gin2001
05-22-2005, 10:53 PM
I just got done watching the cnn special. It was very interstering. My family is still new to autism my daughter was digonsed January of this year. So it was upseting to me cause you just don't know how things are going to be for your child when they get older. :confused:
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heartcreature
05-23-2005, 09:44 AM
Gin just try to stay positive. If you think about it we don't know even what our children without autism will face. I advise you to start learning all you can by reading and attending conferences. Knowledge is power and just knowing that there are things you can do to possibly make things better for your child will help you to adjust to the diagnosis.
Jana2676
05-30-2005, 04:42 AM
My daughter was also diagnosed in January. Its stressful anticipating what their future will be. Some members of our family are not very supportive, so that makes it difficult. So far we are learning by trial and error and just hope for the best. Coming to these message boards and reading about what others have done successfully and unsuccessfully is a great help! Even if I don't post a reply, I learn alot just by reading.
:)
:)
Ingridchicago
08-12-2005, 04:24 AM
That was depressing. I could not help but worry after watching that. However, I keep telling myself that I love him regardless, and he's mine and everything will be allright.
You read all the articles and anything you can find, but you still cannot help to worry.
WE MUST JUST MOVE FORWARD AND FACE THE FUTURE
You read all the articles and anything you can find, but you still cannot help to worry.
WE MUST JUST MOVE FORWARD AND FACE THE FUTURE
arenner
08-12-2005, 06:37 PM
Worry about the future is very difficult. I think, "what if something happens to me, then what?" I personally cant see anyone in my family having the patience to care for him. On that note, I also try to see the progress he has made over the years and I know he will continue to make progress. The fact that your child and our children have parents devoted to helping them achieve their full potential and love and care for them means that they will have a good chance in the future. :wave: Good luck and my thoughts are with you the first while after a diagnosis is a very anxious time for parents when thinking ahead. Take it one day at a time.
aridus
08-13-2005, 03:32 AM
I personally am for the chelation therapy. Here is the yahoo group that you can read what others are doing, http://health.*************.com/group/Autism-Mercury/ (open to public viewers), and http://health.*************.com/group/chelatingkids2/ (need the name of your DAN doctor to join).
Here is an example of the messages of the first group,
quote
lvchefmel <lvchefmel@...>
Re: [Autism-Mercury] Re: When is the best time to start Chelation for a 3 yr ...
I agree with Kerrie. My son is 5 1/2 and I am kicking myself for not doing this
a long time ago. I had also heard conflicting information and I knew noone who
was doing this. If I knew then what I know now...would have done this within
months of getting the diagnosis. My son is supposed to start kindergarden this
year. I really want my children to go a Christian school. We tried it this
week thinking maybe he could keep his head above water until chelation was done.
He is higher functioning but sadly he cannot keep up. I cried the whole way
home thinking that if I had done chelation before he would probably be able to
keep up with the other kids. If you think for a second chelation might help, I
say do it. You can always stop if you later change your mind. You may be very
surprised how much it can change your child's life. We see good things with
each round we do.
Good luck!
Melissa
ratlenhum@... wrote:
I agree too. Start now. My son was diagnosed at 23 months and shortly after
I read about chelation. I was scared of it, afraid to try it, and his doctor
and therapists told me what a horrible process it was to put a child through.
My son is 3yrs 8 months and we just started a month ago. I finally decided to
do it. The changes I am seeing in one month already are incredible and
thrilling, yet sad at the same time. I can only imagine what my son would be
like
now had I started this 18 months ago.
Kerrie
In a message dated 8/11/2005 2:59:05 PM Eastern Daylight Time,
michonamission@... writes:
I second that notion. The one thing I have learned through all this
is .... "time is our children's biggest enemy." I am still awaiting
instructions to start chelation on my just turned 2 child. The
earlier the better is what I have read.
end quote
Here is an example of the messages of the first group,
quote
lvchefmel <lvchefmel@...>
Re: [Autism-Mercury] Re: When is the best time to start Chelation for a 3 yr ...
I agree with Kerrie. My son is 5 1/2 and I am kicking myself for not doing this
a long time ago. I had also heard conflicting information and I knew noone who
was doing this. If I knew then what I know now...would have done this within
months of getting the diagnosis. My son is supposed to start kindergarden this
year. I really want my children to go a Christian school. We tried it this
week thinking maybe he could keep his head above water until chelation was done.
