is edema particularly in face associated with any cancer.

Hi again Zoe... facial edema (or elsewhere) can happen with lymphoma. It can happen if lymphatic drainage is blocked.

Hey sorrell,

thanks. My family doc has told me he does not want to send me to any more specialists or for further tests as so far the specialists did not find anything. so i see my endo in a month and hes my last life line left really . and he seems like a good doc. but my family doc has basically said i have to live with evrything. hows your search going?

Zoe

hows your search going?

It's going nowhere at the moment. My endo is confident it's not an endocrine problem and I am starting to agree with him too. If it's not endocrine I figure that leaves cancer and autoimmune disease. And it doesn't fit with any autoimmune disease I've ever heard of.

I keep trying to figure out the facial edema too. I just had my drivers license renewed and kept staring at the new picture. I just can't get over how weird my face looks. It looks like I have mumps. Or like a chipmunk. I can't figure out what would cause that.

Hi honey,
since we spoke i have been in er twice, i had allergic drug reaction to anti depressants my doc gave me cause so unhappy cause of this. they gave me steriods to clear it up and thought that its either a connective tissue disease likw skeleroderma or possibly cancer?? But its so complictaed dont wnt to diagnose you in er. sometimes i think i just have serious infection that everyone just missed. my rash is like bleeding under the skin. I really dont care anymore.!! Lupus keeps coming up time and time again!
Ok heres a book that will help get you through get it off net by Linda Hanner coping with undiagnosed illness. i cany remember the title but put in a an amazon search.

Ok hope that helps at least. i cant drive or go to work or anything else....Im with you honey

Zoe x

yikes... sorry about your ER trips. Well, you're probably better off not taking the antidepressants anyway, since they usually have tons of side effects and the last thing you need is more mysterious symptoms when you're not sure where they're coming from.

I will look for that book, thanks!

Have you had a lymph node biopsy yet? I think you mentioned you have swollen lymph nodes. I just realized I have a lymph node that's been "swollen" for YEARS. It's been there so long I never thought about it or thought it would be connected to my current problems. I put "swollen" in quotes because it isn't like a normal "swelling." It is hard as a rock, feels like bone. It gets smaller and larger randomly. I think I should get it biopsied. I am looking for a new doctor now though since I've already had 2 of them tell me they have no idea what's going on.

We have so many similarities with our health problems... I wonder if it will turn out to be the same thing for both of us.

hi sorrell,

Well at least if i am just depressed they are not able to treat it with anti depressants now thats for sure! I have had quite a few adverse drug reactions since being sick. thats the thing when your not diagnosed your dealing with an unknown enemy so putting a drug into your body could be quite risky. have you looked up vasculatis too?
Cause that causes swelling i think the dermo i saw thought it was unlikely i was still suffering from an intitial drug reaction to minocycline in january ? said i needed one doctor to take me through everything. the last thing i needed was that drug reaction two days ago. i feel my family hate me for putting them through all this. thing is from talking to you you seem a really sensible girl not like someone who would think they had something badly wrong with them when they didn't. i am saying this because when it takes a long time to diagnosed and the tests aren't showing you begin to question your sanity!! thing is if i had not physically changed so much and didn't have wierd rashes swellings etc i could even perhap say to myself that the pain could be phycho symatic. but i have the visible signs of an illness and the depression was a result of being ill and not being able to be diagnosed. Linda Hanner had Lyme for six years before a diagnosis and she also talks about other people in her book from ms to cancer to drug interations and the trauma of not being diagnosed. i don't care what this is i just want it diagnosed. funny if we did have the same type thing though..

Keep me posted.