crystal22
06-13-2005, 03:24 AM
Okay, so this is an embarrassing topic, which is why I bring it up here, cuz I don't really know any of you, and that makes me feel more comfortable. I know MS can affect anything, including bowel and bladder problems, and i'm wondering if I have something wrong here. Lately when I go to the bathroom I don't feel like I'm emptying my bowels completely, I just go a little bit and then something "shuts off", I feel like I'm not done going but I cant do anymore. Then 10 minutes later I go a little more, then stop, etc. I always feel like I have to go, but can't. And I have heartburn all the time. It's like the muscles that are in charge of moving things down are not listening to me. Twice in the last 3 weeks I had to go to the MD because I was unable to pass a stool. had enemas, suppositories, and finally they had to manually remove it. Anybody else have this problem? If so, what can I do about it? Would IV steroids make a difference? Sorry if I'm grossing you all out here, but I'm very frustrated and worried and would appreciate any advice. Thanks.
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KelliD
06-13-2005, 08:28 AM
You're not grossing anyone out. Unfortunately, this is common in MS, along with similar bladder problems. You'll want to talk to your doctor about the options that may work best for you to lessen this problem as much as possible. We all have our own ways of dealing with it, I think. Maybe that would be a good thread of conversation to begin...?
WOBBLEY
06-13-2005, 09:43 AM
Hi Crystal, I think alot of us have the same problem, I have found that by really concentrating and taking my time, I have been able to empy my blatter better. You might change your way of eating. I know that the way we eat effects our bowels. I sometimes have a very soft bowel movement everytime I empty my blatter. I'm trying to stay on the MS diet of no sugar, diary, eggs, etc., I think it has helped me, go to www.direct-ms.org. I found their sight to be very informative and a good read. Good luck to all.
lilc
06-13-2005, 01:25 PM
Another item on my list to discuss with neuro. Yes, I have same problems. [Insert appropriate expletive here!]
pmad925
06-13-2005, 09:35 PM
Hi Crystal,
I was dx with (ok,I don't know if this is the correct spelling) but with divuticulite. I have a dx and can't spell it. . LOL. . anyway, I at times get back up (HAHA) or as my husband says " I don't give a ?#@%) My brother was dx with it about 12 years ago, me 2/04, and my mom was just just told last month that she has it. My brother was told that it is an old person's problem. . go figure. What it is, you can't eat any foods with seeds (Strawberry, blueberry, tomatoes, etc) and there are other things also. Of course that does not stop me. . These seeds lodge in a sac at the end of the large intestions and can cause extereme pain. The lower part of my stomach fills like it is hard as a rock. I too can pass a bit, then nothing, then think I have to go again. . and get a peanut. I load up on fiber. I drink prune juice (shockingly not bad tasting) take a stool softner, and Metamucil fiber wafers (I like the cinnamon Spice). I have not had any problems with my MS as being the cause of this not being able to poop issue, since I have other members in the family with the same not being able to poop. HAHA But, my brother has had the treatments that you had. Sorry this sounds weird, but I did not know how else to explain it.
Good luck,
Paula
I was dx with (ok,I don't know if this is the correct spelling) but with divuticulite. I have a dx and can't spell it. . LOL. . anyway, I at times get back up (HAHA) or as my husband says " I don't give a ?#@%) My brother was dx with it about 12 years ago, me 2/04, and my mom was just just told last month that she has it. My brother was told that it is an old person's problem. . go figure. What it is, you can't eat any foods with seeds (Strawberry, blueberry, tomatoes, etc) and there are other things also. Of course that does not stop me. . These seeds lodge in a sac at the end of the large intestions and can cause extereme pain. The lower part of my stomach fills like it is hard as a rock. I too can pass a bit, then nothing, then think I have to go again. . and get a peanut. I load up on fiber. I drink prune juice (shockingly not bad tasting) take a stool softner, and Metamucil fiber wafers (I like the cinnamon Spice). I have not had any problems with my MS as being the cause of this not being able to poop issue, since I have other members in the family with the same not being able to poop. HAHA But, my brother has had the treatments that you had. Sorry this sounds weird, but I did not know how else to explain it.
Good luck,
Paula
Lisa_P
06-16-2005, 11:24 AM
Is this it?
-------------------------------------
di·ver·tic·u·li·tis (dvûr-tky-lts)
NOUN:
Inflammation of a diverticulum or of diverticula in the intestinal tract, causing fecal stagnation and pain.
-------------------------------------
di·ver·tic·u·li·tis (dvûr-tky-lts)
NOUN:
Inflammation of a diverticulum or of diverticula in the intestinal tract, causing fecal stagnation and pain.
Jewel2
06-16-2005, 12:49 PM
Hi,
I would recommend you see a GI about your problem. When my daughter first started getting backed up (not going for 2 weeks at a time), they thought it was diet and lack of exercise. We knew that couldn't be true because she eats well and exercises as much as possible when she's not having an exacerbation. Plus, it got noticeably worse during an MS attack.
Finally her doctor referred her to a GI at the Mayo Clinic who ran all kinds of tests and discussed the results with her neuro at Mayo. The conclusion is that several sections of her colon have stopped working as a result of lesions and she has zero function in places. Her situation is directly MS related. Now the problem is even worse, sometimes going 3 weeks without a movement, then ending up in the ER with an impaction.
Pretty much the only solution now is a colon resection and a possible colostomy. I'm not trying to frighten anyone, but bowel problems are nothing to take lightly. If you are doing all of the normal things to treat your constipation and nothing is helping, then please see a GI.
Hope you all find relief.
Julie
I would recommend you see a GI about your problem. When my daughter first started getting backed up (not going for 2 weeks at a time), they thought it was diet and lack of exercise. We knew that couldn't be true because she eats well and exercises as much as possible when she's not having an exacerbation. Plus, it got noticeably worse during an MS attack.
Finally her doctor referred her to a GI at the Mayo Clinic who ran all kinds of tests and discussed the results with her neuro at Mayo. The conclusion is that several sections of her colon have stopped working as a result of lesions and she has zero function in places. Her situation is directly MS related. Now the problem is even worse, sometimes going 3 weeks without a movement, then ending up in the ER with an impaction.
Pretty much the only solution now is a colon resection and a possible colostomy. I'm not trying to frighten anyone, but bowel problems are nothing to take lightly. If you are doing all of the normal things to treat your constipation and nothing is helping, then please see a GI.
Hope you all find relief.
Julie
pmad925
06-16-2005, 03:23 PM
Hey Lisa P,
That is what I was told. .it is spelled like it sounds.
Thanks,
Paula :jester:
That is what I was told. .it is spelled like it sounds.
Thanks,
Paula :jester: