goldenwings
05-23-2005, 05:46 PM
Hiya me dear,
Did you say that you have (amongst other things) CFS as well as Fibro? Sorry, things are a bit hectic at the moment, my brain is not in gear.
My darling husband's doctor has decided to send him to a consultant to ask about CFS. The exclusion of different drugs, added drugs, different ideas have been thrown about for roughly 18 months now, and it is getting so bad for my husband to carry on normally. He works real long hours, has got a lot of travelling to do before he reaches work and comes home exhausted, goes to bed and gets up exhausted. He is so lethargic. The pills and potions and so on, have not made any difference to my husband's extreme fatigue.
I'm hoping you might be able to give me some insight from a personal perspective tk.
Thank you.
goldenwings :angel:
Did you say that you have (amongst other things) CFS as well as Fibro? Sorry, things are a bit hectic at the moment, my brain is not in gear.
My darling husband's doctor has decided to send him to a consultant to ask about CFS. The exclusion of different drugs, added drugs, different ideas have been thrown about for roughly 18 months now, and it is getting so bad for my husband to carry on normally. He works real long hours, has got a lot of travelling to do before he reaches work and comes home exhausted, goes to bed and gets up exhausted. He is so lethargic. The pills and potions and so on, have not made any difference to my husband's extreme fatigue.
I'm hoping you might be able to give me some insight from a personal perspective tk.
Thank you.
goldenwings :angel:
Sponsor
tkgoodspirit
05-23-2005, 07:00 PM
Hiya me dear,
Did you say that you have (amongst other things) CFS as well as Fibro? Sorry, things are a bit hectic at the moment, my brain is not in gear.
My darling husband's doctor has decided to send him to a consultant to ask about CFS. The exclusion of different drugs, added drugs, different ideas have been thrown about for roughly 18 months now, and it is getting so bad for my husband to carry on normally. He works real long hours, has got a lot of travelling to do before he reaches work and comes home exhausted, goes to bed and gets up exhausted. He is so lethargic. The pills and potions and so on, have not made any difference to my husband's extreme fatigue.
I'm hoping you might be able to give me some insight from a personal perspective tk.
Thank you.
goldenwings :angel:
"Wings",
I posted a big long reply but my ISP is messing up today as I've been having trouble getting around the web, on either of my computers, so after I posted the reply, I got that "cannot display" thingie and when I hit the back button, ALL of my reply was gone!
So, I am not ignoring you, I'll get it altogether again for you.
tk
Okay "Wings", I'm going to try to post a good reply once again, so check back on your thread later, K? I'm going at it now.
Did you say that you have (amongst other things) CFS as well as Fibro? Sorry, things are a bit hectic at the moment, my brain is not in gear.
My darling husband's doctor has decided to send him to a consultant to ask about CFS. The exclusion of different drugs, added drugs, different ideas have been thrown about for roughly 18 months now, and it is getting so bad for my husband to carry on normally. He works real long hours, has got a lot of travelling to do before he reaches work and comes home exhausted, goes to bed and gets up exhausted. He is so lethargic. The pills and potions and so on, have not made any difference to my husband's extreme fatigue.
I'm hoping you might be able to give me some insight from a personal perspective tk.
Thank you.
goldenwings :angel:
"Wings",
I posted a big long reply but my ISP is messing up today as I've been having trouble getting around the web, on either of my computers, so after I posted the reply, I got that "cannot display" thingie and when I hit the back button, ALL of my reply was gone!
So, I am not ignoring you, I'll get it altogether again for you.
tk
Okay "Wings", I'm going to try to post a good reply once again, so check back on your thread later, K? I'm going at it now.
tkgoodspirit
05-23-2005, 08:22 PM
"Wings",
PAGE ONE (I KNEW it!)
I want to say first of all, it is totally possible that your sweet husband is suffering from complete and total exhaustion. Exhaustion can become severe, but hopefully not "chronic". When it does become "chronic", that is when CFS is suspected. Now, there are many opinions regarding CFS just like FM. Unfortunately. Each doc you speak with will have their own "opinionated" dx of what CFS is exactly. I will share with you my personal experience as far as what 4 different docs have said about CFS and then I'll post some info as far as symptoms and recent (recent as possible!) findings.
There are no tests to determine whether or not you have CFS, it's dx'd just like FM, through a series of tests using the "process of elimination". You know, well, "you don't have RA, Lupus, MS, or what have you" and CFS is dx'd then by the symptoms you are experiencing. Interesting though that SSD considers CFS a disabling condition where as it doesn't FM. More cases for SSD are won on the basis of a dx of CFS than FM. Although the symptoms are similar, it is believed that CFS is an autoimmune disorder, while we are just begining to classify FM as the same.
Let me tell you what 3 of my Rheumy's told me about CFS. My first Rheumy classified CFS as an Infectious Disease and told me that an ID doc needed to treat CFS, though she did not refer out to ID docs. (personally I believe she chose not to refer ME out because of our "disagreement"). Then my second Rheumy told me that he believes CFS is symptomatic of FM. It is well known that with FM you feel fatigue, when the fatigue crosses the line into exhaustion, that is when it becomes "chronic", and there you have CFS. He believes that FM, CFS and MPS all bundle together depending on when you are experiencing the particular symptoms. I don't know how he feels about CFS if you don't have FM? :rolleyes: My third and current Rheumy (current for now! LOL) believes out of all her patients that only a few have "true" CFS. She believes CFS is caused by a viral infection that compromises the immune system.
There ARE significant symptoms that differ from FM that can lead a doc to suspect CFS. Let me also tell you that there are two names used for CFS. One is CFS and the other is CFIDS. I'll define that later.
What led me to the CFS dx? I was at an appt with my family doc (GP) and told him my symptoms and that I was so so tired all the time. Not just the FM fatigue. This was different. I would get up for 2 hours, back to bed for up to 4 hours, then up again for 2-3 hours, and back to bed. It was awful. I was so exhausted. Not just tired, exhausted! I had also researched CFS and new the symptoms. It was my GP who told me I was showing signs of CFS. One other thing, I also new that Epstein-Barr Virus was believed to be a cause of CFS, thbugh it is still highly debated between docs. I researched the symptoms of EBV and found I had those, so I insisted on an EBV test. IMO, your husband should also do this. EBV is a common viral infection that approx 95% of the population (I believe these are US statistics) has. You carry it around with you. Just like the "fungal components" we all have in our lungs. Only when the virus is activated or "reactivated" does EBV become a problem. EBV is commonly caused by childhood diseases, chicken pox, measles, etc. And we just carry it around with us, it's dormant. It is the most common cause of Mononucleosis in teens. Epstein-Barr Virus test is done on the blood SERUM. This is very important. My lab girl made a mistake when she first did the EBV test, obviously she didn't do many of them, cuz, she had to use her "cheat book"! She didn't run the SERUM and I had to go back to get more blood drawn. So make sure the test is done on the SERUM. I tested positive for a "past" infection and was told that the EBV Anti-body would remain positive for many many years. So, of course, I had to look into all that. "Past" infection, merely means, I contracted EBV, probably from a virus I had way back when, and it has now "reactivated" causing me other symptoms, and is now considered Chronic EBV since it shows positive everytime I'm tested. Personally, I believe when I had E-Coli last year, it "reactivated" this virus. It took me a long time to recover from the E-Coli. More than twice the normal time it usually takes. And I had a heck of a time with it. I have noticed that since my recovery from E-Coli, I haven't been quite the same. That's when my symptoms of CFS started. I always felt sick. I knew my FM pretty well, and I knew that what I was feeling was "different". So the positive EBV showing a "past" infection, is actually "fuel" for my insistance to my current Rheumy that I DO have CFS.
Now, I'll list the symptoms of CFS: Again, this info is public, not copywrite protected. One of the studies posted here is the actual results (a study about a possible blood test for CFS) but also, not copywrite protected, it even had a "printable" feature, so it is meant to be shared.
What is Chronic Fatigue Syndrome?
Chronic fatigue syndrome (CFS) is a condition that causes fatigue severe enough to interfere with your ability to participate in normal work, recreational, or social activities. Fatigue caused by CFS does not improve substantially with rest.
Most experts now believe that chronic fatigue syndrome is a distinct physical disease with physical symptoms. Although poorly understood, CFS is quite real and can make functioning normally difficult for many people who have it.
What causes CFS?
The cause of chronic fatigue syndrome is unknown. There are likely to be multiple factors or triggers that lead to the development of CFS in those people who are susceptible.
Sometimes CFS appears to develop following a viral or bacterial infection, but there is no evidence to support a direct relationship between infectious disease and CFS.
What are the symptoms of CFS?
In addition to fatigue, CFS causes symptoms that may include sleep problems, a decreased ability to think clearly and concentrate, memory problems, fever, headaches, muscle and joint pain, sore throat, and tender glands in the neck or armpits. Symptom flare-ups may follow periods of previously well-tolerated mental or physical activity and can last for several days.
CONTINUED
PAGE ONE (I KNEW it!)
I want to say first of all, it is totally possible that your sweet husband is suffering from complete and total exhaustion. Exhaustion can become severe, but hopefully not "chronic". When it does become "chronic", that is when CFS is suspected. Now, there are many opinions regarding CFS just like FM. Unfortunately. Each doc you speak with will have their own "opinionated" dx of what CFS is exactly. I will share with you my personal experience as far as what 4 different docs have said about CFS and then I'll post some info as far as symptoms and recent (recent as possible!) findings.
There are no tests to determine whether or not you have CFS, it's dx'd just like FM, through a series of tests using the "process of elimination". You know, well, "you don't have RA, Lupus, MS, or what have you" and CFS is dx'd then by the symptoms you are experiencing. Interesting though that SSD considers CFS a disabling condition where as it doesn't FM. More cases for SSD are won on the basis of a dx of CFS than FM. Although the symptoms are similar, it is believed that CFS is an autoimmune disorder, while we are just begining to classify FM as the same.
Let me tell you what 3 of my Rheumy's told me about CFS. My first Rheumy classified CFS as an Infectious Disease and told me that an ID doc needed to treat CFS, though she did not refer out to ID docs. (personally I believe she chose not to refer ME out because of our "disagreement"). Then my second Rheumy told me that he believes CFS is symptomatic of FM. It is well known that with FM you feel fatigue, when the fatigue crosses the line into exhaustion, that is when it becomes "chronic", and there you have CFS. He believes that FM, CFS and MPS all bundle together depending on when you are experiencing the particular symptoms. I don't know how he feels about CFS if you don't have FM? :rolleyes: My third and current Rheumy (current for now! LOL) believes out of all her patients that only a few have "true" CFS. She believes CFS is caused by a viral infection that compromises the immune system.
There ARE significant symptoms that differ from FM that can lead a doc to suspect CFS. Let me also tell you that there are two names used for CFS. One is CFS and the other is CFIDS. I'll define that later.
