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jlbalcer
08-03-2005, 05:29 PM
My son had an appointment with his neuro today. The neuro has refered us to a neurosurgeon in St Louis for evaluation for the selective dorsal rhizotomy. I am looking for patients or parents that have gone through this procedure. It is a very intimidating surgery and recovery!!!!

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Steffers2318
08-03-2005, 06:54 PM
I had this when I was three...I don't know how much help I can be to you, other than to say I know they cut more nerves going to what was my "worse" side, and that side is now better than the other in terms of spasticity. I suppose I would not be as ambulatory now if I had not had the surgery. I had to go to therapy after it, where they strengthened muscles and helped me practice walking (this info per my mother :)). And ummmm, the scar was the length of my entire back after I had it, but is now very small and on my lower back (I'm almost 20).

Hope someone can give you some more detailed info.





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