KelliD
06-14-2005, 01:04 PM
The side effects from the MS meds ebb and flow as much as exacerbations of the disorder itself. It would be easy to want to give up when you don't see immediate improvement (been there, tried that), but I just want to encourage you to hang in there.
MS is wierd. Your feet may return to normal and never bother you another day in your life. But not even your neurologist can make that guarantee. MS is unpredictable at best. But by staying proactive with your care, you will have peace of mind in knowing that you have done/are doing all you can to make a difference...and therein lies hope! :wave:
MS is wierd. Your feet may return to normal and never bother you another day in your life. But not even your neurologist can make that guarantee. MS is unpredictable at best. But by staying proactive with your care, you will have peace of mind in knowing that you have done/are doing all you can to make a difference...and therein lies hope! :wave:
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pmad925
06-15-2005, 12:41 AM
KelliD,
I totally agree with you.
As much as it is the meds it is also the quality of life. I enjoy every day. . it will be five years in July when I was dx with MS, and it will be two years in August since my last flare up!!!! Knock on wood (lots and lots of wood). I have some fatigue, but I can deal and still tug along. I keep my own pace and don't keep up with anyone else but me.
It took my 1 1/2 years to accept this dx and the totally numb torso, arms and hands, and pain really was what changed me to accept this MonSter. Since then, I have change my outlook. I took control. I can finally tell people about MS and not cry. It is unbeliveable how many people know someone that has MS when I talk to them. Talking about it helps create awareness.
I have a great dr. . who listens and has a personality. I think that is a big plus for dealing also. He has allowed me to get off all meds except for Avonex. Of course, everyone is different and MS can effect everyone differently.
I am only 36 and have to much to do in my life time. . I will fight to keep me going!!!! I am don't let MS control my life. . I control of my life. I hope that people that read this will see there is hope and know that it can get better. I can see my difference which has really helped me.
Laugh loud and often and enjoy life to the fullest.
I totally agree with you.
As much as it is the meds it is also the quality of life. I enjoy every day. . it will be five years in July when I was dx with MS, and it will be two years in August since my last flare up!!!! Knock on wood (lots and lots of wood). I have some fatigue, but I can deal and still tug along. I keep my own pace and don't keep up with anyone else but me.
It took my 1 1/2 years to accept this dx and the totally numb torso, arms and hands, and pain really was what changed me to accept this MonSter. Since then, I have change my outlook. I took control. I can finally tell people about MS and not cry. It is unbeliveable how many people know someone that has MS when I talk to them. Talking about it helps create awareness.
I have a great dr. . who listens and has a personality. I think that is a big plus for dealing also. He has allowed me to get off all meds except for Avonex. Of course, everyone is different and MS can effect everyone differently.
I am only 36 and have to much to do in my life time. . I will fight to keep me going!!!! I am don't let MS control my life. . I control of my life. I hope that people that read this will see there is hope and know that it can get better. I can see my difference which has really helped me.
Laugh loud and often and enjoy life to the fullest.