What led me to the CFS dx? I was at an appt with my family doc (GP) and told him my symptoms and that I was so so tired all the time. Not just the FM fatigue. This was different. I would get up for 2 hours, back to bed for up to 4 hours, then up again for 2-3 hours, and back to bed. It was awful. I was so exhausted. Not just tired, exhausted! I had also researched CFS and new the symptoms. It was my GP who told me I was showing signs of CFS. One other thing, I also new that Epstein-Barr Virus was believed to be a cause of CFS, thbugh it is still highly debated between docs. I researched the symptoms of EBV and found I had those, so I insisted on an EBV test. IMO, your husband should also do this. EBV is a common viral infection that approx 95% of the population (I believe these are US statistics) has. You carry it around with you. Just like the "fungal components" we all have in our lungs. Only when the virus is activated or "reactivated" does EBV become a problem. EBV is commonly caused by childhood diseases, chicken pox, measles, etc. And we just carry it around with us, it's dormant. It is the most common cause of Mononucleosis in teens. Epstein-Barr Virus test is done on the blood SERUM. This is very important. My lab girl made a mistake when she first did the EBV test, obviously she didn't do many of them, cuz, she had to use her "cheat book"! She didn't run the SERUM and I had to go back to get more blood drawn. So make sure the test is done on the SERUM. I tested positive for a "past" infection and was told that the EBV Anti-body would remain positive for many many years. So, of course, I had to look into all that. "Past" infection, merely means, I contracted EBV, probably from a virus I had way back when, and it has now "reactivated" causing me other symptoms, and is now considered Chronic EBV since it shows positive everytime I'm tested. Personally, I believe when I had E-Coli last year, it "reactivated" this virus. It took me a long time to recover from the E-Coli. More than twice the normal time it usually takes. And I had a heck of a time with it. I have noticed that since my recovery from E-Coli, I haven't been quite the same. That's when my symptoms of CFS started. I always felt sick. I knew my FM pretty well, and I knew that what I was feeling was "different". So the positive EBV showing a "past" infection, is actually "fuel" for my insistance to my current Rheumy that I DO have CFS.
Now, I'll list the symptoms of CFS: Again, this info is public, not copywrite protected. One of the studies posted here is the actual results (a study about a possible blood test for CFS) but also, not copywrite protected, it even had a "printable" feature, so it is meant to be shared.
What is Chronic Fatigue Syndrome?
Chronic fatigue syndrome (CFS) is a condition that causes fatigue severe enough to interfere with your ability to participate in normal work, recreational, or social activities. Fatigue caused by CFS does not improve substantially with rest.
Most experts now believe that chronic fatigue syndrome is a distinct physical disease with physical symptoms. Although poorly understood, CFS is quite real and can make functioning normally difficult for many people who have it.
What causes CFS?
The cause of chronic fatigue syndrome is unknown. There are likely to be multiple factors or triggers that lead to the development of CFS in those people who are susceptible.
Sometimes CFS appears to develop following a viral or bacterial infection, but there is no evidence to support a direct relationship between infectious disease and CFS.
What are the symptoms of CFS?
In addition to fatigue, CFS causes symptoms that may include sleep problems, a decreased ability to think clearly and concentrate, memory problems, fever, headaches, muscle and joint pain, sore throat, and tender glands in the neck or armpits. Symptom flare-ups may follow periods of previously well-tolerated mental or physical activity and can last for several days.
CONTINUED
tkgoodspirit
05-23-2005, 08:23 PM
PAGE TWO
More:
Although its name trivializes the illness as little more than mere tiredness, chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), brings with it a constellation of debilitating symptoms. Here is the differnce between CFIDS and CFS. The Center for Control considers CFS as an immune disorder, while this is still a topic of debate amoung many docs.
CFIDS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period.
The symptoms of CFIDS are highly variable and fluctuate in severity, complicating treatment and the ill person’s ability to cope with the illness. Most symptoms are invisible, which makes it difficult for others to understand the vast array of debilitating symptoms with which people with the illness must contend.
Other Common Symptoms
Additional symptoms are frequently reported by people with CFIDS (PWCs) such as word-finding difficulties, inability to comprehend/retain what is read, inability to calculate numbers and impairment of speech and/or reasoning. PWCs may also have visual disturbances (blurring, sensitivity to light, eye pain, need for frequent prescription changes); psychological problems (depression, irritability, anxiety, panic attacks, personality changes, mood swings); chills and night sweats; shortness of breath; dizziness and balance problems; sensitivity to heat and/or cold; alcohol intolerance; irregular heartbeat; irritable bowel (abdominal pain, diarrhea, constipation, intestinal gas); low-grade fever or low body temperature; numbness, tingling and/or burning sensations in the face or extremities; dryness of the mouth and eyes (sicca syndrome); gynecological problems including PMS and endometriosis; chest pains; rashes; ringing in the ears (tinnitus); allergies and sensitivities to noise/sound, odors, chemicals and medications; weight changes without changes in diet; light-headedness; mental fogginess; fainting; muscle twitching; and seizures.
Here is a study that has been documented that shows significant results of blood tests drawn on CFS patients which looked at the amounts of protien in the blood of those with CFS. Again, this study mentions doc's names, but it is not copywrite protected and is in "printable form" to be shared.
Protein May Lead to First Test for Chronic Fatigue Syndrome
Feb. 16, 2000 (New York) -- It's been labeled everything from a stress disorder to the "yuppie flu," but a study in the February issue of The American Journal of Medicine suggests that chronic fatigue syndrome (CFS), for which there is no real diagnostic test, causes changes to the immune system that can be seen in the blood of sufferers. The findings could help lead to a test to diagnose CFS and to distinguish patients with CFS from those with other disorders characterized by chronic fatigue, such as fibromyalgia and depression.
CFS surfaced in the mid-1980s when physicians in resorts and towns near Lake Tahoe began seeing a small cluster of people, primarily women, with similar, debilitating flu-like symptoms that included low-grade fever, body aches, short-term memory loss, sleep disturbances, and fatigue that persisted for months.
According to the CDC, chronic fatigue symptoms now affect more than 14 million people between the ages of 17 and 69. CFS is twice as common in women as in men. Diagnosis is often difficult because most laboratory tests show normal or near-normal results and serve only to rule out conditions with similar symptoms, such as thyroid disease. For years, researchers have looked for markers that would point to defects in the immune system that might cause CFS. Such signs could not only further understanding of how CFS affects the body, but also help legitimize the existence of a disease that some in the medical community question.
In the new study, Kenny De Meirleir, MD, PhD, and colleagues from the Vrije University of Brussels, Belgium, looked for the presence of a protein known as 2-5A binding protein in the blood of 57 people who had had CFS for an average of seven years. They compared blood samples from these patients with blood from healthy subjects and patients with fibromyalgia or depression.
The protein was found in 88% of CFS patients, 38% of fibromyalgia patients, 32% of healthy people, and 14% of depressed patients.
According to the researchers, the protein is directly involved in the immune system's ability to fight viruses that can invade the body. Up to 90% of patients with CFS report that their symptoms started after a viral infection. This has led some researchers to suggest that certain viruses may actually cause CFS. But others say a dysfunction of the immune system that causes it to fail to respond, or to over-respond, to invading viruses may lead to CFS symptoms.
De Meirleir and colleagues cannot say, based on the small size of their study, how many people with CFS have the defective immune-system component that leads to the presence of the protein in their blood. Further research also is needed to determine whether the immune dysfunction "is associated with a particular stage of the illness or if it fluctuates over time," they write.
Vital Information:
Chronic fatigue symptoms affect more than 14 million people, characterized by flu-like symptoms including low-grade fever, body aches, short-term memory loss, sleep disturbances, and fatigue that persists for months.
Chronic fatigue syndrome has no diagnostic test, but this could change, as researchers have discovered a protein in the blood that is associated with the condition.
Researchers hope a test can be developed so that CFS can be accurately diagnosed and not confused with other conditions such as fibromyalgia and depression.
"Wings", I would suggest that before your DH sees the doc, that he keep a "diary" of symptoms. Like how long he sleeps on his days off, swollen glands, sore throats, etc. Remember, swollen glands are not just in the neck. They are in the arm pit, the groin area, anywhere there are lymph nodes. The neck, armpit and groin area, are most commonly affected tho.
Okay, hopefully I won't have to "split" the post. I'm not known for my "brief" posts! Unfortunately.
I hope this helps you and your family, my dear. I honestly hope that all this is simply temporary and is being caused by all the stress of your upcoming surgery. You know, typically, men hold it all in, which could certainly lead to exhaustion. Have him learn as much as he can about CFS and what can cause it. I mentioned EBV, some docs will debate that. But it is believed that CFS is classified as a disease of the immune system caused by something viral or bacterial. Again, debated by some docs, as mentioned earlier in the post. Hopefully, this classification will include FM as you noticed, the two are similar. All this debating! Makes ya nuts!
I posted a reply to your thread about Blue about your upcoming surgery, so I hope it isn't deleted. If it is, I think you already know how I feel about you. I would only ask one favor of your family, that possibly your daughter post here on the board that your surgery was sucessful and that you are doing fine. I think once we hear from someone after your surgery, we will all be able to breathe a sigh of relief, and be able to "hang on" until we hear from you
As far as medication goes, for me personally, I asked my GP about a medication called "Provigil". It's a stimulant and it had indeed given me relief from the extreme exhaustion I was feeling. I take 200mg once in the morning and it helps keep me from taking so many naps. I am still tired, sometimes tired enough to still take a nap. However, now, sometimes I won't sleep, but I'll merely "rest". I have been in a lot of pain lately though and sleeping during the day for an hour or so seems to be the only relief I get from the pain. I think that doing this PT is making me more tired and I'm actually experiencing MORE pain. I go three times a week, and after my session on Friday, the whole weekend is spent with me "recovering". My therapist doesn't seem to get this for some odd reason. My pain level actually raises after I get home from therapy, the bursitis in my shoulder is off the charts as far as pain goes, and I have a trigger point in my neck that is so sore and tight, my whole jaw aches. I felt light headed and my legs were numb today during one of my exercises, I had to stop. Thank goodness, I have only the rest of this week and one more week to go!
Have your hubby ask about Provigil or any other kind of stimulant that may help him with his exhaustion.
Hugs,
tk
More:
Although its name trivializes the illness as little more than mere tiredness, chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), brings with it a constellation of debilitating symptoms. Here is the differnce between CFIDS and CFS. The Center for Control considers CFS as an immune disorder, while this is still a topic of debate amoung many docs.
CFIDS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period.
The symptoms of CFIDS are highly variable and fluctuate in severity, complicating treatment and the ill person’s ability to cope with the illness. Most symptoms are invisible, which makes it difficult for others to understand the vast array of debilitating symptoms with which people with the illness must contend.
Other Common Symptoms
Additional symptoms are frequently reported by people with CFIDS (PWCs) such as word-finding difficulties, inability to comprehend/retain what is read, inability to calculate numbers and impairment of speech and/or reasoning. PWCs may also have visual disturbances (blurring, sensitivity to light, eye pain, need for frequent prescription changes); psychological problems (depression, irritability, anxiety, panic attacks, personality changes, mood swings); chills and night sweats; shortness of breath; dizziness and balance problems; sensitivity to heat and/or cold; alcohol intolerance; irregular heartbeat; irritable bowel (abdominal pain, diarrhea, constipation, intestinal gas); low-grade fever or low body temperature; numbness, tingling and/or burning sensations in the face or extremities; dryness of the mouth and eyes (sicca syndrome); gynecological problems including PMS and endometriosis; chest pains; rashes; ringing in the ears (tinnitus); allergies and sensitivities to noise/sound, odors, chemicals and medications; weight changes without changes in diet; light-headedness; mental fogginess; fainting; muscle twitching; and seizures.
Here is a study that has been documented that shows significant results of blood tests drawn on CFS patients which looked at the amounts of protien in the blood of those with CFS. Again, this study mentions doc's names, but it is not copywrite protected and is in "printable form" to be shared.
