texflower
07-25-2005, 07:11 PM
Hi my first post here after reading for a week trying to find something similar.
I started having mild leg pain about 6 years ago. I ignored this pain for years thinking it had something to do with my scoliosis I was told I had (MRI says no.) Three years ago it go to the point where I quit working. Around Christmas 2004, I am in tears just going into the store for a gallon of milk. I am not managing just regular daily chores for myself now.
Example: This morning, I loaded the washer with the bedspread off the guest bed. Then loaded it into the dryer, made my breakfast (nothing major just scrambled eggs) I picked up a few items here and there and put them in their place. OK - Off to bed taking something to make me sleep just to get me out of this pain in both of my legs.
This is sad - my life should consist of more than just this??? I have seen so many different doctors, CT's MRI, some kind of needle test and on Aug 8th they want to do a muscle biopsy to send off to the Mayo Clinic.
My husband (bless his heart) does as much as he can for me and listens patiently to the point I feel ashamed. I can cry just over the thought of how much he has to care for me when I am only 40 years old and have raised 5 children. I want my life back where I can just jump up and paint a room or go walk in the park.
No other symptoms other than on my feet for more than half an hour and I am down UNTIL I sleep. The only thing that helps is sleep. Like I have told all of the doctors is somehow sleeping relaxes the muscles and when I wake I am fine till I move around again. Has anyone ever heard of something so simple but so hard?
I started having mild leg pain about 6 years ago. I ignored this pain for years thinking it had something to do with my scoliosis I was told I had (MRI says no.) Three years ago it go to the point where I quit working. Around Christmas 2004, I am in tears just going into the store for a gallon of milk. I am not managing just regular daily chores for myself now.
Example: This morning, I loaded the washer with the bedspread off the guest bed. Then loaded it into the dryer, made my breakfast (nothing major just scrambled eggs) I picked up a few items here and there and put them in their place. OK - Off to bed taking something to make me sleep just to get me out of this pain in both of my legs.
This is sad - my life should consist of more than just this??? I have seen so many different doctors, CT's MRI, some kind of needle test and on Aug 8th they want to do a muscle biopsy to send off to the Mayo Clinic.
My husband (bless his heart) does as much as he can for me and listens patiently to the point I feel ashamed. I can cry just over the thought of how much he has to care for me when I am only 40 years old and have raised 5 children. I want my life back where I can just jump up and paint a room or go walk in the park.
No other symptoms other than on my feet for more than half an hour and I am down UNTIL I sleep. The only thing that helps is sleep. Like I have told all of the doctors is somehow sleeping relaxes the muscles and when I wake I am fine till I move around again. Has anyone ever heard of something so simple but so hard?
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Administrator
07-26-2005, 01:53 AM
There are tools to start your own research found in the sticky post, on this board, called:
Some Starter Research Websites for All
Some Starter Research Websites for All
texflower
07-26-2005, 11:27 AM
Thank you, I will look over those sites as I have so many others. I have seen a roomatologist and a neruologist with each promising me they will find out what is wrong with me. The only thing they have found so far is my $$$.
janeslk
07-26-2005, 11:53 AM
Are you taking any prescription drugs? My husband had gradually increasing leg pain from taking Lipitor. Just a thought.
Administrator
07-26-2005, 06:19 PM
You have to actually use the research tools in the sites. Just reading them won't help.
Thanks.
Thanks.
flintrock
07-26-2005, 07:38 PM
Have you had a ultra sound to the legs? You may have some blockage.................
wesbob
07-27-2005, 12:50 PM
What is your age? How are your knees? Do your knees hurt? Is the pain in your calfs, or upper legs? Could be several things from bad arthritis in your knees with no padding left to keep your femur and your tib/fib from rubbing together. Major pain is caused by this. See an orthopedic doctor, especially if you have a history of arthritis or you are over 50. It could be vascular, how is your colesterol? Do you have heart disease? You could have a build up of plaque in your veins in your legs, same as our hearts in heart disease. You mention many tests, have they done vascular studies? Have you seen an orthopedic doctor. Sounds like you had an EMG, painful test but that would show if you had muscle problems, questionable. Do you take lasix? How is your potassium level? A low potassium can cause the very symptoms you describe. You see there are many things it could be. Try to direct your doctors, ask questions, you are the consumer, you have the right to make the docs speak to you so you can understand them. If they give you big words you cannot understand, tell them to say it again in "human" language. Docs should give you information so you can understand it. Take a tape recorder if you must and tell the doc you are recording him if he persists in speaking above you. They won't like that. It is so common for people to NOT understand what is going to be done to them. Medicine is not that hard to explain in laymans terms. Insist on it!!!