Jonngo
08-10-2005, 04:01 AM
Mush, or should I say, the person formerly known as Mush.. are you out there?
Guess who? ;)
~Jonny
Guess who? ;)
~Jonny
Sponsor
trowftd3
08-13-2005, 01:24 AM
JJJOOOONNNYYY!!!!!!!!!!
You don't know how happy I was to see your post!
I've been thinking about you the past few days and wondering how you were managing? What's up?? What are you doing for your pain? Any breakthroughs?
I've got a new injury to add to the lung issues. My wrist started hurting from work. After two months of pt I went to an ortho who says my ulna is too long and I need to have surgery to shorten it because it's tearing cartilage in my wrist???!!HUH??
I had an mri and next is a nerve test and then a chat with the surgeon.
Not so sure I want to go through with that.
Anyway,,,,,,take care and good to see you're still kicking!~Mush
You don't know how happy I was to see your post!
I've been thinking about you the past few days and wondering how you were managing? What's up?? What are you doing for your pain? Any breakthroughs?
I've got a new injury to add to the lung issues. My wrist started hurting from work. After two months of pt I went to an ortho who says my ulna is too long and I need to have surgery to shorten it because it's tearing cartilage in my wrist???!!HUH??
I had an mri and next is a nerve test and then a chat with the surgeon.
Not so sure I want to go through with that.
Anyway,,,,,,take care and good to see you're still kicking!~Mush
Jonngo
08-13-2005, 04:03 AM
The news for your wrist is no fun! At least you've found a way to manage it! Is the surgery complex?
Things now are a complete 180 from how they were. After I left the joke that was my "treatment" at Hopkins, I floated a while, came down with bronchitis which turned into pnuemo... so that was a blast. I got over that with the help of a new plumno that sent me to St. Agnes Pain center here in Baltimore. Wow, THIS is what a real pain center should be. From the moment I started going, they covered EVERY possible aspect of my life. I immediately started once a week group classes, education about everything from dealing with insurance, meds, drs, family.. everything. I did a run with biofeedback, learned some new tricks, went thru and am continuing with myofacial release massage, and started trying a few different combos of meds. I still go to my accupuncture once a week, which helps with the side effects of my meds, along with just makes me feel better.
I can't express how diffrerent of an experience this has been from Hopkins. I'm sure you remember my last days visiting this board, the misery I was in from being in and out of withdrawl due to the docs office losing or screwing up my scripts, all the rediculas garbage the office at Hopkins had been putting me thru as far as screwing up my appointmets, botching nerve blocks, etc.. I haven't had a SINGLE problem with the new pain place. They are just great! The goons at Hopkins shouldn't be allowed to touch living people. They put me in a place, both mentally and physcially that I NEVER want to be EVER again in my life. It's ironic that the place is supposed to reduce peoples pain and all they did was make it much worse! It has taken me months to get to a point where I can even talk about it. I'm sure you remember some folks here insisting that the problem had to be me, that I was instigating, abusing my meds, etc, etc... yeah.. that was def not the prob. As soon as I began treatment somewhere else, those problems simply disappeared. The folks at St. Agnes are kind and compassionate, not to mention a LOT more educated in pain related care than any other docs I've been to. I never have any errors with my scripts, my appointments are always on the days they are supposed to be (no more getting there and being told they forgot doc was at another office that day), and most importantly they listen to me.. I play an active role in my treatment and the direction of things that we try. The massage and biofeedback has made a huge difference and has really decreased the number of "bad days" I have.
I had an MRI the other day.. hehe boy that was wierd. They said that it SHOULDNT bother the titanium staples in my lung, but no.. it did. Nothing horrible, they just heated up and kinda almost like they wiggled. Nothing painful, just a wierd feeling.
Has there been any change in your conditions? Any luck with treatments?