Protein May Lead to First Test for Chronic Fatigue Syndrome
Feb. 16, 2000 (New York) -- It's been labeled everything from a stress disorder to the "yuppie flu," but a study in the February issue of The American Journal of Medicine suggests that chronic fatigue syndrome (CFS), for which there is no real diagnostic test, causes changes to the immune system that can be seen in the blood of sufferers. The findings could help lead to a test to diagnose CFS and to distinguish patients with CFS from those with other disorders characterized by chronic fatigue, such as fibromyalgia and depression.
CFS surfaced in the mid-1980s when physicians in resorts and towns near Lake Tahoe began seeing a small cluster of people, primarily women, with similar, debilitating flu-like symptoms that included low-grade fever, body aches, short-term memory loss, sleep disturbances, and fatigue that persisted for months.
According to the CDC, chronic fatigue symptoms now affect more than 14 million people between the ages of 17 and 69. CFS is twice as common in women as in men. Diagnosis is often difficult because most laboratory tests show normal or near-normal results and serve only to rule out conditions with similar symptoms, such as thyroid disease. For years, researchers have looked for markers that would point to defects in the immune system that might cause CFS. Such signs could not only further understanding of how CFS affects the body, but also help legitimize the existence of a disease that some in the medical community question.
In the new study, Kenny De Meirleir, MD, PhD, and colleagues from the Vrije University of Brussels, Belgium, looked for the presence of a protein known as 2-5A binding protein in the blood of 57 people who had had CFS for an average of seven years. They compared blood samples from these patients with blood from healthy subjects and patients with fibromyalgia or depression.
The protein was found in 88% of CFS patients, 38% of fibromyalgia patients, 32% of healthy people, and 14% of depressed patients.
According to the researchers, the protein is directly involved in the immune system's ability to fight viruses that can invade the body. Up to 90% of patients with CFS report that their symptoms started after a viral infection. This has led some researchers to suggest that certain viruses may actually cause CFS. But others say a dysfunction of the immune system that causes it to fail to respond, or to over-respond, to invading viruses may lead to CFS symptoms.
De Meirleir and colleagues cannot say, based on the small size of their study, how many people with CFS have the defective immune-system component that leads to the presence of the protein in their blood. Further research also is needed to determine whether the immune dysfunction "is associated with a particular stage of the illness or if it fluctuates over time," they write.
Vital Information:
Chronic fatigue symptoms affect more than 14 million people, characterized by flu-like symptoms including low-grade fever, body aches, short-term memory loss, sleep disturbances, and fatigue that persists for months.
Chronic fatigue syndrome has no diagnostic test, but this could change, as researchers have discovered a protein in the blood that is associated with the condition.
Researchers hope a test can be developed so that CFS can be accurately diagnosed and not confused with other conditions such as fibromyalgia and depression.
"Wings", I would suggest that before your DH sees the doc, that he keep a "diary" of symptoms. Like how long he sleeps on his days off, swollen glands, sore throats, etc. Remember, swollen glands are not just in the neck. They are in the arm pit, the groin area, anywhere there are lymph nodes. The neck, armpit and groin area, are most commonly affected tho.
Okay, hopefully I won't have to "split" the post. I'm not known for my "brief" posts! Unfortunately.
I hope this helps you and your family, my dear. I honestly hope that all this is simply temporary and is being caused by all the stress of your upcoming surgery. You know, typically, men hold it all in, which could certainly lead to exhaustion. Have him learn as much as he can about CFS and what can cause it. I mentioned EBV, some docs will debate that. But it is believed that CFS is classified as a disease of the immune system caused by something viral or bacterial. Again, debated by some docs, as mentioned earlier in the post. Hopefully, this classification will include FM as you noticed, the two are similar. All this debating! Makes ya nuts!
I posted a reply to your thread about Blue about your upcoming surgery, so I hope it isn't deleted. If it is, I think you already know how I feel about you. I would only ask one favor of your family, that possibly your daughter post here on the board that your surgery was sucessful and that you are doing fine. I think once we hear from someone after your surgery, we will all be able to breathe a sigh of relief, and be able to "hang on" until we hear from you
As far as medication goes, for me personally, I asked my GP about a medication called "Provigil". It's a stimulant and it had indeed given me relief from the extreme exhaustion I was feeling. I take 200mg once in the morning and it helps keep me from taking so many naps. I am still tired, sometimes tired enough to still take a nap. However, now, sometimes I won't sleep, but I'll merely "rest". I have been in a lot of pain lately though and sleeping during the day for an hour or so seems to be the only relief I get from the pain. I think that doing this PT is making me more tired and I'm actually experiencing MORE pain. I go three times a week, and after my session on Friday, the whole weekend is spent with me "recovering". My therapist doesn't seem to get this for some odd reason. My pain level actually raises after I get home from therapy, the bursitis in my shoulder is off the charts as far as pain goes, and I have a trigger point in my neck that is so sore and tight, my whole jaw aches. I felt light headed and my legs were numb today during one of my exercises, I had to stop. Thank goodness, I have only the rest of this week and one more week to go!
Have your hubby ask about Provigil or any other kind of stimulant that may help him with his exhaustion.
Hugs,
tk
goldenwings
05-24-2005, 09:06 AM
Hiya tk,
Wow, you need to gt one of those voice controlled typing thingummies that I have.
My husband is going to read your post in full as soon as is possible for him. He has been having these problems for at least 18 months, so time is of the essence now I feel. A consultant now needs to be brought in.
I don't have a daughter or any children, so my husband will post on this topic to let you know how I am doing after Thursday.
I was worrying that something was going even more wrong with me personally, as I have posted on three different topics and can't find any of them. I thought I was having more brain involvement, seriously, as I knew I had replied or started a topic, but not being able to find them fraked me out and so I feel a bit easier now knowig I am ok.
Thanks for all your work on this my friend, my husband appreciates it so much too.
Take good care.
goldenwings :angel:
Wow, you need to gt one of those voice controlled typing thingummies that I have.
My husband is going to read your post in full as soon as is possible for him. He has been having these problems for at least 18 months, so time is of the essence now I feel. A consultant now needs to be brought in.
I don't have a daughter or any children, so my husband will post on this topic to let you know how I am doing after Thursday.
I was worrying that something was going even more wrong with me personally, as I have posted on three different topics and can't find any of them. I thought I was having more brain involvement, seriously, as I knew I had replied or started a topic, but not being able to find them fraked me out and so I feel a bit easier now knowig I am ok.
Thanks for all your work on this my friend, my husband appreciates it so much too.
Take good care.
goldenwings :angel:
bluelakelady
05-24-2005, 11:23 AM
dearest goldenwings,
i will be with you thursday. give your dear hubby all my love and support. tk you are amazing. your love knows no bounds. i am honored to know you.
sorry about the silence. i was diagnosed with rheumatoid arthritis and am at high risk for another stroke. i found out on my birthday. i have the crippling kind. it took a couple of days to try this new reality on for size. i can do this.
my home became a war zone two weeks ago and my brother and i had to have our roommate arrested last thursday. we both got restraining orders. he is gone, will lose his job and his family is willing to take him in. we have to sell our lovely home. it cool tho. bobby and i will create another heavenly space. one of peace.
i cannot believe the level of pain my body is in. for the moment i am unable to find my way out the other side. i will tho. in time.
it's been rough. i have not forgotten any of you. i was simply not going to bring all of you to the center of this as you have your own health issues and must be protected from worry.
please tell dear hubby thank you for coming here to let us know how you are doing after surgery. i will send an imaginary bouquet of flowers to you.
peace and love,
bluelakelady
i will be with you thursday. give your dear hubby all my love and support. tk you are amazing. your love knows no bounds. i am honored to know you.
sorry about the silence. i was diagnosed with rheumatoid arthritis and am at high risk for another stroke. i found out on my birthday. i have the crippling kind. it took a couple of days to try this new reality on for size. i can do this.
my home became a war zone two weeks ago and my brother and i had to have our roommate arrested last thursday. we both got restraining orders. he is gone, will lose his job and his family is willing to take him in. we have to sell our lovely home. it cool tho. bobby and i will create another heavenly space. one of peace.
i cannot believe the level of pain my body is in. for the moment i am unable to find my way out the other side. i will tho. in time.
it's been rough. i have not forgotten any of you. i was simply not going to bring all of you to the center of this as you have your own health issues and must be protected from worry.
please tell dear hubby thank you for coming here to let us know how you are doing after surgery. i will send an imaginary bouquet of flowers to you.
peace and love,
bluelakelady
goldenwings
05-24-2005, 12:38 PM
My Dearest Blue,
I can breath easily now, I have been so,so worried about you.
Oh my friend, what a time of it you have had. My pain and worry at this time is made all the more bearable because I have you as such a true and loving friend. I have grown so much especially with the support of you and tk.
My goodness, one thing is bad enough, but for your to go through all of this and I did not know saddens me. I have worried where you have been, but never imagined this.
My darling Blue, thank you for your words to me now, even when it is me I feel should be offering words to you of tender support for your sore body, and for your stressed mind.
Hopefully, the banishment of the person who caused the upset will make things brighter for you and your wonderful brother. Is it your brother? The good memories of the time in your home can and will I know be carried in your head and heart, and will be transplanted wherever you go.
I am humbled that you have taken time to care for me and my husband at this time. I will be back, my love and friendship for all here will carry on as though I am not away.
Thank you for being you.
goldenwings :angel:
I can breath easily now, I have been so,so worried about you.
Oh my friend, what a time of it you have had. My pain and worry at this time is made all the more bearable because I have you as such a true and loving friend. I have grown so much especially with the support of you and tk.
My goodness, one thing is bad enough, but for your to go through all of this and I did not know saddens me. I have worried where you have been, but never imagined this.
My darling Blue, thank you for your words to me now, even when it is me I feel should be offering words to you of tender support for your sore body, and for your stressed mind.
Hopefully, the banishment of the person who caused the upset will make things brighter for you and your wonderful brother. Is it your brother? The good memories of the time in your home can and will I know be carried in your head and heart, and will be transplanted wherever you go.
I am humbled that you have taken time to care for me and my husband at this time. I will be back, my love and friendship for all here will carry on as though I am not away.
Thank you for being you.
goldenwings :angel:
tkgoodspirit
05-24-2005, 02:12 PM
dearest goldenwings,
i will be with you thursday. give your dear hubby all my love and support. tk you are amazing. your love knows no bounds. i am honored to know you.
sorry about the silence. i was diagnosed with rheumatoid arthritis and am at high risk for another stroke. i found out on my birthday. i have the crippling kind. it took a couple of days to try this new reality on for size. i can do this.
my home became a war zone two weeks ago and my brother and i had to have our roommate arrested last thursday. we both got restraining orders. he is gone, will lose his job and his family is willing to take him in. we have to sell our lovely home. it cool tho. bobby and i will create another heavenly space. one of peace.
i cannot believe the level of pain my body is in. for the moment i am unable to find my way out the other side. i will tho. in time.
it's been rough. i have not forgotten any of you. i was simply not going to bring all of you to the center of this as you have your own health issues and must be protected from worry.
please tell dear hubby thank you for coming here to let us know how you are doing after surgery. i will send an imaginary bouquet of flowers to you.
peace and love,
bluelakelady
THANK GOD! I was SO worried about you Blue! We posted "shout outs" to you only to have them deleted. Off topic I guess, but we were genuinely worried, and we KNEW something was up!
I am so sorry about your dx. I, for one of many here, certainly know what it's like to deal with something "new" and wonder how you are going to introduce this new "family member" into your life. An unwelcome family member to boot! Kinda like those relatives that come to stay and never leave!
