Hi,

I fell ill in Sept 2003. First symptom was dizziness when leaning forward, spaced out (episodic would come and go but knew instantly when I was back to normal again. So hard to describe!...), then a few weeks later, tinnitus started (like an alternating two tone high pitched). Then insomnia, IBS, panic, anxiety, depression, ear pressure, sore neck and shoulders.

Now I have a strange new symptom which I woke up to this morning. The only way I can describe it is like a low end rumble, vibration feeling in my head (not sure if it's in my head or more in my ears). It started bad this morning, and has been on and off all day. I am worried.

I've had all tests known to man over the last 2 years. MRI's, Blood tests Thyroid etc.etc.

Only positive tests so far was Caloric test (but this was done with Air and not Water - I am so paranoid about getting anything in my ear after a swimming incident last year. Had water stuck in the affected ear and could hear my footsteps in my ear when I walked! It freaked me out).

I seem to have a lot of ENT symptoms (tinnitus, sore jaw, bruxism, ear pressure constantly) and I just can't work out if this is the main problem, or do I have Fibromyalgia with TMJ involvment (I have pains in my legs/groin at the moment), strange tingling sensations in head, Anxiety, Depression, Carpal Tunnel, Disequilibrium and spaced out feeling. Can't quite concentrate on what I see (I know this sounds strange!) - Supermarkets and crowded places bother me.....and now this strange new symptom.

Could a Vestibular disorder produce symptoms not only in the face/head/ears with balance and hearing etc., but can it also involve the rest of the body?

Could it be Fibro with TMJ?

Can anyone recommend any treatments/diet that works? I've heard that a low salt, high protein diet is good. Avoid things with Sodium or Potassium (or is that just for Meniers Disease?)

I'm just so confused about the whole thing! Two years of 20 Doctors, specialists, various tests, exams etc. and no real dx. I fear that I will get worse!.

Thankyou for any help!

Take care,

Mike.

could the rumbling be myoclonus of the middle ear or palate? look these up.
lib

If you want to try a change in diet, it could be a food allergy, that is causing a build-up of fluid in the ear canal. You could get a blood test that can tell you what you're allergic to, or you can just test cutting different foods out of your diet. I would suggest starting with wheat. It's actually a quite common one that affects hearing, but doctors never seem to know about it.

Hi,

Thankyou for the swift reply.

I am even more confused by all of this now.....Can anyone advise if the following sounds familiar :

Started just over a week ago, as well as dealing with daily dizziness, headache came on, anxiety (daily) got worse, on Friday I just suddenly lost my appetite completely, my body felt tender to touch, my head/neck/back just felt sore. Over the past few days my I kept getting mild abdomen pains off and on. Nothing servere or cripling just noticable and annoying. By friday night, I ended up in E.R. Doctors didn't have a clue (surprise! surprise!) and insisted that I had food poisoning. The next morning (sorry for the detail), my stool was foul. Horrible smell, Light brown and runny. I have taken a sample of this and sent to the Pathology Lab at the hospital (still waiting for results!).

Anyway, I woke up Saturday morning, and the horrible sick feeling, body sensitivity etc. has gone. My stools still aren't normal (but aren't runny anymore). I still keep getting abdominal pains off and on. I had it this morning when I woke up. Trouble is, I dont know if thie pains are due to nerves/anxiety. What could this be?

I am thinking of going to see a Neutritionalist soon. Anyone recommend? Are they the best people to see. So far for this undiagnosed condition (well, I have been diagnosed with Vestibular Labyrinthitus) doctors just HAVENT GOT A CLUE.

Sorry to rant and go into such detail. Just needing help and advise.

I am also scared stiff that I will end up bed-bound or in a wheelchair. Is this possible since I have had this for over 2 years now but it hasn't happened so far? I think the fear of this happening is making me worse!

Take care,

Mike XXX