linda11867
06-11-2005, 04:35 PM
Hi everyone. I'm new here and I need some help! This would take a long time to write out in full, but here's my symptoms:
muscle aches, spasms, twitches, cramps, fasciculations(i think), numbness, tingling and these flipping internal vibrations! I don't know how else to describe them. They started in my feet mostly, as did the initial cramps I was getting. But now they are sometimes in one or both legs, my tailbone or rear end area and they are making me insane. I had an MRI of brain, cervical spine, CT, EMG B12 and the like for blood work and it all came back normal except for slight WBC elevation. The thing is, I wasn't having all of this vibrating going on when these tests were done. At that time, I was just rather stiff from cramped muscles. Over the last couple of weeks, this vibrating has been relentless. Also, I noticed a couple of days ago that if the vibration is acting up in my tailbone area, it will become "amplified" if i look at my feet (put my head in that direction). I tried a couple of Robax extra strength for muscle spasm yesterday, and it did not improve the vibration at all. I am a 38 year old female and I am starting to get freaked out. Does anyone have any ideas? Any input or anyone with similar symptoms?
Linda
muscle aches, spasms, twitches, cramps, fasciculations(i think), numbness, tingling and these flipping internal vibrations! I don't know how else to describe them. They started in my feet mostly, as did the initial cramps I was getting. But now they are sometimes in one or both legs, my tailbone or rear end area and they are making me insane. I had an MRI of brain, cervical spine, CT, EMG B12 and the like for blood work and it all came back normal except for slight WBC elevation. The thing is, I wasn't having all of this vibrating going on when these tests were done. At that time, I was just rather stiff from cramped muscles. Over the last couple of weeks, this vibrating has been relentless. Also, I noticed a couple of days ago that if the vibration is acting up in my tailbone area, it will become "amplified" if i look at my feet (put my head in that direction). I tried a couple of Robax extra strength for muscle spasm yesterday, and it did not improve the vibration at all. I am a 38 year old female and I am starting to get freaked out. Does anyone have any ideas? Any input or anyone with similar symptoms?
Linda
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lilc
06-11-2005, 05:15 PM
I can absolutely relate! It is inescapable and just wears on me. Am in the process of getting some sort of diagnosis, but over the past 3 months it has sort of "morphed" into constant tingle in both arms and hands, and the back of my tongue. Wish I could offer more than empathy, but it certainly helped me to know that I wasn't the only vibrating woman out there! (Sounds exotic, doesn't it?) Hang in there. It gives entirely new meaning to the encouraging phrase, "keep your chin up"!
linda11867
06-11-2005, 05:32 PM
Hi Lilc,
Thanks for your reply. Sorry to hear you're vibrating too! As much fun as it sounds, its not!! haha....anyway, I do not know what to make of this....it's seriously worrying me. Do your vibrations happen in different areas? Can u describe them as best as u can? I know it's hard, because people generally don't seem to understand....they think i must mean twitch or something....I feel like someone is strumming a guitar inside me or something....do u have the amplified feeling when you look to the ground?
Thanks again for writing so quickly...
Linda
Thanks for your reply. Sorry to hear you're vibrating too! As much fun as it sounds, its not!! haha....anyway, I do not know what to make of this....it's seriously worrying me. Do your vibrations happen in different areas? Can u describe them as best as u can? I know it's hard, because people generally don't seem to understand....they think i must mean twitch or something....I feel like someone is strumming a guitar inside me or something....do u have the amplified feeling when you look to the ground?
Thanks again for writing so quickly...
Linda
KelliD
06-11-2005, 08:07 PM
Linda & Lilc - not that I am by any means happy that you are vibrating, but I am thankful to know I am not going crazy..I am not the only one who feels she is about to "rattle apart" from the inside-out. I don't have any answers for the vibration problem...I'lltake that up with my Neuro in July. As for pain, Advil. If Advil doesn't touch it, I add Amitriptyline nightly to help manage. This combo works well for me. Maybe for you, too?
I have occasional, intense pain in other "unmentionable" areas that I will leave unmentioned so as not to embarass the fellas on the Boards. Do any of you gals experience the same since being dx'd?