Okay, now I'm going to scold you! SHAME ON YOU! Shame on you for thinking that you couldn't come here and "burden" us. After all the inspiring words of support you have given us? That is not a fair trade off, my dear friend. We WANT to hear your hurts, your "burdens", they are ours too, that's why we are all here! You are robbing us of the love and caring support we WANT to give you. Okay, I'm done now! Smooches!
We LOVE you Blue, don't ever hold out on us when you need words of support. You give them freely to us, now let us do the same for you. Besides, helping someone else, or offering support to others is how a lot of us here "forget" our own worries. K?
I love you my dear sweet friend, and I am now so relieved to see your name on the boards again. I just KNEW something was up! I KNEW IT! It's funny how you get to "know" someone even though you've never met physically.
Hugs to you my dear,
tk
i will be with you thursday. give your dear hubby all my love and support. tk you are amazing. your love knows no bounds. i am honored to know you.
sorry about the silence. i was diagnosed with rheumatoid arthritis and am at high risk for another stroke. i found out on my birthday. i have the crippling kind. it took a couple of days to try this new reality on for size. i can do this.
my home became a war zone two weeks ago and my brother and i had to have our roommate arrested last thursday. we both got restraining orders. he is gone, will lose his job and his family is willing to take him in. we have to sell our lovely home. it cool tho. bobby and i will create another heavenly space. one of peace.
i cannot believe the level of pain my body is in. for the moment i am unable to find my way out the other side. i will tho. in time.
it's been rough. i have not forgotten any of you. i was simply not going to bring all of you to the center of this as you have your own health issues and must be protected from worry.
please tell dear hubby thank you for coming here to let us know how you are doing after surgery. i will send an imaginary bouquet of flowers to you.
peace and love,
bluelakelady
THANK GOD! I was SO worried about you Blue! We posted "shout outs" to you only to have them deleted. Off topic I guess, but we were genuinely worried, and we KNEW something was up!
I am so sorry about your dx. I, for one of many here, certainly know what it's like to deal with something "new" and wonder how you are going to introduce this new "family member" into your life. An unwelcome family member to boot! Kinda like those relatives that come to stay and never leave!
Okay, now I'm going to scold you! SHAME ON YOU! Shame on you for thinking that you couldn't come here and "burden" us. After all the inspiring words of support you have given us? That is not a fair trade off, my dear friend. We WANT to hear your hurts, your "burdens", they are ours too, that's why we are all here! You are robbing us of the love and caring support we WANT to give you. Okay, I'm done now! Smooches!
We LOVE you Blue, don't ever hold out on us when you need words of support. You give them freely to us, now let us do the same for you. Besides, helping someone else, or offering support to others is how a lot of us here "forget" our own worries. K?
I love you my dear sweet friend, and I am now so relieved to see your name on the boards again. I just KNEW something was up! I KNEW IT! It's funny how you get to "know" someone even though you've never met physically.
Hugs to you my dear,
tk
tkgoodspirit
05-24-2005, 02:36 PM
Hey "Wings"!
I'm sorry about the "daughter" mix up. I hope I didn't stir any "bad" emotions there. I KNEW you didn't have children, I don't know why I posted that. Maybe I was thinking husband, but daughter popped out of my mind! Don't ask me how! :) My brain and your brain together, could make one nicely put together mind, don't you agree? :)
I love ya woman! And I hope that your hubby will find relief soon. It may take awhile, and it can be frustrating. Hopefully your docs across "the pond" are more up to date dealing with CFS. I'm sure the both of you are absolutely beat with all the stress you've gone through the past months.
Well, my dear, hopefully your stressing days will be over soon. The doc will get all the bad "cooties" out of your lovely body and you can live a peaceful life again, free of stress and worries, doing what you do best, being YOU.
Now, don't be "waggling" those new brows around at too many folks while your in hospital. :) Of course, it won't hurt to put those babies to use once you are recovering by waggling them at a handsome Orderly. ;) Gotta use what ya got! LOL And at OUR age, we have to use it quickly. :)
I'll be with you, we will ALL be with you. But I'm going to have a special "Wings" day, just to take time to think of you at the very time you are having surgery. I will imagine myself in the OR with you, then I'll go out to the waiting area and embrace your hubby as he waits for you to come out of your surgery. I know he will be anxious to see your face, as you will be his. And THAT is the moment I want to hold in my mind.
Love you,
tk
What time, (your time) on Thursday is your surgery? I think you are 6 or 7 hours ahead of me. I have friends in Holland who I used to chat live with and they were six hours ahead, and I remember figuring out the time difference while chatting. I believe, you are 6 hours ahead of NY, and they are one hour ahead of me here in Alabama. We are on Central Standard Time. It's funny, cuz, only 100 miles down the Interstate is Eastern Time. We just squeezed in the Central Time Zone! It is 12:30 p.m. now, so it is probably 6:30 or 7:30 p.m. there, you are most likely eating dinner, or getting ready too. The sun hasn't set yet, tho it isn't very light out, the evening birds are chirping their songs, the temperature is cooling and the outside air is crisp. Your day is winding down, as mine is getting started. You are getting ready to settle in for the night and face tomorrow. Your bed is big and fluffy with it's feather topper and soft pillows, your dresser has your "personal" things on it all placed where you like them to be. This is your room, your place where you sleep away the days worries and pain, your bedroom, where no "boogie men" are allowed, your special place with your special husband.
"Wings", I hope to be your "wings" when you are home from hospital and starting to fly again, I'll be there to help you out of the nest. :)
Love.
I'm sorry about the "daughter" mix up. I hope I didn't stir any "bad" emotions there. I KNEW you didn't have children, I don't know why I posted that. Maybe I was thinking husband, but daughter popped out of my mind! Don't ask me how! :) My brain and your brain together, could make one nicely put together mind, don't you agree? :)
I love ya woman! And I hope that your hubby will find relief soon. It may take awhile, and it can be frustrating. Hopefully your docs across "the pond" are more up to date dealing with CFS. I'm sure the both of you are absolutely beat with all the stress you've gone through the past months.
Well, my dear, hopefully your stressing days will be over soon. The doc will get all the bad "cooties" out of your lovely body and you can live a peaceful life again, free of stress and worries, doing what you do best, being YOU.
Now, don't be "waggling" those new brows around at too many folks while your in hospital. :) Of course, it won't hurt to put those babies to use once you are recovering by waggling them at a handsome Orderly. ;) Gotta use what ya got! LOL And at OUR age, we have to use it quickly. :)
I'll be with you, we will ALL be with you. But I'm going to have a special "Wings" day, just to take time to think of you at the very time you are having surgery. I will imagine myself in the OR with you, then I'll go out to the waiting area and embrace your hubby as he waits for you to come out of your surgery. I know he will be anxious to see your face, as you will be his. And THAT is the moment I want to hold in my mind.
Love you,
tk
What time, (your time) on Thursday is your surgery? I think you are 6 or 7 hours ahead of me. I have friends in Holland who I used to chat live with and they were six hours ahead, and I remember figuring out the time difference while chatting. I believe, you are 6 hours ahead of NY, and they are one hour ahead of me here in Alabama. We are on Central Standard Time. It's funny, cuz, only 100 miles down the Interstate is Eastern Time. We just squeezed in the Central Time Zone! It is 12:30 p.m. now, so it is probably 6:30 or 7:30 p.m. there, you are most likely eating dinner, or getting ready too. The sun hasn't set yet, tho it isn't very light out, the evening birds are chirping their songs, the temperature is cooling and the outside air is crisp. Your day is winding down, as mine is getting started. You are getting ready to settle in for the night and face tomorrow. Your bed is big and fluffy with it's feather topper and soft pillows, your dresser has your "personal" things on it all placed where you like them to be. This is your room, your place where you sleep away the days worries and pain, your bedroom, where no "boogie men" are allowed, your special place with your special husband.
"Wings", I hope to be your "wings" when you are home from hospital and starting to fly again, I'll be there to help you out of the nest. :)
Love.
bluelakelady
05-24-2005, 03:00 PM
dearest friends,
never for one minute was i without you. i knew you were there. i felt your love, concern and support. you had a right to know. i simply did not have it in me to even come here. all my energy had to go toward protecting myself and adapting to these new aspects of my body. i overdosed on input so to speak.
i promise, and i do not make promises lightly, that i will not be naughty again. i will share with you. fear is a new emotion for me. i am still very uncomfortable with it inside me. it causes pain that takes my breath away. i have helped so many battered women out of their reality. i never thought i would see the same haunted look in my own eyes. yet it is there.
my joy, my love of life and every created thing cannot be touched.
yea, golden when is your surgery? i remember you told me i am 8 hours behind you. i will set my alarm clock to wake me when it is time so i can be with you and dear hubby.
many of you here are my proof that true love does happen. it is time for me to be single, like forever! giggle.
all my love and peace,
bluelakelady
ps bobby and i adopted each other as brother and sister 15 years ago. he is non agressive like i am and very responsible. he was willing to be hit to protect me. that's a brother!!!!
never for one minute was i without you. i knew you were there. i felt your love, concern and support. you had a right to know. i simply did not have it in me to even come here. all my energy had to go toward protecting myself and adapting to these new aspects of my body. i overdosed on input so to speak.
i promise, and i do not make promises lightly, that i will not be naughty again. i will share with you. fear is a new emotion for me. i am still very uncomfortable with it inside me. it causes pain that takes my breath away. i have helped so many battered women out of their reality. i never thought i would see the same haunted look in my own eyes. yet it is there.
my joy, my love of life and every created thing cannot be touched.
yea, golden when is your surgery? i remember you told me i am 8 hours behind you. i will set my alarm clock to wake me when it is time so i can be with you and dear hubby.
many of you here are my proof that true love does happen. it is time for me to be single, like forever! giggle.
all my love and peace,
bluelakelady
ps bobby and i adopted each other as brother and sister 15 years ago. he is non agressive like i am and very responsible. he was willing to be hit to protect me. that's a brother!!!!
goldenwings
05-24-2005, 08:47 PM
Hello again,
I once again feel as snug as a bug in a rug, my buddies are back yay !!
My surgery time has just been given as a.m. One hospital on my island so I'm maybe on an early call, I sure hope so. I have to be in the unit at 7.30 so fingers crossed. I can't have a cuppa before then, so if I have to wait for hours I will go into withdrawal he he. That is the first thing I will want when I wake up - after my lovely husband's hug of course.
Apparently tk, I am 6 hours ahead of you, so my 7.30 roll call is your 2.30 still snuggle up in bed time he he.
Oh my friends your words fill me with so much warmth. Thank you for the support of my husband too.
goldenwings :angel:
I once again feel as snug as a bug in a rug, my buddies are back yay !!
My surgery time has just been given as a.m. One hospital on my island so I'm maybe on an early call, I sure hope so. I have to be in the unit at 7.30 so fingers crossed. I can't have a cuppa before then, so if I have to wait for hours I will go into withdrawal he he. That is the first thing I will want when I wake up - after my lovely husband's hug of course.
Apparently tk, I am 6 hours ahead of you, so my 7.30 roll call is your 2.30 still snuggle up in bed time he he.
Oh my friends your words fill me with so much warmth. Thank you for the support of my husband too.
goldenwings :angel:
tkgoodspirit
05-25-2005, 12:30 AM
Hey "wings"!
If you read back on some of my previous posts, you'll notice the "early" time, it would show your time of course, but I commonly stay up 'til 2:00 a.m. or later. Course, I sleep till Noon the next day. I used to be an advid night owl years ago, until I started working early mornings, now I guess it's all turned round on me again. I've worked so many night jobs, I guess my body is used to it. Also it seems like all my pain meds "kick in" about midnight, thanks very much! LOL It's like all of a sudden, at the stroke of midnight, I feel like vacuuming the carpet! Good God, how insane can one person's life become? :)
Well, my dear, I love the word "cuppa"! I haven't heard that since I worked in West Berlin (when it WAS West Berlin) at the Army and Airforce Exchange Service shopping center. I worked with a few British women, so I learned some of the "lingo". The first time a woman came in (the British Army was stationed there also) and asked for a "trolley", I didn't know what the heck she was talking about, until she saw a shopping cart and excited replied "Oh THERE'S one!". So, now I know words like "telly", "lift", "lew"(sp?), "trolley" and "cuppa"! :) I also worked with an Irish woman, red hair and all! She was a hoot! Beautiful woman, with the vocabulary of an old sailor! We also had an older, but absolutely beautiful, French woman working with us. She was a joy to listen to. Yes, the French Army was there too! We were ALL there. I'd like to see what Berlin looks like now without all the allies in their city, and just ONE city, not separated by a big wall and separated by poverty and politics.
I was very priviledged to meet people from all those countries tho, and I worked at the Jewelry and Make-Up counter. I was more of a "jewelry" girl than makeup. I couldn't put makeup on a monkey, actually a monkey could probably put make up on better!
I always cherish my memories of my little "international" group of co-workers, and I hold a special place in my heart for the beautiful women from "across the pond". That means you, my dear "chum".
Love you,
tk
If you read back on some of my previous posts, you'll notice the "early" time, it would show your time of course, but I commonly stay up 'til 2:00 a.m. or later. Course, I sleep till Noon the next day. I used to be an advid night owl years ago, until I started working early mornings, now I guess it's all turned round on me again. I've worked so many night jobs, I guess my body is used to it. Also it seems like all my pain meds "kick in" about midnight, thanks very much! LOL It's like all of a sudden, at the stroke of midnight, I feel like vacuuming the carpet! Good God, how insane can one person's life become? :)
Well, my dear, I love the word "cuppa"! I haven't heard that since I worked in West Berlin (when it WAS West Berlin) at the Army and Airforce Exchange Service shopping center. I worked with a few British women, so I learned some of the "lingo". The first time a woman came in (the British Army was stationed there also) and asked for a "trolley", I didn't know what the heck she was talking about, until she saw a shopping cart and excited replied "Oh THERE'S one!". So, now I know words like "telly", "lift", "lew"(sp?), "trolley" and "cuppa"! :) I also worked with an Irish woman, red hair and all! She was a hoot! Beautiful woman, with the vocabulary of an old sailor! We also had an older, but absolutely beautiful, French woman working with us. She was a joy to listen to. Yes, the French Army was there too! We were ALL there. I'd like to see what Berlin looks like now without all the allies in their city, and just ONE city, not separated by a big wall and separated by poverty and politics.
I was very priviledged to meet people from all those countries tho, and I worked at the Jewelry and Make-Up counter. I was more of a "jewelry" girl than makeup. I couldn't put makeup on a monkey, actually a monkey could probably put make up on better!
I always cherish my memories of my little "international" group of co-workers, and I hold a special place in my heart for the beautiful women from "across the pond". That means you, my dear "chum".
Love you,
tk
goldenwings
05-25-2005, 06:16 PM
Hello tk,
Just to thank you, Blue and all who have wished me well for tomorrow. I must go to bed soon, it is 10.15 pm but I too don't normally retire until 2/2.30 am so it is going to be difficult.
Thank you for your support and love, and I promise I am coming back.
goldenwings :angel:
Just to thank you, Blue and all who have wished me well for tomorrow. I must go to bed soon, it is 10.15 pm but I too don't normally retire until 2/2.30 am so it is going to be difficult.
Thank you for your support and love, and I promise I am coming back.
goldenwings :angel:
tkgoodspirit
05-25-2005, 09:17 PM
Hello tk,
Just to thank you, Blue and all who have wished me well for tomorrow. I must go to bed soon, it is 10.15 pm but I too don't normally retire until 2/2.30 am so it is going to be difficult.
Thank you for your support and love, and I promise I am coming back.
goldenwings :angel:
"Wings"!
We ALL will be waiting to hear from you when you get home.
Love,
tk
Just to thank you, Blue and all who have wished me well for tomorrow. I must go to bed soon, it is 10.15 pm but I too don't normally retire until 2/2.30 am so it is going to be difficult.
Thank you for your support and love, and I promise I am coming back.
goldenwings :angel:
"Wings"!
We ALL will be waiting to hear from you when you get home.
Love,
tk
bluelakelady
05-26-2005, 12:33 AM
sweet dreams and gentle healing my friend. we will await word from dear hubby. we will all dream of your healing as we sleep tonight.
chat with you soon old girl.
love,
bluelakelady
chat with you soon old girl.
love,
bluelakelady
bluelakelady
05-26-2005, 08:49 PM
dear goldenwings hubby,
i know how tired you are. it's a long day in hospitals. please when you have a moment let us all know how our dear sister is doing.
you are a good man. i am so pleased you are my friends husband.
love,
bluelakelady
i know how tired you are. it's a long day in hospitals. please when you have a moment let us all know how our dear sister is doing.
you are a good man. i am so pleased you are my friends husband.
love,
bluelakelady
goldenwings
05-29-2005, 02:38 PM
To Blue, tk and all of my wife's friends here.
Just to let you know the latest on Goldenwings. She is home now. The operation went well, just a few complications. The organs were sticking together (which unfortunately for her does happen) and there was inflammation inside of her body, but the surgeon was very good. He managed to "pare" everything away and therefore did not resort to more invasive surgery.
She was in a bad flare afterwards, which unfortunately is still with her and then had reactions to different drugs, but all in all she is coming along fine. She came with yet more pills and potions, one being morphine which is making her rather drowsy, but I think she appreciates the sleep she is getting.
We will have the results of the biopsies hopefully within two weeks time, only one pathologist here on the island at the moment so things are not moving as quickly as they would normally do.
Thank you for all of your support of her it means so much to me. I so appreciate all of your concern for me too.
GW's old man.
Just to let you know the latest on Goldenwings. She is home now. The operation went well, just a few complications. The organs were sticking together (which unfortunately for her does happen) and there was inflammation inside of her body, but the surgeon was very good. He managed to "pare" everything away and therefore did not resort to more invasive surgery.
She was in a bad flare afterwards, which unfortunately is still with her and then had reactions to different drugs, but all in all she is coming along fine. She came with yet more pills and potions, one being morphine which is making her rather drowsy, but I think she appreciates the sleep she is getting.
We will have the results of the biopsies hopefully within two weeks time, only one pathologist here on the island at the moment so things are not moving as quickly as they would normally do.
Thank you for all of your support of her it means so much to me. I so appreciate all of your concern for me too.
GW's old man.
tkgoodspirit
05-29-2005, 03:15 PM
YIPPEEEEE!
Hey GW's "old man"! I am SO happy you posted for our dear sweet sister! I know Blue will filp out when she sees this post!
I rather expected her to have a bit of a battle given her Lupus and the FM. You know Mr. Wings, that there is a special "list" of precautions that surgery patients with Fibromyalgia should be aware of when they are having an operation. They will need more pain meds than usual, and they will flare up after the surgery, and it will take longer for her to heal. One of the many "pleasures" of having Fibro, and I know her Lupus made her organs a bit of mess to deal with. Bless her heart. You too, goes without saying, but I'll say it anyway. :)
The morphine is good. It will help her feel better, and care less about her pain. It shouldn't become a problem for her as she won't be on it long enough to worry about withdrawl. I believe it will be the morphine that helps her most as far as her pain goes. I'm sure the docs told you both to watch out for infections. Keep her mummified! :)
Now, "old man" you be sure to take care of yourself also. I'm sure she will be sleeping a lot, so you should sleep as well. She told me about your chronic exhaustion, and you definately need to sleep when you can and as much as you can, your body sleeps for a reason. So, take care of yourself. Are you off work for awhile now? I know your worrying will be hard to overcome and that's normal, but becareful not to make yourself sick(er). Stress is such an awful "bugger".
THANK YOU SO MUCH for posting. She really didn't stay in hospital too long did she? I thought she'd be in there longer, but it's better she be home around her own stuff, and around you all the time.
Take care, give her a big squeeze for us (not too hard! :) ) and a big wet smooch! And give yourself a big hug, and smooch from us. AND when you two hug each other, just imagine that we are there in a big group hug with you! Tell "wings" we are waiting for her to get better so we can chit chat again. Meanwhile we will be thinking of you too "old man", and post when you can about her progress and how you are doing as well. We love you.
Love to you and our sweet sister. You both are very dear and special to us!
tk
Hey GW's "old man"! I am SO happy you posted for our dear sweet sister! I know Blue will filp out when she sees this post!
I rather expected her to have a bit of a battle given her Lupus and the FM. You know Mr. Wings, that there is a special "list" of precautions that surgery patients with Fibromyalgia should be aware of when they are having an operation. They will need more pain meds than usual, and they will flare up after the surgery, and it will take longer for her to heal. One of the many "pleasures" of having Fibro, and I know her Lupus made her organs a bit of mess to deal with. Bless her heart. You too, goes without saying, but I'll say it anyway. :)
The morphine is good. It will help her feel better, and care less about her pain. It shouldn't become a problem for her as she won't be on it long enough to worry about withdrawl. I believe it will be the morphine that helps her most as far as her pain goes. I'm sure the docs told you both to watch out for infections. Keep her mummified! :)
Now, "old man" you be sure to take care of yourself also. I'm sure she will be sleeping a lot, so you should sleep as well. She told me about your chronic exhaustion, and you definately need to sleep when you can and as much as you can, your body sleeps for a reason. So, take care of yourself. Are you off work for awhile now? I know your worrying will be hard to overcome and that's normal, but becareful not to make yourself sick(er). Stress is such an awful "bugger".
THANK YOU SO MUCH for posting. She really didn't stay in hospital too long did she? I thought she'd be in there longer, but it's better she be home around her own stuff, and around you all the time.
Take care, give her a big squeeze for us (not too hard! :) ) and a big wet smooch! And give yourself a big hug, and smooch from us. AND when you two hug each other, just imagine that we are there in a big group hug with you! Tell "wings" we are waiting for her to get better so we can chit chat again. Meanwhile we will be thinking of you too "old man", and post when you can about her progress and how you are doing as well. We love you.