They diagnosed things right now... the lesser, outer pain that I have they think is RSD, and the inner pain they think is from nerve damage and adhesions. We tried this IV bloodpressure med thats been shown to help with RSD, but didn't have any real effect. Since then we've been doing trigger point injections every other week, they've been doign a LOT of good.. reducing the outer pain almost to nothing. Until we started with those, I never realized just how much I would swell up on bad days. The difference was HUGE. Apparently that swelling was also putting pressure on nerves near my shoulder, which just made things worse during a flare up. As far as the more serious pain, we tried a few different things, opiate and non opiate, with so so results... then we tried Methadone. This med really has changed my life. It works on the pain better than ANYTHING I've ever tried. Pretty much no side effects after the first few days, and even then it was just some sleepyness that went away quickly. No foggy head, no getting sick... just pain relief.
I am so grateful that I've found the PM that I have. They've made such a difference in my life. I'm able to work full time again, get out more, and become a more stable person. I couldn't ask for more. After almost 4 years, I finally have a chance at a mostly pain free life again. I hope that you have as much luck as I have.
What kind of treatment are you getting right now? are you at a center, or being treated by just one doc? Have you had any other procedures done in the past few months?
good to talk to you again,
~Jonny
Things now are a complete 180 from how they were. After I left the joke that was my "treatment" at Hopkins, I floated a while, came down with bronchitis which turned into pnuemo... so that was a blast. I got over that with the help of a new plumno that sent me to St. Agnes Pain center here in Baltimore. Wow, THIS is what a real pain center should be. From the moment I started going, they covered EVERY possible aspect of my life. I immediately started once a week group classes, education about everything from dealing with insurance, meds, drs, family.. everything. I did a run with biofeedback, learned some new tricks, went thru and am continuing with myofacial release massage, and started trying a few different combos of meds. I still go to my accupuncture once a week, which helps with the side effects of my meds, along with just makes me feel better.
I can't express how diffrerent of an experience this has been from Hopkins. I'm sure you remember my last days visiting this board, the misery I was in from being in and out of withdrawl due to the docs office losing or screwing up my scripts, all the rediculas garbage the office at Hopkins had been putting me thru as far as screwing up my appointmets, botching nerve blocks, etc.. I haven't had a SINGLE problem with the new pain place. They are just great! The goons at Hopkins shouldn't be allowed to touch living people. They put me in a place, both mentally and physcially that I NEVER want to be EVER again in my life. It's ironic that the place is supposed to reduce peoples pain and all they did was make it much worse! It has taken me months to get to a point where I can even talk about it. I'm sure you remember some folks here insisting that the problem had to be me, that I was instigating, abusing my meds, etc, etc... yeah.. that was def not the prob. As soon as I began treatment somewhere else, those problems simply disappeared. The folks at St. Agnes are kind and compassionate, not to mention a LOT more educated in pain related care than any other docs I've been to. I never have any errors with my scripts, my appointments are always on the days they are supposed to be (no more getting there and being told they forgot doc was at another office that day), and most importantly they listen to me.. I play an active role in my treatment and the direction of things that we try. The massage and biofeedback has made a huge difference and has really decreased the number of "bad days" I have.
I had an MRI the other day.. hehe boy that was wierd. They said that it SHOULDNT bother the titanium staples in my lung, but no.. it did. Nothing horrible, they just heated up and kinda almost like they wiggled. Nothing painful, just a wierd feeling.
Has there been any change in your conditions? Any luck with treatments?
They diagnosed things right now... the lesser, outer pain that I have they think is RSD, and the inner pain they think is from nerve damage and adhesions. We tried this IV bloodpressure med thats been shown to help with RSD, but didn't have any real effect. Since then we've been doing trigger point injections every other week, they've been doign a LOT of good.. reducing the outer pain almost to nothing. Until we started with those, I never realized just how much I would swell up on bad days. The difference was HUGE. Apparently that swelling was also putting pressure on nerves near my shoulder, which just made things worse during a flare up. As far as the more serious pain, we tried a few different things, opiate and non opiate, with so so results... then we tried Methadone. This med really has changed my life. It works on the pain better than ANYTHING I've ever tried. Pretty much no side effects after the first few days, and even then it was just some sleepyness that went away quickly. No foggy head, no getting sick... just pain relief.
