Hi,

I had mono in Jan and have had severe chronic fatigue since even though blood test for for mono has been clear since Mar. I moved back home in with my parents (oh-joy) and would like to know I'm not the only one around unable to keep up with everyone else and their crazy hetic lives. Just wondering if anyone has information on support groups in Canada.

Thanks.

Hello, My daughter had mono in Jan. Still is very fatigued. She has quit all her activities. She was just diagnosed with CFIDS. Did you talk to your doctor about this? If he is not supportive you should try to find someone who is. Are you able to work or go to school? Hope you feel better soon.

Hi,

I have quit working and moved back in with my parents (who are extremely supportive). The doctors I have spoken with were not supportive. Eventhough I am not working at the moment, I am feeling better than I was in the spring and I do believe over time I will gain more energy. Like your daughter I have also cut back my activities and I've learned to pace myself. In the meantime, I thought I would look for support groups as I think it would be helpful to talk to others who have gone through something similar.

I've just read your postings here and your interesting comments responding to my post about positive aspects -your experience seems very similar to mine - I was worse in the Spring like you and managing to think more positively now about life after this illness - though I am still not too good at all. If you'd like to compare notes a bit more please email me on [removed]. Bye for now, Ivan

Both of my kids had mono in high school. It probably took the better part of a year to get their strength back. Eat well, mild exercise, and a good multivitamin was the order of the day for them. Try not to overdo.

alice

Hey Lara,
Sounds like we are in a similar boat! Unfortunately I am not in Canada. But you are more than welcome to email me: [removed]

My parents and friends have been supportive, and SO FAR my job about all this, but not so much the docs. It has been a nightmare really. one or two good docs in between a million docs that are butt-heads. Not kidding! I would love a support group myself, but I don't know of any around here either so it sounds like we just need to be there for each other right now. And as much as I love my parents, I am trying desperately for it not to come to living with them (even though I know I should do it anyway). It still may come to that. I have honestly been saved by the bell a few times, right when I am about to pack up. I wish you all the luck in the world with this sweetie, I really do, 'cuz I totally feel your pain.
Hang tuff Darlin!