happycamper
02-27-2001, 05:30 PM
Has anyone who has a child with cf had your childs ssi taken away?
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ashlove
04-30-2001, 03:42 PM
My daughter was taken off ssi when I moved States due to an available local program, however she was recently taken off this program and I am reapplying for ssi she was taken off due to the fact that I make too much money (believe me they are crazy lol)
CBryant
05-28-2004, 05:48 PM
I'm new to the board and guess this post is a bit late but my daughter was taken off ssi because they said that she was medically maintained and wasn't in the hospital for a while so they no longer saw her as being disabled. Yea it sucks but thats our goverment.
Mr Lucky
05-30-2004, 02:02 AM
Yes, I fought to keep my kids on SSI for 10 years now. Everytime I would make too much money, they would cancel it and tell me that I had to pay all my deductables that would add up to $3000 a month. I had to separate from my wife and move out just so my kids could get there medications and so I could help make my kids life more comfortable by getting them the things that make them smile. It's all give and take.
Ratatosk
06-01-2004, 12:10 PM
A relative whose ex got ssi for supposed chronic fatigue syndrome got an SSI attorney and got benefits. The reason I said supposed chronic fatigue is because as soon as she got her benefits, she suddenly was cured.
We've thought about going the route of getting a SSI attorney, but at this point, we're managing fine with insurance from work and cutting back on entertainment costs & vacations. If one of us had to quit our jobs to help take care of ds, then it's something we would look into doing.
We've thought about going the route of getting a SSI attorney, but at this point, we're managing fine with insurance from work and cutting back on entertainment costs & vacations. If one of us had to quit our jobs to help take care of ds, then it's something we would look into doing.