I am so grateful that I've found the PM that I have. They've made such a difference in my life. I'm able to work full time again, get out more, and become a more stable person. I couldn't ask for more. After almost 4 years, I finally have a chance at a mostly pain free life again. I hope that you have as much luck as I have.
What kind of treatment are you getting right now? are you at a center, or being treated by just one doc? Have you had any other procedures done in the past few months?
good to talk to you again,
~Jonny
trowftd3
08-13-2005, 01:45 PM
I am so happy for you!
You would think that the people at Hopkins would know there stuff but I guess reputation doesn't count for everything. It sounds like you have found the perfect place for you. That is so great. I can't express in words how happy I am. I was really worried about you and where you were headed. It's amazing how a little understanding and pain control can clear your head and change everything. Am I right?
I wish I had such a place to go to here. I've been to the pain clinic which is run through the UW (WA). It's a big research hospital with a rep like Hopkins so you'd think they could help me but...no. I'm still waiting for a diagnosis. It's been almost three years of waiting. I haven't tried anything new since the last time we talked. I don't know what the future holds for my pain management.
I just take my meds and on bad days try to get to the beach or out on my boat and listen to alot of music! It helps a lot.
I do think my pain may be generated from my back. I moved a hutch this summer and I could feel the pain I had in my back move down like a crack in a windshield to another spot. I thought it would go away but it has remained. So, maybe if I can mess my disc up some more I can get treatment. I still want to go see another pulmonologist outside my docs circle and have them rerun some tests.
The wrist surgery seems to be pretty intense. They cut the ulna in half and remove a section of it and then screw it back together with a metal plate!
I'm not so sure I'm ready for that. I'd pretty much lose my job since I'm only part-time. I was so hard for me to get to the point where I could work and I'm still hiding my 'condition' from them...I'd hate to lose ground.
Are you back working at your old job?? How's the housing situation? The girlfriend?
Again, I'm so glad you're doing so well! Take care, ~Mush
You would think that the people at Hopkins would know there stuff but I guess reputation doesn't count for everything. It sounds like you have found the perfect place for you. That is so great. I can't express in words how happy I am. I was really worried about you and where you were headed. It's amazing how a little understanding and pain control can clear your head and change everything. Am I right?
I wish I had such a place to go to here. I've been to the pain clinic which is run through the UW (WA). It's a big research hospital with a rep like Hopkins so you'd think they could help me but...no. I'm still waiting for a diagnosis. It's been almost three years of waiting. I haven't tried anything new since the last time we talked. I don't know what the future holds for my pain management.
I just take my meds and on bad days try to get to the beach or out on my boat and listen to alot of music! It helps a lot.
I do think my pain may be generated from my back. I moved a hutch this summer and I could feel the pain I had in my back move down like a crack in a windshield to another spot. I thought it would go away but it has remained. So, maybe if I can mess my disc up some more I can get treatment. I still want to go see another pulmonologist outside my docs circle and have them rerun some tests.
The wrist surgery seems to be pretty intense. They cut the ulna in half and remove a section of it and then screw it back together with a metal plate!
I'm not so sure I'm ready for that. I'd pretty much lose my job since I'm only part-time. I was so hard for me to get to the point where I could work and I'm still hiding my 'condition' from them...I'd hate to lose ground.
Are you back working at your old job?? How's the housing situation? The girlfriend?
Again, I'm so glad you're doing so well! Take care, ~Mush
Jonngo
08-13-2005, 09:08 PM
I ended up leaving my old job, right now I'm doing some recording on the side, while looking for a full time job. I have a little place now with my girlfriend, we got away from the roommates from hell, thankfully! My girlfriend is doing really well, she recently started a new job which she's loving. We're thinking about moving out west in a year or so. Both of us just really don't have anything really keeping us here and we could use a change of scenery.
That really stinks that they haven't made a definate answer as to what they think is causing your pain. What med(s) do they have you on now? I forgot to mention that I've also started taking a low dose of zanaflex from time to time in addition to my methadone. It helps almost like a BT med... reduces pain during flare ups.