Love to you and our sweet sister. You both are very dear and special to us!
tk
bluelakelady
05-30-2005, 01:32 AM
HOORAY!!!
thank you so much old man. delighted to hear the old girl is home. there is nothing like home, love and a good cuppa to restore the spirit and heal the body.
like tk says, get your rest too. being a full time nurse will kick your arse otherwise.
tell her she is traveling while on the morphine. the other night i heard a voice and it woke me. she said, so there you are blue. clear as could be. i said, hey goldengirlfriend, you made it! that was all. i slept the rest of the night as i have not slept since the 26th.
you, old man, are a rare and precious jewel. a man who loves for life. would that i could bring you both to my warm california sun to heal. i would wrap you both in blankets down on the lake. serve you your cuppas and make you some hot spicy foods to stimulate your immune systems.
i love you girlfriend. glad you're still hangin out on planet earth with the rest of us!
waste no time worrying about the biopsy's. i have a feeling.
tell the good doctor that friends say thank you for performing his artful magic on our friend.
thank you again for taking time to update us. i guess everyone here has been checking every day hoping for word. i know i have.
peace, healing, love, patience, acceptance,
bluelakelady
i love you golden, welcome home sister!!!!!!!!!!! i will do a cartwheel for you tomorrow morning. one of my famous ones. giggle.
thank you so much old man. delighted to hear the old girl is home. there is nothing like home, love and a good cuppa to restore the spirit and heal the body.
like tk says, get your rest too. being a full time nurse will kick your arse otherwise.
tell her she is traveling while on the morphine. the other night i heard a voice and it woke me. she said, so there you are blue. clear as could be. i said, hey goldengirlfriend, you made it! that was all. i slept the rest of the night as i have not slept since the 26th.
you, old man, are a rare and precious jewel. a man who loves for life. would that i could bring you both to my warm california sun to heal. i would wrap you both in blankets down on the lake. serve you your cuppas and make you some hot spicy foods to stimulate your immune systems.
i love you girlfriend. glad you're still hangin out on planet earth with the rest of us!
waste no time worrying about the biopsy's. i have a feeling.
tell the good doctor that friends say thank you for performing his artful magic on our friend.
thank you again for taking time to update us. i guess everyone here has been checking every day hoping for word. i know i have.
peace, healing, love, patience, acceptance,
bluelakelady
i love you golden, welcome home sister!!!!!!!!!!! i will do a cartwheel for you tomorrow morning. one of my famous ones. giggle.
bluelakelady
06-02-2005, 10:10 AM
dearest goldenwings,
i know you are healing and cannot come here. i wanted to bump this up in hopes your dear hubby will check in with us again. we love you. we miss you. we simply cannot wait to hear your lovely voice again. how i miss you, my friend. i think of you many times a day. sending healing energy to you far away across the continent and ocean.
in my mind i have painted your spirit. you are a swirl of colors. soothing gentle colors with bright centers of pure color. i love you girlfriend.
peace,
bluelakelady
i know you are healing and cannot come here. i wanted to bump this up in hopes your dear hubby will check in with us again. we love you. we miss you. we simply cannot wait to hear your lovely voice again. how i miss you, my friend. i think of you many times a day. sending healing energy to you far away across the continent and ocean.
in my mind i have painted your spirit. you are a swirl of colors. soothing gentle colors with bright centers of pure color. i love you girlfriend.
peace,
bluelakelady
goldenwings
06-02-2005, 10:24 AM
Hello again Blue,
Thanks for your uplifting message. Goldenwings is, as she describes it, "one giant bruise" today. We think perhaps all of the heavy doses of morphone are wearing off and the 4 x daily doses are just about masking the pain.
She is inactive which is driving her doo lally. Falling asleep frequently is making her feel guilty, but it is doing her good. She is surviving well on my cooking though, so things are going ok in that way ha ha !! I have 4 more days at home, so hopefully things will be more improved by the time I go back to work.
She really misses coming here and misses all of you tremendously. Once again thank you for you love and support of golden and of me.
Speak to you soon.
GW's old man :angel:
Thanks for your uplifting message. Goldenwings is, as she describes it, "one giant bruise" today. We think perhaps all of the heavy doses of morphone are wearing off and the 4 x daily doses are just about masking the pain.
She is inactive which is driving her doo lally. Falling asleep frequently is making her feel guilty, but it is doing her good. She is surviving well on my cooking though, so things are going ok in that way ha ha !! I have 4 more days at home, so hopefully things will be more improved by the time I go back to work.
She really misses coming here and misses all of you tremendously. Once again thank you for you love and support of golden and of me.
Speak to you soon.
GW's old man :angel:
bluelakelady
06-02-2005, 11:02 AM
hey old man! so how many days a week do you fix bangers and mashed? giggle. i am so proud of you dear hubby. you are a jewel.
please give my dear friend a soft gentle hug for me. and tell her to be patient with her body. also tell her guilt is a waste of her energy. it is what it is. energy must be focused on healing only. lecture from nurse ratchet, giggle.
thank you so much for posting. how are you feeling? i bet you are beat. nursing is hard work under the best of circumstances. are you resting when your dear wife is sleeping?
i shout across the miles that stand between us, "I LOVE YOU GOLDENWINGS!"
peace,
bluelakelady
please give my dear friend a soft gentle hug for me. and tell her to be patient with her body. also tell her guilt is a waste of her energy. it is what it is. energy must be focused on healing only. lecture from nurse ratchet, giggle.
thank you so much for posting. how are you feeling? i bet you are beat. nursing is hard work under the best of circumstances. are you resting when your dear wife is sleeping?
i shout across the miles that stand between us, "I LOVE YOU GOLDENWINGS!"
peace,
bluelakelady
tkgoodspirit
06-03-2005, 04:29 AM
Hiya GW's Old man!
Thank you so much for faithfully posting to keep us updated on "the old gal", as well as yourself.
Well, you know the reason she's saying your cooking is "okay" don't you? She wouldn't want you to learn to cook too well, you'd show her up and she'd just have to better you! :)
"One big bruise" eh? Well, sounds like she's been a bit "revived". That's good. She's actually going to have to feel pain so that the docs can tell if she's healing properly. That's the bad thing about us who are in pain all the time, our medication helps, until we need it to "stop helping" for awhile so we know that we are healing right.
And tell her not to feel guilty about sleeping. Her body needs to sleep. How else is she going to get back to cooking? :) We want her to sleep, we don't need her doing any fancy stuff just yet.
I'm glad you are there with her when she does sleep, that is a comfort to me, and to her as well I'm sure. You are a very special man, and have been through a lot. You are special, and you have a very special "gal" there. I wish I were there to hold her in my arms while she slept, so I could see her shining eyes when she woke to the world. I can just picture the two of you in my mind, smiling and in love, happy with a life full of joy, yet also with it's troubles, but the two of you together facing any trouble, is a good thing.
All of us here are so lucky to have met "golden" and now YOU! See "old man" you were part of the family before you even knew it! :)
Give her a hug and a smooch from TK and tell her to be sure that her chin is pointing upward while she is sleeping! She should understand what you mean! If not, it'll give her something to think about. ;)
Take care "old man".
Hugs,
tk
Thank you so much for faithfully posting to keep us updated on "the old gal", as well as yourself.
Well, you know the reason she's saying your cooking is "okay" don't you? She wouldn't want you to learn to cook too well, you'd show her up and she'd just have to better you! :)
"One big bruise" eh? Well, sounds like she's been a bit "revived". That's good. She's actually going to have to feel pain so that the docs can tell if she's healing properly. That's the bad thing about us who are in pain all the time, our medication helps, until we need it to "stop helping" for awhile so we know that we are healing right.
And tell her not to feel guilty about sleeping. Her body needs to sleep. How else is she going to get back to cooking? :) We want her to sleep, we don't need her doing any fancy stuff just yet.
I'm glad you are there with her when she does sleep, that is a comfort to me, and to her as well I'm sure. You are a very special man, and have been through a lot. You are special, and you have a very special "gal" there. I wish I were there to hold her in my arms while she slept, so I could see her shining eyes when she woke to the world. I can just picture the two of you in my mind, smiling and in love, happy with a life full of joy, yet also with it's troubles, but the two of you together facing any trouble, is a good thing.
All of us here are so lucky to have met "golden" and now YOU! See "old man" you were part of the family before you even knew it! :)
Give her a hug and a smooch from TK and tell her to be sure that her chin is pointing upward while she is sleeping! She should understand what you mean! If not, it'll give her something to think about. ;)
Take care "old man".
Hugs,
tk
bluelakelady
06-05-2005, 02:38 PM
hi dear hubby and goldenwings,
oh how i miss you my dear. i know you are there. sometimes i feel as if you are reading. please dear hubby may we have an update on our dear old girl? how's the cooking going? has it been long enough yet for you to have the biopsy results?
each night as i go to sleep i meditate on healing your body as i drift off. i know your morning is coming as i nod off. many blessings of the sunrise. a warm breeze to soothe your healing body. and love, mountains of love.
peace,
bluelakelady
ps i know this is the only thread you come to dh. so bump it up again kids!
oh how i miss you my dear. i know you are there. sometimes i feel as if you are reading. please dear hubby may we have an update on our dear old girl? how's the cooking going? has it been long enough yet for you to have the biopsy results?
each night as i go to sleep i meditate on healing your body as i drift off. i know your morning is coming as i nod off. many blessings of the sunrise. a warm breeze to soothe your healing body. and love, mountains of love.
peace,
bluelakelady
ps i know this is the only thread you come to dh. so bump it up again kids!
goldenwings
06-11-2005, 08:48 AM
Hello there,
Sorry I have not been able to update before. Golden was taken back into hospital 3 days after I last posted. She had a PE in her left lung and also a chest infection. The treatment for the PE was successful in that it has dispersed. She still has a little of the chest infection, but it is improving. As usual what caused all of this is not obvious, but they say it wasn't the surgery. GW said she wouldn't cause a fuss but they still insisted it wasn't. As you know GW has so many things going on with her body that it could have been caused by anything. The important thing is though things are on the up. She is now home "again" and sends you all her love. As do I.
Best regards,
GWs' old man. :yawn: (Sorry this is how I feel at the moment ha ha)>
Sorry I have not been able to update before. Golden was taken back into hospital 3 days after I last posted. She had a PE in her left lung and also a chest infection. The treatment for the PE was successful in that it has dispersed. She still has a little of the chest infection, but it is improving. As usual what caused all of this is not obvious, but they say it wasn't the surgery. GW said she wouldn't cause a fuss but they still insisted it wasn't. As you know GW has so many things going on with her body that it could have been caused by anything. The important thing is though things are on the up. She is now home "again" and sends you all her love. As do I.
Best regards,
GWs' old man. :yawn: (Sorry this is how I feel at the moment ha ha)>
bluelakelady
06-11-2005, 11:13 AM
oh sweet man, i bet you are so tired. poor baby. if i had wings i would fly to you both and be your servant. thank you so much for posting. i burst into tears when i saw this thread and goldenwings signature. i knew something was not going as planned, like it ever does? giggle. so glad you are both home again. this lady on the lake loves you both too! ever so much!
please tell golden to hang tough as only she can. we have a saying here in the states, s**t happens. trying to see the why of it is a waste of goldens precious energy.
i will continue to send energy for healing. i will send more every day. tell golden it is windy today, and sunny. warm under mother suns rays, and cool in under the shade of her trees. the lake is lovely. i will take you on my kayak today. close your eyes dh and golden, here we go.
much love my island friends,
bluelakelady
one thousand hugs of pure love and healing to you both.
please tell golden to hang tough as only she can. we have a saying here in the states, s**t happens. trying to see the why of it is a waste of goldens precious energy.
i will continue to send energy for healing. i will send more every day. tell golden it is windy today, and sunny. warm under mother suns rays, and cool in under the shade of her trees. the lake is lovely. i will take you on my kayak today. close your eyes dh and golden, here we go.
much love my island friends,
bluelakelady
one thousand hugs of pure love and healing to you both.
Glojer
06-11-2005, 06:21 PM
Thank you for the update on goldenwings. I am sending all good wishes for healing for both of you. You are so fortunated to have each other!
bluelakelady
06-13-2005, 07:45 PM
love ya goldenwings. miss you. it is monday. are you home alone now? so, now that dh is out of the room, giggle, how is his cooking? i know you are there dh. just poking fun at you. i hope you are getting your rest too.
i am inspired by your love for each other.
peace,
bluelakelady
i am inspired by your love for each other.
peace,
bluelakelady
tkgoodspirit
06-13-2005, 11:53 PM
Hey "Old man"!
