Lisa_P
06-16-2005, 11:35 AM
I'm off to interview with social services about my MS today. Should I regret that I seemed to have started a "good spell" yesterday? Honest! I had so much energy yesterday and today looks hopeful. The bad part is that when I'm "up" I tend to forget the severity of symptoms that have been plaguing me for weeks. :(
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Lisa_P
06-16-2005, 02:09 PM
In the last two hours, I've just lost my good spell. Stumbling, slurring -- one would think I was drunk! :eek:
marion06095
06-16-2005, 02:21 PM
I'm sorry you are not feeling your best, but I was going to suggest Method Acting. :)
Lisa_P
06-16-2005, 05:13 PM
I was soooo convincing! But they can't help me until Social Security says I'm disabled. :P
So. Back to square one, I guess.
So. Back to square one, I guess.
lilc
06-16-2005, 10:40 PM
Lisa, Wordsmith, are you not able to work any more? SS can be such jackasses, have you applied with them?
Lisa_P
06-17-2005, 07:04 AM
I just started a new application on the 7th (I got denied last year and didn't appeal on the advice of a lawyer who said since I was working at home and making SOME money they'd turn me down, which was rights). Now I'm trying to see if I get to a neurologist for a re-evaluation before I'm too far into this process necause it IS the doctor's report that they (SSA) want to hear, right?
And, no, I'm not working. Except for a couple of weeks in March when I was visiting my mom. I'm actually too afraid to try to find a job now. This endless fatigue has "put me down" so often over the last 9 months or so that I don't think I could perform at a job. Work-at-home stuff... Most of that is a scam, right?
And, no, I'm not working. Except for a couple of weeks in March when I was visiting my mom. I'm actually too afraid to try to find a job now. This endless fatigue has "put me down" so often over the last 9 months or so that I don't think I could perform at a job. Work-at-home stuff... Most of that is a scam, right?
Lisa_P
06-18-2005, 12:11 PM
I feel guilty about not working because on my "good days" I'm pretty much back to normal and feel like I could conquer the world. Then BAM! the next day brings the awful fatigue et al. Maybe I'm just a "slacker."
lilc
06-20-2005, 08:47 PM
Yep, I bet we are ALL just slackers! Or perhaps agoraphobic. The hardest thing I do every day is to go out into the world. I MUST be insane, I am an ENFP (Meyer's-Briggs, if they still do that).
It is my understanding that the doctor's word is essential for SSI, but that no one is ever accepted on the first try. In fact, it seems almost no one gets SSI without the help of a lawyer. My best friend's husband hasn't been able to work in 15 years (RA), he has finally accepted the fact that he can't get anything without a lawyer. God Bless America...
I fully expect that, on your good days, you WILL conquer the world. You better keep trying!
It is my understanding that the doctor's word is essential for SSI, but that no one is ever accepted on the first try. In fact, it seems almost no one gets SSI without the help of a lawyer. My best friend's husband hasn't been able to work in 15 years (RA), he has finally accepted the fact that he can't get anything without a lawyer. God Bless America...
I fully expect that, on your good days, you WILL conquer the world. You better keep trying!
Lisa_P
06-20-2005, 08:56 PM
Aren't you lovely? :) Thanks!
Lisa_P
06-20-2005, 08:59 PM
I'm having a lot of problems getting into a program that will get me to a neuologist (Iowa SUCKS!), so I guess I have rely on my 2003 recods and the doctor SSA sets me up with.
lilc
06-20-2005, 09:28 PM
Iowa looks a lot like Heaven, as I recall. (Originally from MN, and loved "Field of Dreams".) Work the SSA doc. Use your lucid times to find the angle and write it down. The sad truth is that regular folks with regular problems don't register with government programs.
Lisa, most people don't get bent out of shape if they can't find the exact right words. They don't get that communication can be a legitimate livelihood (hey, why don't you do some filing?) and that one's ability to communicate effectively could impact their ability to endure the (sometimes) agony of taking a shower in the morning. Find the angle, Sweetie.
Comic relief: I worked at 3M for a while (I mention the company because, being from Iowa, you understand the "prestige" factor). One of the supervisors sent out a memo containing the word "enisheate". Spell-check could do nothing with that...
Finally, I have spent almost half an hour on this "Quick reply"!
Lisa, most people don't get bent out of shape if they can't find the exact right words. They don't get that communication can be a legitimate livelihood (hey, why don't you do some filing?) and that one's ability to communicate effectively could impact their ability to endure the (sometimes) agony of taking a shower in the morning. Find the angle, Sweetie.
Comic relief: I worked at 3M for a while (I mention the company because, being from Iowa, you understand the "prestige" factor). One of the supervisors sent out a memo containing the word "enisheate". Spell-check could do nothing with that...
Finally, I have spent almost half an hour on this "Quick reply"!
LaDeeDa
06-22-2005, 08:08 PM
I stopped working and after about 3 months I finally swallowed my pride and went to SSA appointment with all my records. Two months later I rec'd a letter telling me I'd been approved. I don't know how I was approved so quickly, especially since I'd been forewarned by everybody that this would be an near-impossible process. My neuro's report to them must've been a doozy! That, plus my stumbling, slurring, and having to have things repeated a couple of times before I could mentally grasp it - I was afraid they'd think I was drunk so that made me even more paranoid during the interview (and this was not the worst I've ever been). By the time I left I was in tears; feeling like a social slacker, badly needing the $$, and sooooo glad it was over.
marion06095
06-22-2005, 09:04 PM
Good for you! It took me 2 years to get SSD. That was one heck of a nice lump sum when it did come, though.
lilc
06-22-2005, 09:05 PM
Lisa, I've been worried all day that I gave the impression I thought "cognitive difficulty" was your only symptom. It's just the only one I've "discussed" with you.
LaDeeDa did it, I'm praying it will go as well for you.
LaDeeDa did it, I'm praying it will go as well for you.
Lisa_P
06-22-2005, 10:57 PM
Yes, that would be wonderful. My interview was via the telephone and I think I made a good impression. I wasn't slurring or stumbling, though! It was a fair day. We'll see.