brittanyparzych
07-25-2005, 02:56 PM
Hi I have a six month old little girl who cannot sit up unsupported, Her arms are stiff and she seems to have a hard time reaching for toys and sometimes her arms fly around like she cant control them. She has been to three doctors one ordered an MRI, the second told me to cancel MRI and scheduled head Xrays (which came back normal) and told me to take her to an eye doctor, the third doctor said cancel eye doctor and ordered the MRI which is next week, she told me my daughter may have a bleed in the brain or CP. The more I research the more I think it is CP. I go between crying and thinking about all the things she may not be able to do to wanting to research and figure out what I can do to help her. I need to talk to people about CP.
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Steffers2318
07-25-2005, 03:07 PM
I go between crying and thinking about all the things she may not be able to do to wanting to research and figure out what I can do to help her. I need to talk to people about CP.
Hi,
Well, of course no one really wants to have a child with a disability, but if she does has CP that doesn't mean she won't be able to have a good life. Each case varies depending on severity, but I'm sure someone here will be able to ease your mind and give you tips once you find out how involved your daughter's CP is.
Try not to worry too much, and let us know what the doctors say! :angel:
Hi,
Well, of course no one really wants to have a child with a disability, but if she does has CP that doesn't mean she won't be able to have a good life. Each case varies depending on severity, but I'm sure someone here will be able to ease your mind and give you tips once you find out how involved your daughter's CP is.
Try not to worry too much, and let us know what the doctors say! :angel:
bsjones
07-25-2005, 05:10 PM
britanny,
Try to take it one day at a time. Things are probably not as bad as you fear. The doctors didn't diagnose our son's CP until he was over 1 year old. I'm sure you are a good parent and that is on your daughter's side!
Try to take it one day at a time. Things are probably not as bad as you fear. The doctors didn't diagnose our son's CP until he was over 1 year old. I'm sure you are a good parent and that is on your daughter's side!
Freestyles
07-27-2005, 02:39 PM
Hi Britanny - Welcome aboard.
I'm sure that as a new parent this isn't the place you want to be.. I agree that the best approach is to take things one day at a time... I'm not sure why the doc would ask you to cancel the MRI - this is probably the best way to diagnose CP.
If the diagnosis is CP, I'd like to reassure you that a life with CP doesn't have to mean a bad life. Sure, life is a little different but in my opinion kids with CP make strong, determined and resiliant adults.
The focus at this stage should be on you - the parent. Surround yourself with positive and knowledgable people, this should include family who will support you through thick and thin as well as doctors PTs and OTs who will treat you well and listen to your concerns.
The bright side is that these good hearted medical staff is easy to come by in pediatric medicine if you live in a large metropolitan area this will not be a problem.. If you live in a small town knowledgable folks may be a little harder to come by.
As there are many adults with CP (myself included) on this board, we can give you some first hand experience on what it's like growing up - which I'd say is not a whole lot different from the average kid.
Let us know how things go.. We're here to support and advise you in any way we can.
FS
I'm sure that as a new parent this isn't the place you want to be.. I agree that the best approach is to take things one day at a time... I'm not sure why the doc would ask you to cancel the MRI - this is probably the best way to diagnose CP.
If the diagnosis is CP, I'd like to reassure you that a life with CP doesn't have to mean a bad life. Sure, life is a little different but in my opinion kids with CP make strong, determined and resiliant adults.
The focus at this stage should be on you - the parent. Surround yourself with positive and knowledgable people, this should include family who will support you through thick and thin as well as doctors PTs and OTs who will treat you well and listen to your concerns.
The bright side is that these good hearted medical staff is easy to come by in pediatric medicine if you live in a large metropolitan area this will not be a problem.. If you live in a small town knowledgable folks may be a little harder to come by.
As there are many adults with CP (myself included) on this board, we can give you some first hand experience on what it's like growing up - which I'd say is not a whole lot different from the average kid.
Let us know how things go.. We're here to support and advise you in any way we can.
FS
brittanyparzych
07-28-2005, 07:35 AM
Thank you everyone for the support will let you know when I get any info.
cmhottle
08-02-2005, 04:01 PM
Hello, my name is Connie and I have a 3 year old girl with spastic quad. cp. The docs didn't diagnose her until she was 18 months old, but has had therapy (OT & PT-speach) since she was 8 months old. I know what you are feeling right now, anger, pain, sadness, weakness, lots of; how could this happen to me, why, how will I do it, can I get her help, will she be like other kids, etc. Well I definitly don't have all the answers, but I can tell you this. I have been through these emotions all more than 100 times, it does seem to get alittle better when you find out what you can do for her. Just love her with all you have, and don't push her with therapy for your benefit do it for her (you can push to hard). And just remember she is just like anyother child, her muscles just don't all work the same. Keep that in mind and the fact that our children have a very special love they carry everywhere they go. God Bless! Hope things go well with the MRI. Connie
brittanyparzych
08-03-2005, 09:11 PM
We did the MRI today it seemed to go well. She had to be fully sedated so she is tired and vomited a couple of times today. The anathesiologist was really nice he said he didn't know because he wasn't a radiologist but there didn't appear to be anything obviously abnormal. we get results tommorrow hopefully everything is normal even though I know all they will do is rule out brain bleeds.