I know a few of you and been posting on CRMO (Chronic Recurring Multifocal Osteomyelitis) and i was diagnosed with this bone disease a few months ago after having repeated surgeries in two different areas. In 1998 and 2003, which i was diagnosed with a bone infection.. later to find out that i have CRMO and i am taking Mobic, which is an anti-inflamatory and has worked wonders. :) any questions on this or help be sure and e mail me! ive been through it all!

My son has just been diagnosed with CRMO but we were told it was bone inflamation. Is that the case? Does it cause extreme fatigue? Does it affect you immune system? Is it related somehow to IBS and psoraisis? We are members of Kaiser and they know little or nothing about this disorder they say there is no research. Is it related to lupus? I ask about these other disorders as they are in the family.
Since his diagnosis he spent 2 days in the hospital on IV anti biotics, came home on 1800 mgs of anti biotics and was taken off of them 4 days later as his blood work was nornal. I have done some research on my own and found out about the Motrin idea. With my son's touchy stomach and IBS I have to be very careful. He is really struggling in school and even being able to attend all day every day. Has anyone else ever had these kinds of issues with this illness?? I am desperate for information because his teachers are having a problem with grading him because of his inability to do the assignments etc.
Nanc

Hi Nancy,

I have been diagonsed with Sapho which CRMO is a subclass of it.

I have had pamidronate infusions which has helped me to a point. I know of others who have had complete remisison after 2-4 infusions.

There is yahoo group for Sapho and CRMO.

http://health.*************.com/group/SAPHO_CRMO/

Regards,
Ali