EStevens64
06-18-2005, 12:06 PM
i have started a relapse appar
rantly. I posted on the board a couple of weeks ago regarding the vibrating and burning I was experiencing (both new sensations for me). The vibrating was just annoying, but the burning was a real pain. This week it hit pretty hard. I was unable to walk very well and my arms even got into the game as well. They had stayed out of it since my first attack in October. I am in the process of changing neurologists and have my first appointment on the 24th. I called to see if I could get in earlier but no luck so I had to go back to my regular neuro. He got me in the next day and we talked alot and he examined me. Guess what..he thinks I have MS...again! lol... You have to love it...he always says that and then the MRI comes back normal..he says no MS and then I dont see him again till I have another attack. This is my 4th attack since October. 4th DOCUMENTED and EXAMINED attack..they have seen me when i am normal and during attacks. On my last attack my neuro wasnt in so I went to my GP just to make sure I was examined and he could document it.
So off to the MRI again. I had it the same day as my dr visit yesterday. Isnt it crazy to be hoping that these great elusive spots that I know are there hiding away will actually reveal themselves. I think he is getting ready though. See I have had every test known to man done to rule out everything else. I went to a Rheumo who I swear ran 4 pages of tests on my blood and urine. I told this to my neuro and he wrote down the guys name. He said he would get those records.
I read up on the McDonald Criteria last night. It said 2 or more attacks (try 4 for me) and showing more than one sight. I have had 3 documented attacks of ON as well as these other attacks. This should be more than one locaton of my central nervous system, right? On top of that my BP is apparantly getting higher ...I dont know why though. He actually got to see my tremors, I had told him about them but he never witnesses them. I also now has L'Hermitts sign as well...it doesnt hurt though. My arm just buzzes. This should be sufficient.
I am hoping he finds something. I am tired or never knowing when it will hit again. Did anyone ever have this many attacks their first year? I just wish he would put me on something to stop them...or atleast slow them down. I tried the IVIG, it didnt appear to work since I did the 4 day last month only to relapse again this month. I was even hesitant to do them since I was doing so well!!!!
Anyway, I guess I will find out Monday what direction this will go. If it is normal he will just say..no ms on the phone and tell me he will see me in a month or so...(which has been the case in the past). Or he will actually get busy doing other testing. Obviously if he does the prior I am done with him. I will take my medical records, my mri films and go to the MS specialist and put him to work sleuthing.
rantly. I posted on the board a couple of weeks ago regarding the vibrating and burning I was experiencing (both new sensations for me). The vibrating was just annoying, but the burning was a real pain. This week it hit pretty hard. I was unable to walk very well and my arms even got into the game as well. They had stayed out of it since my first attack in October. I am in the process of changing neurologists and have my first appointment on the 24th. I called to see if I could get in earlier but no luck so I had to go back to my regular neuro. He got me in the next day and we talked alot and he examined me. Guess what..he thinks I have MS...again! lol... You have to love it...he always says that and then the MRI comes back normal..he says no MS and then I dont see him again till I have another attack. This is my 4th attack since October. 4th DOCUMENTED and EXAMINED attack..they have seen me when i am normal and during attacks. On my last attack my neuro wasnt in so I went to my GP just to make sure I was examined and he could document it.
So off to the MRI again. I had it the same day as my dr visit yesterday. Isnt it crazy to be hoping that these great elusive spots that I know are there hiding away will actually reveal themselves. I think he is getting ready though. See I have had every test known to man done to rule out everything else. I went to a Rheumo who I swear ran 4 pages of tests on my blood and urine. I told this to my neuro and he wrote down the guys name. He said he would get those records.
I read up on the McDonald Criteria last night. It said 2 or more attacks (try 4 for me) and showing more than one sight. I have had 3 documented attacks of ON as well as these other attacks. This should be more than one locaton of my central nervous system, right? On top of that my BP is apparantly getting higher ...I dont know why though. He actually got to see my tremors, I had told him about them but he never witnesses them. I also now has L'Hermitts sign as well...it doesnt hurt though. My arm just buzzes. This should be sufficient.
I am hoping he finds something. I am tired or never knowing when it will hit again. Did anyone ever have this many attacks their first year? I just wish he would put me on something to stop them...or atleast slow them down. I tried the IVIG, it didnt appear to work since I did the 4 day last month only to relapse again this month. I was even hesitant to do them since I was doing so well!!!!
Anyway, I guess I will find out Monday what direction this will go. If it is normal he will just say..no ms on the phone and tell me he will see me in a month or so...(which has been the case in the past). Or he will actually get busy doing other testing. Obviously if he does the prior I am done with him. I will take my medical records, my mri films and go to the MS specialist and put him to work sleuthing.
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