He is higher functioning but sadly he cannot keep up. I cried the whole way
home thinking that if I had done chelation before he would probably be able to
keep up with the other kids. If you think for a second chelation might help, I
say do it. You can always stop if you later change your mind. You may be very
surprised how much it can change your child's life. We see good things with
each round we do.
Good luck!
Melissa
ratlenhum@... wrote:
I agree too. Start now. My son was diagnosed at 23 months and shortly after
I read about chelation. I was scared of it, afraid to try it, and his doctor
and therapists told me what a horrible process it was to put a child through.
My son is 3yrs 8 months and we just started a month ago. I finally decided to
do it. The changes I am seeing in one month already are incredible and
thrilling, yet sad at the same time. I can only imagine what my son would be
like
now had I started this 18 months ago.
Kerrie
In a message dated 8/11/2005 2:59:05 PM Eastern Daylight Time,
michonamission@... writes:
I second that notion. The one thing I have learned through all this
is .... "time is our children's biggest enemy." I am still awaiting
instructions to start chelation on my just turned 2 child. The
earlier the better is what I have read.
end quote
aridus
08-13-2005, 03:34 AM
I don't know what happened to the stars in the link. They are "groups dot yahoo".
lisa*9
08-13-2005, 03:56 AM
this is more of a question than answer but I am interested in how many people here have found the diagnosis of autism related or close to immunization dates yet before immunizations your child was normal - not a judgement question but a poll question
claste
08-13-2005, 04:33 AM
lisa*9, i have twins, i held off with the mmr vacination until they were 18 months, after all if a child is autistic they show the signs at 18months, how wrong i thought, they were both vacinated together, within a week of the injection lace regressed, she had hit her milestones on time, she had a good diet, eye contact was good she seemed a typical toddler, she became a withdrawn child, picture sifted, totally blocked me out, was ill with chest infecions and ear infections for 12 to 16 weeks after the injection, it was then i knew something was seriously wrong, her face was expressionless and she looked so sad, her eyes spoke of a child locked within. on the other hand her twin thrived, was it the mmr vacination? i don't know, i look back on her baby days, she was always funny with strangers and clingy with me, if strangers approached her she'd scream at them, looking at photos she does have different facial expressions to her twin, looking at video footage of her when i repeatedly called her name she never "answered", it seems to me that she was showing signs of autism before the mmr, maybe the mmr was the straw that broke the camels back for her, i look at a photo taken when they were 6 months old lace has the same scared, anxious expression, as she does on a photo taken when she was 2-3, i was so busy with my twins that i think i missed the signs she showed, however she is making excellent progress and i'm so proud of her achievements, i've finally accepted who she is and that she is different, that i can't take away her autism, and if i could she wouldn't be the child i love and adore now, i'm walking the path with her at her pace, rather than trying to drag her with me at my pace, i thank the lord for both my children, i feel blessed that they choose me to parent them and i promise to do my best for them in any way i can, i love them with all my heart. :angel:
erinsmom
08-14-2005, 12:05 AM
lisa*9, I always believed my daughter was "different" before she had any vaccinations...she was more irritable than my others and could literally roll over at 2 days of age she was soooo tense and tight. She never cried at her first vaccination which I thought was very odd but the doctor blew off. She blew off a lot of things unfortunately.
Personally I thought the show "Autism is a World" was disappointing. It was obvious that young lady was misfortunate enough to have some type of genetic syndrome also. I don't mean to sound unkind I just don't think that some people realize how "normal" autistic kids look, hence the stares and comments when our kids have their "meltdowns" in public.
Just my thoughts.
Cara
Personally I thought the show "Autism is a World" was disappointing. It was obvious that young lady was misfortunate enough to have some type of genetic syndrome also. I don't mean to sound unkind I just don't think that some people realize how "normal" autistic kids look, hence the stares and comments when our kids have their "meltdowns" in public.
Just my thoughts.
Cara
lisa*9
08-14-2005, 04:36 AM
thankyou .... I am finding others with the same sort of stories with many issues related to mmrs . I have read alot about both the pros and cons of mmr because I don't want to be judgemental I have also seen entire communities quite ill from flu shots and have had my own bad experience with a tetnus shot but am finding the relationship with autism and mmrs coming up quite frequently from parents with autistic children . Claste ; your story is heartbreaking but yes all children are beautiful and autistic children do look normal until they act up in public . There has been times when I've felt like belting some people who stare at the scene on behalf of the parent with the child . I can't imagine what some parents went through decades ago and before autism was something few people knew about . Bless you and thankyou for your input