marion06095
06-09-2005, 04:43 PM
I had an MRI with contrast last Thursday. On Tuesday, the doctor called and told me that he's pretty sure I have MS. I am scheduled for a spinal on June 17. My head is still reeling! I have so many questions that I don't know where to begin. I have been reading here and elsewhere. There is so much to learn! A few question do come to mind, and I was hoping to find some answers here.
What sort of information willl they get from the spinal?
My husband is self employed, and so we have an individual Blue Cross policy. We can hardly make the payments now. Will they hike my rates?
Do these drugs you take for MS make you gain or lose weight, or make you all puffy or anything?
That's all I can think of for now. Thanks in advance for any help.
P.S. - I honestly feel like shoving this diagnosis down the throat of every health care professional over the years that suggested I was just malingering!
What sort of information willl they get from the spinal?
My husband is self employed, and so we have an individual Blue Cross policy. We can hardly make the payments now. Will they hike my rates?
Do these drugs you take for MS make you gain or lose weight, or make you all puffy or anything?
That's all I can think of for now. Thanks in advance for any help.
P.S. - I honestly feel like shoving this diagnosis down the throat of every health care professional over the years that suggested I was just malingering!
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KelliD
06-09-2005, 07:27 PM
Hi Marion! And welcome to the boards!
Let me respond to your concerns by first suggesting you take a deep breath and try not to panic. After my first MRI, my internist left a message on my answering machine, ordering me to her office.
Upon arrival, she - taking the initial MRI interpretation from the tech who read it at face value - very tearfully told me I had a fatal disease and was dying. I just started laughing. There are just some things that you "know that you know" and I KNEW I wasn't dying! Turns out it was just MS. When you've been given such alarming news, it's easy to say "just MS."
So try not to borrow any worries until all the results are in and a neurologist can tell you exactly where things stand. As for your questions...
Because an MS dx is made by process of elimination, a Neurologist will "read" your spinal tap results and determine if the evidence points toward what they recognize as being indicative of MS, and will prescribe treatment accordingly.
As for such a diagnosis jacking up your insurance rates, I have no idea. My rates were unaffected - thank the good Lord! - but I am insured through the company I work for, not self-insured. Bottom line is if you need treatment, you need treatment. No point in adding the stress of insurance rates to the weight already on your shoulders. (Easier said than done, I know)
Far as I know, none of the MS meds cause puffiness or weight gain. I use Avonex, once weekly. The worst I get are flu-like side effects at times. A dose of Advil takes care of it. Everyone's medicinal experience is as different as everyone's experience with MS. If you find you do have MS, research the meds very well and choose whichever will best suit your lifestyle.
I know this is a lot to digest. I remember the sleepless nights I had as I waited for answers. I wish I had known about this MS Board then!! There are lots of us here. Check in often...talk to us! Let us encourage you. Before you know it, you'll be encouraging us! Stay strong...
Let me respond to your concerns by first suggesting you take a deep breath and try not to panic. After my first MRI, my internist left a message on my answering machine, ordering me to her office.
Upon arrival, she - taking the initial MRI interpretation from the tech who read it at face value - very tearfully told me I had a fatal disease and was dying. I just started laughing. There are just some things that you "know that you know" and I KNEW I wasn't dying! Turns out it was just MS. When you've been given such alarming news, it's easy to say "just MS."
So try not to borrow any worries until all the results are in and a neurologist can tell you exactly where things stand. As for your questions...
Because an MS dx is made by process of elimination, a Neurologist will "read" your spinal tap results and determine if the evidence points toward what they recognize as being indicative of MS, and will prescribe treatment accordingly.
As for such a diagnosis jacking up your insurance rates, I have no idea. My rates were unaffected - thank the good Lord! - but I am insured through the company I work for, not self-insured. Bottom line is if you need treatment, you need treatment. No point in adding the stress of insurance rates to the weight already on your shoulders. (Easier said than done, I know)
Far as I know, none of the MS meds cause puffiness or weight gain. I use Avonex, once weekly. The worst I get are flu-like side effects at times. A dose of Advil takes care of it. Everyone's medicinal experience is as different as everyone's experience with MS. If you find you do have MS, research the meds very well and choose whichever will best suit your lifestyle.
I know this is a lot to digest. I remember the sleepless nights I had as I waited for answers. I wish I had known about this MS Board then!! There are lots of us here. Check in often...talk to us! Let us encourage you. Before you know it, you'll be encouraging us! Stay strong...
LaDeeDa
06-10-2005, 09:09 AM
Hi Marion,
If you'll go to the NMSS website you'll find lots of useful information. They address all sorts of questions. Hope this helps,
Dee
If you'll go to the NMSS website you'll find lots of useful information. They address all sorts of questions. Hope this helps,
Dee