TriciaD
07-05-2005, 12:27 PM
:confused: Greetings everyone. Trusting you all are having a splendid day.
Wondering if anyone out there has or knows what could be wrong with me...
May 15 a sudden onset of cut vision, severe lightheadedness coupled with numbness and tingling in my face, and leftside extremites and general all over weakness.
ER physicians did a CAT Scan and Chest X-ray. Everything looked OK and they sent me home and told me to follow up with family physician. Two weeks later, the same scene played out, but this time I was kept in the hospital. A battery of tests were run to include an LP in which one test was slightly abnormal an MRI of the head to show a few lesions, an MRA which looked good, blood work that showed low potassium, EEG, EKG, and a host of other tests that I do not recall the names of. I was released in four days and told to follow up with my family physician.
I returned to work and one day later the same scene played out a third time. Symptoms included severe lightheadedness, numbness in my face and head, tingling of my neck and head and left side extremities and general all over weakness. I have also had headaches and general fatigue. I was given an IV steroid, neurontin was introduced and more tests were added. An MRI of the cervical spine was performed and a bulging disc was found. Also, more blood work showed that I could have a wheat allergy (Sprue). This will be confirmed when I have the small intestine biopsy later this week.
The neurologist treated me with cortisone and increased my neurontin up to 300mg 3 times a day. I still have symptoms most everyday, lasting anywhere from 10 minutes to4-5 hours. The numbness and tingling I can deal with, the lightheadedness is really disrupting my daily routine (like WORK). From reading other postings I see that it could be a deficiency of B12, folic acid, magnesium...or something autoimmune.
The first thing I thought was vasculitis of the CNS but both my doctor and the specialists said that was not the case...reason I considered that was I had been a user of caffiene, nicotine, ephedra and cold medicines, daily and sometimes all at the same time. (bad girl) Any help, thoughts or ideas are greately appreciated.
Wondering if anyone out there has or knows what could be wrong with me...
May 15 a sudden onset of cut vision, severe lightheadedness coupled with numbness and tingling in my face, and leftside extremites and general all over weakness.
ER physicians did a CAT Scan and Chest X-ray. Everything looked OK and they sent me home and told me to follow up with family physician. Two weeks later, the same scene played out, but this time I was kept in the hospital. A battery of tests were run to include an LP in which one test was slightly abnormal an MRI of the head to show a few lesions, an MRA which looked good, blood work that showed low potassium, EEG, EKG, and a host of other tests that I do not recall the names of. I was released in four days and told to follow up with my family physician.
I returned to work and one day later the same scene played out a third time. Symptoms included severe lightheadedness, numbness in my face and head, tingling of my neck and head and left side extremities and general all over weakness. I have also had headaches and general fatigue. I was given an IV steroid, neurontin was introduced and more tests were added. An MRI of the cervical spine was performed and a bulging disc was found. Also, more blood work showed that I could have a wheat allergy (Sprue). This will be confirmed when I have the small intestine biopsy later this week.
The neurologist treated me with cortisone and increased my neurontin up to 300mg 3 times a day. I still have symptoms most everyday, lasting anywhere from 10 minutes to4-5 hours. The numbness and tingling I can deal with, the lightheadedness is really disrupting my daily routine (like WORK). From reading other postings I see that it could be a deficiency of B12, folic acid, magnesium...or something autoimmune.
The first thing I thought was vasculitis of the CNS but both my doctor and the specialists said that was not the case...reason I considered that was I had been a user of caffiene, nicotine, ephedra and cold medicines, daily and sometimes all at the same time. (bad girl) Any help, thoughts or ideas are greately appreciated.
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Bethtree
09-07-2005, 08:51 PM
My daughter was just diagnosed with "Cerebral Folate deficency Syndrome" One of only 100 so far. Normal levels of Folic acid in the blood but low in the spinal fluid. Perhaps some type of metablic disorder in the transport system from the plasma to the cns. VERY few articles. Only discover with in the last 6 mths.