I have occasional, intense pain in other "unmentionable" areas that I will leave unmentioned so as not to embarass the fellas on the Boards. Do any of you gals experience the same since being dx'd?
atrixiedix
06-11-2005, 09:38 PM
KelliD,
I have had lots of pain in unmentionable places also. My tailbone itches constantly and it is not very attractive. I also have the Chin to the chest vibrations. My biggest problem now is that my eyesight is very wierd. I I see lots of lights whenever I move my eyes around. It is worse in dim light. The back of my eyes ache at times like I have strained them. I went to see the neuro about this on friday and he said be patient. I have not been dx'd yet they are calling it probable ms. This is not fun and I wish I could just forget about it all! But unfortunately my symptoms will not let me.
Dixie
I have had lots of pain in unmentionable places also. My tailbone itches constantly and it is not very attractive. I also have the Chin to the chest vibrations. My biggest problem now is that my eyesight is very wierd. I I see lots of lights whenever I move my eyes around. It is worse in dim light. The back of my eyes ache at times like I have strained them. I went to see the neuro about this on friday and he said be patient. I have not been dx'd yet they are calling it probable ms. This is not fun and I wish I could just forget about it all! But unfortunately my symptoms will not let me.
Dixie
lilc
06-11-2005, 09:50 PM
Oh for Pete's sake, Kelli, I had that "unmentionable" experience last night and was thinking I would never be able to bring it up! Linda, I have thought of a number of ways to describe it: 1. At first I kept reaching for my cell phone. 2. For a while it was as if a cat's purr had inhabited my lower spine. 3. After that there was a spell where it was a constant pulsing in my lower back. 4. It definitely started when I bent my neck forward - both legs (and later arms) would go numb. I found that described as L'Hermittes sign after sorting through all the strange stuff I got when I did a web search for "vibrating sensation in spine"! 5. The sensation of an electrical shock. This is probably the most precise description. I used to do electrical work and am VERY familiar with that sensation! Most frustrating to me is that it has evolved over the past (exactly) 3 months. When I try to describe it to the neurologist I stammer and go blank. But most disturbing to me is that for the past month I've had times where my entire right arm "goes to sleep" - it happened again about half an hour ago while I was out running errands.
I saw a neurosurgeon before I saw a neurologist. He said I have "classic symptoms of spinal cord compression", but MRI and x-rays showed nothing at all. Have you had any tests? Believe me, I know how intensely annoying and distracting it is, I'm praying you get answers (and BETTER) soon!
I saw a neurosurgeon before I saw a neurologist. He said I have "classic symptoms of spinal cord compression", but MRI and x-rays showed nothing at all. Have you had any tests? Believe me, I know how intensely annoying and distracting it is, I'm praying you get answers (and BETTER) soon!
KelliD
06-12-2005, 02:20 AM
Lilc...I've had no tests beyond the initial ones when they were looking for MS. My neuro just nods in agreement and recognition when I tell him these things. Apparently, there's not a lot they can do but treat the symptoms. My spine is fine..I have had 3 MRI's. The last one showed the brain lesions as inactive..but the symptoms were still kicking. Strange, huh? Hope you're better soon, too!!
KelliD
06-12-2005, 02:25 AM
Atrixiedix...I really feel for you! ALL of my symptoms were preceeded over a year ago by insatiable itching on my upper chest, and only at bedtime. Bizarre!! I have had very brief symptoms like you describe with your eyes. I just strongly encourage you to get checked by a Neuro-opthalmologist, too. I am told MS often shows up in the eyes first, and if you have (even a mild case of) optic neuritis, you'll want to get that under control very quickly. I did get bifocals for the first time in February and that has eased the strain on my eyes tremendously! Praying you are better, and fast!!!
linda11867
06-13-2005, 02:02 PM
Hi to everyone again and I am sorry to hear that so many people are going through these things. I also have had vision problems. My sight sucks to begin with but it's worse...sometimes grainy or floaters. I have also had episodes with flashing lights, and a "bluish" atmosphere flicker when walking into a dark room. It's almost like the flickering you'd see at the old theaters....anyone familiar with that? Also, sometimes it's like everything I'm seeing is painted on a canvas...I know, that sounds pretty nutty....but if you were to look at a painted canvas, it's like that kind of "texture". I hate to come right out and ask this, but the pain in the "unmentionable" areas....is it like muscle cramps? EEK....that's how it is for me....
I hope we all get some answers soon and I'm thankful that this board exists.