What exactly caused your wrist problem? Is it just a strain injury or something thats defective or damaged in your hand?
Good to talk to you again,
~j
That really stinks that they haven't made a definate answer as to what they think is causing your pain. What med(s) do they have you on now? I forgot to mention that I've also started taking a low dose of zanaflex from time to time in addition to my methadone. It helps almost like a BT med... reduces pain during flare ups.
What exactly caused your wrist problem? Is it just a strain injury or something thats defective or damaged in your hand?
Good to talk to you again,
~j
trowftd3
08-14-2005, 02:09 AM
Where out West are you thinking???
The only problem with that is leaving your near perfect pain managment gig.
Do you really want to take your chances when things are going so well for you now? I'd be scared after what you've already been through.
I'm on oxycontin and percocet. I'm due for another bump up when I go to the doc next. I hate telling her it's not working anymore. I'm always afraid she'll say "sorry, time to discontinue those meds" when they work pretty well for me. I've just read too many horror stories! The oxycontin inquisition hasn't quite hit here like it has back East although I noticed a sign today at a pharmacy that said "oxycontin only by special order".
Last month in Ore some 17yr olds were admitted to the hospital after overdosing on methadone. The news mentioned that it's increasingly being used for pain management and them went into a story about the meth problem in Oregon. I'm sure 99% of the people who watched it made no distinction between methadone and methamphetamine(which is a big problem here). Just another hurdle for patients with chronic pain. Aargh!
The wrist issue is apparently something I was born with but has been aggrivated by repetitive stress. I'm sure workman's comp will refuse to pay because of this. I work at a library and love my job and was really hoping to get to move up in the system to a job with benefits and such. We'll see how it all pans out. It feels pretty good this week....maybe it will just go away...lol.
More questions....ok what is the difference, pain wise, with rsd and nerve damage? I guess I'll have to read more on rsd. But, for you, how do they feel different? I'm glad that you have so many options that are helping you. I did a round of trigger point injections and they did nada.
Enough rambling....it's late....take care. ~Mush
The only problem with that is leaving your near perfect pain managment gig.
Do you really want to take your chances when things are going so well for you now? I'd be scared after what you've already been through.
I'm on oxycontin and percocet. I'm due for another bump up when I go to the doc next. I hate telling her it's not working anymore. I'm always afraid she'll say "sorry, time to discontinue those meds" when they work pretty well for me. I've just read too many horror stories! The oxycontin inquisition hasn't quite hit here like it has back East although I noticed a sign today at a pharmacy that said "oxycontin only by special order".
Last month in Ore some 17yr olds were admitted to the hospital after overdosing on methadone. The news mentioned that it's increasingly being used for pain management and them went into a story about the meth problem in Oregon. I'm sure 99% of the people who watched it made no distinction between methadone and methamphetamine(which is a big problem here). Just another hurdle for patients with chronic pain. Aargh!
The wrist issue is apparently something I was born with but has been aggrivated by repetitive stress. I'm sure workman's comp will refuse to pay because of this. I work at a library and love my job and was really hoping to get to move up in the system to a job with benefits and such. We'll see how it all pans out. It feels pretty good this week....maybe it will just go away...lol.
More questions....ok what is the difference, pain wise, with rsd and nerve damage? I guess I'll have to read more on rsd. But, for you, how do they feel different? I'm glad that you have so many options that are helping you. I did a round of trigger point injections and they did nada.
Enough rambling....it's late....take care. ~Mush
Jonngo
08-15-2005, 05:58 PM
Well I guess I spoke too soon. Just got a phone call from my PM center. Apparently, they screwed with the head Docs contract and now the whole center is closing, and none of the individual docs can continue writing scripts or treating the patients. I'm being referred to a privte practice PM doc, apparently my doc used to work with this doc that I'm being referred to. So now, I'm terrified. What if this new doc just decides in his infinite wisdom to change my otherwise perfect pain regimen?! This is just typical... as SOON as I FINALLY find something that's actually working, no more doctor BS, kind compassionate staff, it's all RUINED because of politics. UGH! I'm SO PISSED!