Sorry to hear about the "set back", but glad that all turned out well. I DO believe there will be a few bumps in the road given golden's delicate condition. She was up against some pretty rough odds, but I also knew that she'd survive it all and come through with flying colors. She's got a strong spirit. You probably don't need me to tell you that!
Thank you so much for keeping us posted. I hopd that this whole situation doesn't wear you down too awful much. Golden told me about your possibly having CFS. I have that also and it's so frustrating to just be tired for no reason, but when you add stress of this magnitude to the mix, your exhaustion becomes overwhelming. I understand. I hope that you will be working on getting you "fixed" up as soon as possible, and I know golden will be there for you when you need her strength.
Give her a big smoochie from TK and hug yourself as well! Better yet, have her hug you! :) Tell her we are all cheering her on and that there isn't a day goes by that we all don't miss her. We'll be right here waiting for her sunshine.
Hugs,
tk
Sorry to hear about the "set back", but glad that all turned out well. I DO believe there will be a few bumps in the road given golden's delicate condition. She was up against some pretty rough odds, but I also knew that she'd survive it all and come through with flying colors. She's got a strong spirit. You probably don't need me to tell you that!
Thank you so much for keeping us posted. I hopd that this whole situation doesn't wear you down too awful much. Golden told me about your possibly having CFS. I have that also and it's so frustrating to just be tired for no reason, but when you add stress of this magnitude to the mix, your exhaustion becomes overwhelming. I understand. I hope that you will be working on getting you "fixed" up as soon as possible, and I know golden will be there for you when you need her strength.
Give her a big smoochie from TK and hug yourself as well! Better yet, have her hug you! :) Tell her we are all cheering her on and that there isn't a day goes by that we all don't miss her. We'll be right here waiting for her sunshine.
Hugs,
tk
goldenwings
06-15-2005, 10:51 AM
Hello there,
Just a very very quick message. Thank you all for your support of me, but mostly of your support of my husband. We are so blessed to have friends like you.
My darling Blue,
My heart cried at first when I knew of your troubles, then it beat like a drum to know how you have overcome the obstacle. Well done my friend. Even with all of that going on, you shared your strength with me. Thank you. I do so miss you.
tk, how are you doing? You sure made my old man giggle. He has marvelled at how wonderful my friends are. I do miss you too.
I am allowed only 15 mins per day so I am wobbling and weaving here trying to get how I feel out to you. I felt all of your love and warmth over the oceans.
I am still having problems breathing but hey I'll beat that. Only biopsy results to come now, and then I am raring to go.
I love you all so much. Thank you. I hope to be back permanently real soon.
goldenwings :angel:
Just a very very quick message. Thank you all for your support of me, but mostly of your support of my husband. We are so blessed to have friends like you.
My darling Blue,
My heart cried at first when I knew of your troubles, then it beat like a drum to know how you have overcome the obstacle. Well done my friend. Even with all of that going on, you shared your strength with me. Thank you. I do so miss you.
tk, how are you doing? You sure made my old man giggle. He has marvelled at how wonderful my friends are. I do miss you too.
I am allowed only 15 mins per day so I am wobbling and weaving here trying to get how I feel out to you. I felt all of your love and warmth over the oceans.
I am still having problems breathing but hey I'll beat that. Only biopsy results to come now, and then I am raring to go.
I love you all so much. Thank you. I hope to be back permanently real soon.
goldenwings :angel:
bluelakelady
06-15-2005, 12:10 PM
dearest golden girlfriend,
hoorayyyyy!!!!!!! you are back. so many words are bouncing about in my head. mostly the word and emotion of pure joy. deep strong do a cart wheel joy. later when the lawn dries.
strength comes thru adversity. power thru action. peace thru non aggression. compassion thru eyes wide open.
i know your time is limited and have no doubt there will be others coming to celebrate you. breath deep and slow. i will breath with you.
well done dear hubby. hey he needs his own name.
love,
bluelakelady
hoorayyyyy!!!!!!! you are back. so many words are bouncing about in my head. mostly the word and emotion of pure joy. deep strong do a cart wheel joy. later when the lawn dries.
strength comes thru adversity. power thru action. peace thru non aggression. compassion thru eyes wide open.
i know your time is limited and have no doubt there will be others coming to celebrate you. breath deep and slow. i will breath with you.
well done dear hubby. hey he needs his own name.
love,
bluelakelady
Glojer
06-15-2005, 01:11 PM
Goldenwings, so happy to see you post again. Enjoy those fifteen minutes, we will wait for your full recovery.
Health and healing for you from Glojer
Health and healing for you from Glojer
tkgoodspirit
06-15-2005, 01:40 PM
Oh My!
Your post has brought tears to my eyes "wings". I am actually at a loss for words! Imagine that. LOL
I can say this, I am so happy to see your own words on the board and that we are all still cheering for you my dear friend. Hang in there, you are winning the race!
Your "old man" is the best. We love it that he keeps us updated!
Get some rest my wobbly and weaving friend. ;) And we hope to hear from you again as soon as you are able.
Much love,
tk
P.S. How are those new brows doing? Did you score any points with the doctor by waggling those babies at him? :)
Your post has brought tears to my eyes "wings". I am actually at a loss for words! Imagine that. LOL
I can say this, I am so happy to see your own words on the board and that we are all still cheering for you my dear friend. Hang in there, you are winning the race!
Your "old man" is the best. We love it that he keeps us updated!
Get some rest my wobbly and weaving friend. ;) And we hope to hear from you again as soon as you are able.
Much love,
tk
P.S. How are those new brows doing? Did you score any points with the doctor by waggling those babies at him? :)
bluelakelady
06-16-2005, 10:21 AM
hi golden,
just popping in to say good afternoon to you. it is early morning here and rain is expected. i can feel it.
i am breathing with you.
love you old girl,
bluelakelady
just popping in to say good afternoon to you. it is early morning here and rain is expected. i can feel it.
i am breathing with you.
love you old girl,
bluelakelady
goldenwings
06-16-2005, 12:25 PM
Hiya Blue,
Thank you my friend. More inhalers from the doctor today. My fibro battered shoulders and back are going to get their butts kicked I can tell you he he. I giggled at the sight of my upper body today. I can make pictures out of the scars. I am going to join them all up and make smiley faces he he.
I go on Tuesday for the results of my biopsy. I'm going to be crossing everything I have, but whatever the outcome, my wonderful husband and I are going to have a few days break away somewhere.
The rain has been falling here too, but I loved it, it seems so long since I was outside enjoying the air.
There was a huge pop festival here on my island last weekend, wish I could have gone. See I am feeling better he he.
Thank you so much. I hope that you are feeling a bit better today.
goldenwings :angel:
Thank you my friend. More inhalers from the doctor today. My fibro battered shoulders and back are going to get their butts kicked I can tell you he he. I giggled at the sight of my upper body today. I can make pictures out of the scars. I am going to join them all up and make smiley faces he he.
I go on Tuesday for the results of my biopsy. I'm going to be crossing everything I have, but whatever the outcome, my wonderful husband and I are going to have a few days break away somewhere.
The rain has been falling here too, but I loved it, it seems so long since I was outside enjoying the air.
There was a huge pop festival here on my island last weekend, wish I could have gone. See I am feeling better he he.
Thank you so much. I hope that you are feeling a bit better today.
goldenwings :angel:
bluelakelady
06-16-2005, 01:12 PM
dearest goldenwings,
i will be with you and dh on tuesday. i am always with you. i love the idea of connecting your scars. have you thought about tattoos of flowers or hummingbirds to create art that is your lovely body? i have a friend who had zippers tattooed on her scars. in fact i will be seeing her for the first time in 32 years this august. all my high school girlfriends are gathering at my home for a reunion. we did it two years back. i was down with fibromyalgia for weeks after. worth every moment. we had not gathered in 30 years.
i am delighted you and dh are taking a mini vacation together. you both have earned a little run away from your current reality. your body already is what it is. i do hope you are not worried. come what may you will always be here in my heart as well as many hearts here.
i am tired today. so much excitement. so many people in and out of my home. inspectors and the new owners.
i will lie in my bed today and we can watch the rain together. it is almost dinner time for you. eat well for healing. sweet dreams tonight old girl.
peace, healing, breath, life,
bluelakelady
ps. i thought of a name for dh. compassionman. what do you think? give him my deepest, warmest regards.
i will be with you and dh on tuesday. i am always with you. i love the idea of connecting your scars. have you thought about tattoos of flowers or hummingbirds to create art that is your lovely body? i have a friend who had zippers tattooed on her scars. in fact i will be seeing her for the first time in 32 years this august. all my high school girlfriends are gathering at my home for a reunion. we did it two years back. i was down with fibromyalgia for weeks after. worth every moment. we had not gathered in 30 years.
i am delighted you and dh are taking a mini vacation together. you both have earned a little run away from your current reality. your body already is what it is. i do hope you are not worried. come what may you will always be here in my heart as well as many hearts here.
i am tired today. so much excitement. so many people in and out of my home. inspectors and the new owners.
i will lie in my bed today and we can watch the rain together. it is almost dinner time for you. eat well for healing. sweet dreams tonight old girl.
peace, healing, breath, life,
bluelakelady
ps. i thought of a name for dh. compassionman. what do you think? give him my deepest, warmest regards.
bluelakelady
06-17-2005, 10:22 AM
afternoon old girl,
how are you feeling today? i woke up thinking of you. absolutely delightful to wake up with you in my mind. it was 4:24am my time. about your lunch time. so, he he, what were you doing?
love,
bluelakelady
how are you feeling today? i woke up thinking of you. absolutely delightful to wake up with you in my mind. it was 4:24am my time. about your lunch time. so, he he, what were you doing?
love,
bluelakelady
bluelakelady
06-18-2005, 02:04 AM
hi golden,
it is early morning at your house. late night at mine. the rain still falls. i just wanted you to know i am going to go to sleep soon thinking about you rising and greeting your new day.
love,
bluelakelady
it is early morning at your house. late night at mine. the rain still falls. i just wanted you to know i am going to go to sleep soon thinking about you rising and greeting your new day.
love,
bluelakelady
goldenwings
06-18-2005, 05:42 AM
Hi Blue,
I am reading your post at 9.30 in the morning. Are you 8 hours behind? I can't remember. Hope you read this when you awake from your wonder filled dreams. I am feeling a bit better day by day. I do so hope you are getting the rest you need both in mind and body.
My darling husband is so so tired. He too sees a doctor in a couple of weeks, we hope to get all of this sorted out for him. He needs a rest, I hope the break away will refresh him a little. We haven't decided where yet, but anywhere will be good I feel.
You are such an inspiration to me. Lots of love.
goldenwings :angel:
I am reading your post at 9.30 in the morning. Are you 8 hours behind? I can't remember. Hope you read this when you awake from your wonder filled dreams. I am feeling a bit better day by day. I do so hope you are getting the rest you need both in mind and body.
My darling husband is so so tired. He too sees a doctor in a couple of weeks, we hope to get all of this sorted out for him. He needs a rest, I hope the break away will refresh him a little. We haven't decided where yet, but anywhere will be good I feel.