Still vibrating and hating it,
Linda
I hope we all get some answers soon and I'm thankful that this board exists.
Still vibrating and hating it,
Linda
lilc
06-13-2005, 02:07 PM
I keep trying to think of some special way to USE the vibration. I often feel as if I could provide power to light bulbs, or maybe I can charge my cell phone without plugging it in...Are you seeing a neurologist?
KelliD
06-13-2005, 02:40 PM
A sense of humor is vital in dealing with MS. Lilc, I am glad to see yours is intact. Maybe we could have an MS Olympics and see who can vibrate themselves across the finish line first in a race. <grin> It so disturbs my family and friends when I carry on like this. Thanks for letting me let it all hang out!
fancycanelady
06-13-2005, 04:29 PM
Can anybody tell me if the "unmentionable areas" include a severe itch and burning sensation? That would certainly explain ALOT!
Also, how is it determined if a lesion is active or not?
I've only minimal vibrating, but "Lilc" I LOL at your last post! You could get rich if you could corner that energy!!!
Also, how is it determined if a lesion is active or not?
I've only minimal vibrating, but "Lilc" I LOL at your last post! You could get rich if you could corner that energy!!!
lilc
06-13-2005, 04:41 PM
There is no little smiley icon to indicate a thread might be a bit racy, hope no one gets offended. However, the experience I had was, quite literally, a vibrating sensation, um, there. Although that might sound pleasant, it was not. Proof that too much of (what once was) a good thing (vibration) can be bad.
KelliD
06-13-2005, 05:25 PM
FancyCaneLady....my Neuro told me that they determine whether a lesion is active by gauging your symptoms and seeing how the lesions show up on the MRI. And yes...at least for me, sharp pain, burning and itching have all occurred in the unmentionable areas, and all seem related to the MS. Bummer!
linda11867
06-13-2005, 05:39 PM
Hi again everyone! LILC....LOL....I wish it was a good vibration too...I have had burning sensations and aches like when a muscle is about to spasm...thank God it doesn't actually spasm....imagine that! I did see a neuro but I have no intention of going back to her. I found her to be very cold and unconcerned. I am now starting from scratch with a full physical to begin with in a week or so...he will likely send me to another neuro. I hope he or she doesn't have the personality of a doorknob this time... :)
I know I'm wasting time by going to see another neuro, but I think I'd prefer not to be treated as a number....
Linda
I know I'm wasting time by going to see another neuro, but I think I'd prefer not to be treated as a number....
Linda
lilc
06-13-2005, 06:53 PM
Linda, I am inclined to believe that a neuro ought to at least feign interest in a patient's issues. If they seem disinterested, I wouldn't expect them to give the case much thought - something that is clearly required for CNS problems. I hope the next one is human. Hang in there.
fancycanelady
06-13-2005, 09:03 PM
Thanks KelliD,
Just for the record, my burn, itch, lalalala is in my "rectal area". Is this also normal????? It's been going on and off for months now and driving me absolutely insane. I went for the colonoscopy and that too came out weird, because of course, MY colon was too twisted to complete the exam, so all of a sudden there are NO reasons for anything that is happening. I guess the next step is a barium enema (YUCK!) to check the last 3rd of my colon that they couldn't get to!. As for the lesions being active or not, I guess all mine are active because I'm having mega symptoms and more lesions showed up on my MRI. I too, am going to ask my Primary doc to recommend another neuro. This one just nods and pats me on my shoulder! I NEED somebody to TALK to! My husband can only help so much!! He is a gem however!!! I don't know what I'd do without him!!
Just for the record, my burn, itch, lalalala is in my "rectal area". Is this also normal????? It's been going on and off for months now and driving me absolutely insane. I went for the colonoscopy and that too came out weird, because of course, MY colon was too twisted to complete the exam, so all of a sudden there are NO reasons for anything that is happening. I guess the next step is a barium enema (YUCK!) to check the last 3rd of my colon that they couldn't get to!. As for the lesions being active or not, I guess all mine are active because I'm having mega symptoms and more lesions showed up on my MRI. I too, am going to ask my Primary doc to recommend another neuro. This one just nods and pats me on my shoulder! I NEED somebody to TALK to! My husband can only help so much!! He is a gem however!!! I don't know what I'd do without him!!