So now, there apparetnly is a month and change wait to even see this doc, so I have one more appointment with my existing PM place to get one more RX, then to wait a month after that to get in with the new PM. I sure as heck hope he doesn't pull "no RX on first visit" crap, because I'll be done for.
*sigh* that'll teach me to be painfree.
~jF
So now, there apparetnly is a month and change wait to even see this doc, so I have one more appointment with my existing PM place to get one more RX, then to wait a month after that to get in with the new PM. I sure as heck hope he doesn't pull "no RX on first visit" crap, because I'll be done for.
*sigh* that'll teach me to be painfree.
~jF
trowftd3
08-16-2005, 02:10 AM
SH**!!!!
I'd be pissed too. I was just charging the batteries for my camera...so I could take your picture as the 'poster child' for perfect pain management!!LOL
Screwed with his contract how?? At least it's not the drug inquisition and a jail sentence. The opiate fear hasn't quite reached us here, we're too busy fighting meth labs.
Dang, Jonny! That's just so unfair. How many good months did you get?
I'd try and get as much info from them as possible that had your game plan and how great it was working for you.
I agree, it's that 'infinite wisdom' that you have to fear!
Do you take anything for breakthrough? If so, I'd be hoarding it now.
I'll be thinking positive thoughts for you(and all the others who will be abandoned) and your new pm doc. You deserve more than one dose of good karma. I guess now you have no excuses for staying there. Time to join us in the wild, wild west!!LOL
Hang in there and try to stay positive. ~Mush
...how DARE you be pain-free
I'd be pissed too. I was just charging the batteries for my camera...so I could take your picture as the 'poster child' for perfect pain management!!LOL
Screwed with his contract how?? At least it's not the drug inquisition and a jail sentence. The opiate fear hasn't quite reached us here, we're too busy fighting meth labs.
Dang, Jonny! That's just so unfair. How many good months did you get?
I'd try and get as much info from them as possible that had your game plan and how great it was working for you.
I agree, it's that 'infinite wisdom' that you have to fear!
Do you take anything for breakthrough? If so, I'd be hoarding it now.
I'll be thinking positive thoughts for you(and all the others who will be abandoned) and your new pm doc. You deserve more than one dose of good karma. I guess now you have no excuses for staying there. Time to join us in the wild, wild west!!LOL
Hang in there and try to stay positive. ~Mush
...how DARE you be pain-free
Jonngo
08-16-2005, 08:02 PM
Not really sure what led up to the head doc leaving, other than his coworkers saying that it was def. the hospitals fault. bleh.
Finally got my Comcast Internet back up, it had been down today. Been waiting for some E-Mails with info on what's going on with this.
Just have to wait for my last appointment with my existing pain center on the 1st, I'm going to get them to tell me exactly what to expect with the new doc. I don't use any BT meds really... I have zanaflex that I take in the evenings when things get achey, helps ease things by loosening up my muscles, which seems to help... but other than that, I just use my methadone for pain. Heh, with the response that I've gotten from just about every other doc that I've told that I'm on methadone, I hope this doc even has a clue. I've had to EXPLAIN its use to these other docs! yikes! "No, doctor, I'm not on it because I'm a heroin addict... duh."
Ah well, back to my E-Mails.
~FandangoJon
Finally got my Comcast Internet back up, it had been down today. Been waiting for some E-Mails with info on what's going on with this.
Just have to wait for my last appointment with my existing pain center on the 1st, I'm going to get them to tell me exactly what to expect with the new doc. I don't use any BT meds really... I have zanaflex that I take in the evenings when things get achey, helps ease things by loosening up my muscles, which seems to help... but other than that, I just use my methadone for pain. Heh, with the response that I've gotten from just about every other doc that I've told that I'm on methadone, I hope this doc even has a clue. I've had to EXPLAIN its use to these other docs! yikes! "No, doctor, I'm not on it because I'm a heroin addict... duh."