You are such an inspiration to me. Lots of love.
goldenwings :angel:
bluelakelady
06-18-2005, 11:26 AM
hey old girl,
yes i am 8 hours behind you. i did wake to you. thanks. i am pleased the sun is shining for you. it does something magic, the sun. guess that's why i never could bring myself to leave california.
girlfriend, you inspire me! you and your compassionman. being bum dragging tired because you are loving and caring is a good kind of tired. i really, really hope he does not have cfs.
i met a man yesterday who came to inspect our current home for the new owners. turns out his wife has fibromyalgia. i invited her to visit us. hope she does. know what he said to me? he said he would do anything, pick up any slack, for his wife. i thought of you and compassionman. this is love.
know your time here is limited. time for me to shut me up. hug my favorite man for me.
i love you lots too!
peace,
bluelakelady
yes i am 8 hours behind you. i did wake to you. thanks. i am pleased the sun is shining for you. it does something magic, the sun. guess that's why i never could bring myself to leave california.
girlfriend, you inspire me! you and your compassionman. being bum dragging tired because you are loving and caring is a good kind of tired. i really, really hope he does not have cfs.
i met a man yesterday who came to inspect our current home for the new owners. turns out his wife has fibromyalgia. i invited her to visit us. hope she does. know what he said to me? he said he would do anything, pick up any slack, for his wife. i thought of you and compassionman. this is love.
know your time here is limited. time for me to shut me up. hug my favorite man for me.
i love you lots too!
peace,
bluelakelady
goldenwings
06-18-2005, 12:30 PM
Hiya Blue,
I love it!! Compassionman !! Yay. That's him alright. He is a bit down today because I am having a slight setback. The fibro monster has been my companion since I came out of hospital and today is dancing the rumba on my back. DH has just been to the pharmacy and got some freeze spray. Aarrgghh !! Gosh, does it wake you up!!
It is his birthday soon and so I am trying to think of something unusual for him. I have arranged the airplane gliding lessons, the parties, the holidays, and so on. We buy each other gifts all through the year so I must get my thinking cap on and come up with something spectacular.
Hope you have a good day.
goldenwings :angel:
I love it!! Compassionman !! Yay. That's him alright. He is a bit down today because I am having a slight setback. The fibro monster has been my companion since I came out of hospital and today is dancing the rumba on my back. DH has just been to the pharmacy and got some freeze spray. Aarrgghh !! Gosh, does it wake you up!!
It is his birthday soon and so I am trying to think of something unusual for him. I have arranged the airplane gliding lessons, the parties, the holidays, and so on. We buy each other gifts all through the year so I must get my thinking cap on and come up with something spectacular.
Hope you have a good day.
goldenwings :angel:
tkgoodspirit
06-18-2005, 12:35 PM
Hey "Wings"!
I just wanted to pop in and say a quick hi and that I think of you daily.
I love you my sweet woman! :)
tk
I just wanted to pop in and say a quick hi and that I think of you daily.
I love you my sweet woman! :)
tk
goldenwings
06-18-2005, 12:39 PM
My dearest tk,
How are you? I feel like I am coming home now. To talk to you once again is superb. I do so hope that you are doing ok at the moment (well as ok as you can). I miss talking to you, I do worry about you too, you know. Please let me know you are doing ok.
My eyebrows gave a half wiggle. He he. Never mind second session next week, full eyebrows wow !! What am I like hey. My back is thumping like a compressor and all I am thinking about is my eyebrows.
Any ideas on a super present for my husband's birthday?
Love and best wishes to you my friend.
goldenwings :angel:
How are you? I feel like I am coming home now. To talk to you once again is superb. I do so hope that you are doing ok at the moment (well as ok as you can). I miss talking to you, I do worry about you too, you know. Please let me know you are doing ok.
My eyebrows gave a half wiggle. He he. Never mind second session next week, full eyebrows wow !! What am I like hey. My back is thumping like a compressor and all I am thinking about is my eyebrows.
Any ideas on a super present for my husband's birthday?
Love and best wishes to you my friend.
goldenwings :angel:
goldenwings
06-18-2005, 12:42 PM
Wow,
tk we sent a message to each other at the same time. Hows about that for telepathy !! :D
goldenwings :angel:
tk we sent a message to each other at the same time. Hows about that for telepathy !! :D
goldenwings :angel:
tkgoodspirit
06-18-2005, 05:06 PM
My dearest tk,
How are you? I feel like I am coming home now. To talk to you once again is superb. I do so hope that you are doing ok at the moment (well as ok as you can). I miss talking to you, I do worry about you too, you know. Please let me know you are doing ok.
My eyebrows gave a half wiggle. He he. Never mind second session next week, full eyebrows wow !! What am I like hey. My back is thumping like a compressor and all I am thinking about is my eyebrows.
Any ideas on a super present for my husband's birthday?
Love and best wishes to you my friend.
goldenwings :angel:
LOL! Our souls are synchronized! :)
Here's an idea for you, if your budget allows, I'm not sure at the cost, but I seem to have extravagent taste!
Buy your hubby some fancy silk PJ's, or a lounging robe. Something Hugh Hefner style! Then see if you can find a local cateror who will come to your house and fix you a great meal and serve you both as well! So you two can sit at your table, which will be elegantly set with your good dishes, candles and a beautiful floral centerpiece. What flowers does your husband like? Men love to get flowers, they just rarely admit it. Hubby will be wearing his new silk outfit, and you will be in an elegant louge wear set as well. The dinner will be prepared and served to you both, just like being at Donald Trumps for dinner! LOL Play some of your hubby's favorite music in the backround. Make sure that who ever is serving your dinner sticks around to clear the dishes! But also leaves you two alone while you are "dining". I tried to sound ritzy by using the word "dining". You have to say it like Prince Charles with your jaw clenched and slightly jutted outward! LOL And to top it off, you could cover your bedroom with candle light and flowers and good smelly stuff. Or should I say "bouduai"? Is that how you spell it? I suppose you have a bathroom off of your bedroom? If so, have it filled with beautiful bubbley stuff and wonderful lavender scents. Let your hubby enjoy a nice soothing bath, single or double. ;) Don't forget the candles in the bathroom, oh and music there too. I also think that you should have some fresh fruit and possibly chocolate covered strawberries to share while in the bath. Champaigne for your hubby and sparkling cider for you. And if possible, maybe you could arrange for a massage therapist to come to your home and give your hubby's muscles a good relaxing massage. Okay, I'll stop with the "ideas" now, as the rest will be left to you. Let's just say, here's another chance to "waggle" those eyebrows!
How's that sound? A little over the top? Ah, go for it!
Keep us posted my dear.
Love you,
tk
How are you? I feel like I am coming home now. To talk to you once again is superb. I do so hope that you are doing ok at the moment (well as ok as you can). I miss talking to you, I do worry about you too, you know. Please let me know you are doing ok.
My eyebrows gave a half wiggle. He he. Never mind second session next week, full eyebrows wow !! What am I like hey. My back is thumping like a compressor and all I am thinking about is my eyebrows.
Any ideas on a super present for my husband's birthday?
Love and best wishes to you my friend.
goldenwings :angel:
LOL! Our souls are synchronized! :)
Here's an idea for you, if your budget allows, I'm not sure at the cost, but I seem to have extravagent taste!
Buy your hubby some fancy silk PJ's, or a lounging robe. Something Hugh Hefner style! Then see if you can find a local cateror who will come to your house and fix you a great meal and serve you both as well! So you two can sit at your table, which will be elegantly set with your good dishes, candles and a beautiful floral centerpiece. What flowers does your husband like? Men love to get flowers, they just rarely admit it. Hubby will be wearing his new silk outfit, and you will be in an elegant louge wear set as well. The dinner will be prepared and served to you both, just like being at Donald Trumps for dinner! LOL Play some of your hubby's favorite music in the backround. Make sure that who ever is serving your dinner sticks around to clear the dishes! But also leaves you two alone while you are "dining". I tried to sound ritzy by using the word "dining". You have to say it like Prince Charles with your jaw clenched and slightly jutted outward! LOL And to top it off, you could cover your bedroom with candle light and flowers and good smelly stuff. Or should I say "bouduai"? Is that how you spell it? I suppose you have a bathroom off of your bedroom? If so, have it filled with beautiful bubbley stuff and wonderful lavender scents. Let your hubby enjoy a nice soothing bath, single or double. ;) Don't forget the candles in the bathroom, oh and music there too. I also think that you should have some fresh fruit and possibly chocolate covered strawberries to share while in the bath. Champaigne for your hubby and sparkling cider for you. And if possible, maybe you could arrange for a massage therapist to come to your home and give your hubby's muscles a good relaxing massage. Okay, I'll stop with the "ideas" now, as the rest will be left to you. Let's just say, here's another chance to "waggle" those eyebrows!
How's that sound? A little over the top? Ah, go for it!
Keep us posted my dear.
Love you,
tk
bluelakelady
06-20-2005, 10:34 AM
hi golden,
how are you doing today sunshine? and compassionman? are you packed and ready? i will be with you tomorrow. when you get home will you please post and let me know what your biopsy results are and how you are feeling?
i will think of you and cm reclining on soft chairs by the sea. warm sun, love and precious moments creating memories for you both to cherish.
love,
bluelakelady
how are you doing today sunshine? and compassionman? are you packed and ready? i will be with you tomorrow. when you get home will you please post and let me know what your biopsy results are and how you are feeling?
i will think of you and cm reclining on soft chairs by the sea. warm sun, love and precious moments creating memories for you both to cherish.
love,
bluelakelady
bluelakelady
06-21-2005, 10:39 AM
hi golden,
by now you have been to see your doctor. i am with you.
make lovely memories. laugh till your tummy hurts. please check in with me when you get home?
i am thinking of you and cm in the sun. warm healing light of life.
love,
bluelakelady
by now you have been to see your doctor. i am with you.
make lovely memories. laugh till your tummy hurts. please check in with me when you get home?
i am thinking of you and cm in the sun. warm healing light of life.
love,
bluelakelady
goldenwings
06-21-2005, 05:42 PM
My dearest Blue,
YIPPEE !! NO CANCER. I and of course my darling compassionman are so happy to be able to say this at long last.
Blood clots in lungs, chest infections and now pleurisy, but hey so what, the words I needed to hear have been uttered.
Thank you so very much my dear Blue for all of your love and support during this horrid time. It still amazes me how I have found such friendship, I am truly blessed.
I'm back !!!!!!
My dear tk,
I know of your darkness at the moment, I love you lady. Take your time and we will be here when you come back.
goldenwings :angel:
YIPPEE !! NO CANCER. I and of course my darling compassionman are so happy to be able to say this at long last.
Blood clots in lungs, chest infections and now pleurisy, but hey so what, the words I needed to hear have been uttered.
Thank you so very much my dear Blue for all of your love and support during this horrid time. It still amazes me how I have found such friendship, I am truly blessed.
I'm back !!!!!!
My dear tk,
I know of your darkness at the moment, I love you lady. Take your time and we will be here when you come back.
goldenwings :angel:
Glojer
06-21-2005, 06:45 PM
I am so very happy for you golden and for your compassionman as well. This was prayers answered. We have missed you here so glad you are better.
Glojer
Glojer
bluelakelady
06-22-2005, 12:56 AM
YIPEEEEEEEEEE!!!!!!!!
i know the relief of hearing those words. no cancer. i bet you and compassionman are giggling alot. i know i am, for you.
with you here to help we will for sure call our teekers back to us. we will power up the healing rays and radiate her with love, healing, compassion and more love.
love,
bluelakelady
i am blessed to have you old girl. you two give each other a big warm california hug for me.
i know the relief of hearing those words. no cancer. i bet you and compassionman are giggling alot. i know i am, for you.
with you here to help we will for sure call our teekers back to us. we will power up the healing rays and radiate her with love, healing, compassion and more love.
love,
bluelakelady
i am blessed to have you old girl. you two give each other a big warm california hug for me.