the info Angela I'v been wondering about how that works, I guess I better slack of on mouthwash and body sprays when im on flagyl then! I'm beginning to wonder why I'm not having any kind of a reaction to the emds mesides being a lil more rundown then usual.
Betterdaysforme, another fellow scot/irish here! I'v got the red hair and fair skin to prove it! I think our stubournness will eventually win out! :)
Hey exdancer,
I'm what they call a black Irish. My 4th grade teacher ( a man) told me about the black Irish being part Spanish way back when. As dark a brown hair as you can get without being black and green eyes. Of course at 57 the hair needs a little help to stay that color. :D
betterdaysforme
Betterdaysforme, another fellow scot/irish here! I'v got the red hair and fair skin to prove it! I think our stubournness will eventually win out! :)
Hey exdancer,
I'm what they call a black Irish. My 4th grade teacher ( a man) told me about the black Irish being part Spanish way back when. As dark a brown hair as you can get without being black and green eyes. Of course at 57 the hair needs a little help to stay that color. :D
betterdaysforme
Betterdaysforme
05-26-2005, 12:38 AM
Betterdaysforme- Are you talking about those Dr. Scholl's electric foottubs that heat the water and vibrate? I used to have one and it seems like maybe the manual did say not to use epsom salt due to corrosion. Do you still have the manual? Maybe check their website to see if they have an online manual. I did get some of those mixes that you see in the footcare aisle in drugstores that are suppose to moisturize and relax the feet and those never hurt my machine. However I don't think those will clear neurotoxins, but nonetheless still enjoyable to soak in.
Hey Angela,
I got the footbath at Kohl's. I do have the manual and think I will call the manufacturer tomorrow to ask about adding stuff. Thanks.
betterdaysforme
Hey Angela,
I got the footbath at Kohl's. I do have the manual and think I will call the manufacturer tomorrow to ask about adding stuff. Thanks.
betterdaysforme
sleeperwoken
05-26-2005, 08:04 AM
LOL. Another Irish girl here. My grandmother always said the Irish don't stay sick for long because there's too much piss and vinegar in us for anything else to live in our system. I hope she was right.
At my last dermatologist appointment the doctor said, "This exam will take a little time, you have celtic skin." I took it as a compliment.
My kids are Scottish/Irish. One time I was at a school concert and sitting in the back waiting for my daughter to take her place on the stage and someone nearby who didn't know it was my kid said, "look at that one, you can't tell she's Irish, huh?" We look so Irish we practically wear the flag on our faces.
Okay what was the point of all this? I don't know but thanks for letting me tell you anyway.
At my last dermatologist appointment the doctor said, "This exam will take a little time, you have celtic skin." I took it as a compliment.
My kids are Scottish/Irish. One time I was at a school concert and sitting in the back waiting for my daughter to take her place on the stage and someone nearby who didn't know it was my kid said, "look at that one, you can't tell she's Irish, huh?" We look so Irish we practically wear the flag on our faces.
Okay what was the point of all this? I don't know but thanks for letting me tell you anyway.