optimist
04-10-2002, 10:55 AM
Kim (LHowells) I have been all over these boards. I first thought I had an inner ear problem--all tests were negative. Went to neurologists--again, thank goodness all tests were negative. Then I thought perhaps it was my thyroid. I am on meds for thyroid. I am still not feeling well. I think I have CFIDS. My symptoms, personality profile point to the syndrome.
I am still trying to work full time and go on with my life. I am having great difficulty. Constant dizziness, confusion, of course fatigue. Do you feel better after awhile. By the way, I feel I have had CF for many years that went undiagnosed. Now the symptoms are unrelenting. What have you done to improve your health? I have read the books From Fit to Fantastic and the book
A Doctor's Guide to CF. I am presently on many supplements, anti-depressent, good nutrition. I don't smoke or drink. I exercise daily--with great difficulty. I am very concerned about my job--it has become harder and harder for me to keep up. I have requested information from my state
CFS society. What other steps have you taken? I would appreciate any suggestions.
I am still trying to work full time and go on with my life. I am having great difficulty. Constant dizziness, confusion, of course fatigue. Do you feel better after awhile. By the way, I feel I have had CF for many years that went undiagnosed. Now the symptoms are unrelenting. What have you done to improve your health? I have read the books From Fit to Fantastic and the book
A Doctor's Guide to CF. I am presently on many supplements, anti-depressent, good nutrition. I don't smoke or drink. I exercise daily--with great difficulty. I am very concerned about my job--it has become harder and harder for me to keep up. I have requested information from my state
CFS society. What other steps have you taken? I would appreciate any suggestions.
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korken
04-20-2002, 11:00 PM
Hello,
I am the other Kim. Hope you don't mind my putting in my 2 cents.
Have you been to a CFS board certified specialist? We didn't get the complete Dx by other docs. We both have CFS and FMS. Our doc is a board certified FMS, CFS, Infectious disease specialist. Hope this helps.
------------------
Take care ~Kim & Gary~
I am the other Kim. Hope you don't mind my putting in my 2 cents.
Have you been to a CFS board certified specialist? We didn't get the complete Dx by other docs. We both have CFS and FMS. Our doc is a board certified FMS, CFS, Infectious disease specialist. Hope this helps.
------------------
Take care ~Kim & Gary~
jung
04-25-2002, 11:32 PM
Find a D.O. or MD who will call Immunosciences Lab of Beverly Hills, CA or Institute for Molecular Medicine in Huntington Beach, CA and order a blood kit to be tested for mycoplasma. Get it typed. In the meantime, try a natural antiviral - Olive leaf extract 2 3xday, mgn3 (boosts killer cell activity), and grape seed extract. Good to take wobenzyme on an empty stomach for inflamation. You can also get multi-antigen specific transfer factor from a lab in N. Carolina. Very effective. Hang in there. You can kick this. I have.
optimist
04-26-2002, 10:47 AM
Thank you for your responses Jung and Kim.
A question for Jung--what is multi-antigen specific transfer factor--a supplement? I will also be interested in your response to Kim about the mycoplasma. Thank you both for your info.
A question for Jung--what is multi-antigen specific transfer factor--a supplement? I will also be interested in your response to Kim about the mycoplasma. Thank you both for your info.
jung
04-30-2002, 07:52 PM
If you have chronic fatigue, your immune system has crashed and everything that has been lying dormant "reactivates" and your body cannot fight it off. With CFS the common other "loads" are cytomeglovirus, herpes HHV6, epstein barr, sometimes chalmydia pneumonia, and mycoplasma (found in 70% of CFS patients. Chisolm Labs has deisgned a "transfer factor" for CFS that "wakes up" your immune system to fight the load. If you have had a chronic infection for over 90 days, your immune system loses memory on what to fight because of die off. This wakes it up. You need to stay on it for one month after your symptoms go away. However, if you are positive for mycoplasma, you need antibiotics. Where are you? You need to see a doctor who knows about such things. Believe it or not, most do not. Do some research. That is how I have recovered. It is critical that you totally change your diet. Go to http://mercola.com/diet and do it. If you want to recover, you must make changes. It is difficult, but you can do it. And you WILL recover!
jung
04-30-2002, 07:54 PM
One more thing - I hope you have been tested for lyme disease and showed negative. Doctors overlook testing for lyme.
optimist
05-01-2002, 10:52 AM
Thank you Jung for all the great info. I started taking MGN3 on Saturday, plus some additional amino acids. I had been taking olive leaf and grape seed extracts so I have continued with those two supplements. Since I have been taking the MGN3 I have been feeling better. I have ordered more of the MGN3 and wobenzyme plus a supplement called Pro Boost.
In addition, I have been taking Acyclovir anti-viral--2 tabs a day. I have not been tested for Lyme disease, but I live in Indianapolis and do not feel I am in an area that would point to that. I do have a very good diet. Plus I run 5 miles a day. I am seeing a physical therapist for some cranial therapy and she has a doctor that she would like me to see--an MD that deal with CF and takes a natural approach--use of supplements etc...
Again, thank you for the info--your suggestions have been very helpful and I my symptoms are lessening--especially the confusion, the dizziness.
In addition, I have been taking Acyclovir anti-viral--2 tabs a day. I have not been tested for Lyme disease, but I live in Indianapolis and do not feel I am in an area that would point to that. I do have a very good diet. Plus I run 5 miles a day. I am seeing a physical therapist for some cranial therapy and she has a doctor that she would like me to see--an MD that deal with CF and takes a natural approach--use of supplements etc...
Again, thank you for the info--your suggestions have been very helpful and I my symptoms are lessening--especially the confusion, the dizziness.
ah683
07-06-2002, 01:36 AM
Jung,
Where is Chislom Labs? I would like to get info on the transfer factor. Thanks
Where is Chislom Labs? I would like to get info on the transfer factor. Thanks
sleepystar
07-26-2002, 08:22 PM
hi, i haven;t read the replies so i appologise if i repeat what has been said, at current my ME is severe (am bedbound and often suffer paralisis, loss of speach etch) but i believe the only 'cure' to ME is plently of rest and striking the right balance between rest and activity, find your baseline and then very slowly build upon it. Also it might be worth discussing various meds, i am on amitripline to help with constant migrane but it is also meant to help with sleep patterns and muscle spams if your effected with that, basicly try meds for your various symtptoms i have to warn you tho it took me 5 years of experimenting to find something that helped a little
All the best with it, here are some great sites that i have recieved soooo much support from
www.ayme.org.uk (http://www.ayme.org.uk) www.afme.org.uk (http://www.afme.org.uk) www.brainfogging.net (http://www.brainfogging.net)
All the best with it, here are some great sites that i have recieved soooo much support from
www.ayme.org.uk (http://www.ayme.org.uk) www.afme.org.uk (http://www.afme.org.uk) www.brainfogging.net (http://www.brainfogging.net)
olemsreb
08-12-2002, 09:28 PM
http://www.chisolmbio.com/