Ah well, back to my E-Mails.
~FandangoJon
trowftd3
08-27-2005, 04:29 PM
Sorry, actually got to go camping for awhile. It was soooo nice to get away.
It is scary how little doctors know about chronic pain, methadone and the lot.
I had to go see a different doc because all of the sudden my meds weren't working and I knew I was taking way too much for breakthrough....get to see my doc on Monday and hope all is well.
Gotta go back to work. ~Mush
It is scary how little doctors know about chronic pain, methadone and the lot.
I had to go see a different doc because all of the sudden my meds weren't working and I knew I was taking way too much for breakthrough....get to see my doc on Monday and hope all is well.
Gotta go back to work. ~Mush
trowftd3
08-28-2005, 03:11 PM
What have you heard? What kind of doc is this new guy?
Since it sounds like you have a good relationship with your current doc I would lay all your fears on the table and see what they say.
Ask, "Does this guy know anything about methadone? Does he prescribe it for chronic pain? Is he going to try anything funny?"
Hang in there and let me know how it turns out.~Mush
Since it sounds like you have a good relationship with your current doc I would lay all your fears on the table and see what they say.
Ask, "Does this guy know anything about methadone? Does he prescribe it for chronic pain? Is he going to try anything funny?"
Hang in there and let me know how it turns out.~Mush
Jonngo
08-28-2005, 07:41 PM
Other than just a "heads up" about the situation, I've gotten little other information. I don't think they are intentionally keeping me in the dark or anything, I'm sure they are just VERY busy trying to find the right doc for each of thier soon to be former patients. I have my last appointment and Rx coming up on Thursday. I'm going to do pretty much just what you suggest, just be frank about the situation, explain that I've been through the "doctor shuffle" before, and that the last time I went through it, it landed me in the hospital from withdrawl and doubled over in pain for 3 months.
I'm going to ask pretty straitforward questiions to them, about continuing my current treatment and making sure that it won't be changing.. I mean... everything that we're trying now has just been working so darn well, it would really just be stupid to stop now.
I'm not really going to settle for anything less than a promise that I'm not going to walk into my first appointment with the new doc and get some stupid lecture about being an addict and end up getting yanked off meds for no logical reason AGAIN!
When I first found out about losing my doc, it really threw me for a loop. I had finally gotten into a comfortable place; finally a stable and constant pain med regimen, phys therapy, etc... and then to just have everything just END for the stupid reason of contract issuses.. I lost a lot of sleep over it. At this point, there simply isn't a damn thing I can do about it, so it's just best not to worry. I'm going to say my peace on Thursday and just put my faith in the 1 good doc that I've had in my 3+ years of this nightmare. I really don't think that she would put me into the hands of a doc that would do something to jepordize all the progress that she's seen me make... at least I PRAY that she won't. Let's just hope the new guy doesn't play the Rx hide and seek like Hopkins did! ;)
So until Thurs I'm just going to spend my time job hunting and crossing my fingers.
So you went camping? That's awesome! Where did you go? What kind of things did you do while you were there? I've promised myself (and my girlfriend) that we're going to get away for a few days to this great park about 2 hours from here before the weather gets to cold. I love being in those mountains in the fall, watching all the leaves change!
As a precaution, I've started putting aside 1 or 2 of my 9 daily meds (3 pills per dosing) just for a rainy day... at the very least until I get the existing doctors WORD that she's already talked to Dr. New Guy, and that he's prepared to give me an Rx on the first visit. Of course, I should prolly know better, being that was what I was told after leaving Hopkins. Talked to my gp, was told that the pain doc he wanted me to go to was going to Rx when I saw her, discontinued hopkins for that doc, got there, was given a lecture and told that my pain was in my head, my diagnoses (sp) were all wrong, that I "can't have pain the way I decribe it"... so maybe I SHOULD keep putting aside those meds!
This weekend my girlfriend and I have kept ourselves busy by making huge signs with anti-war/anti-Bush slogans on them... we're posting them tonight on some nearby bridge/overpass type places along with some smaller signs at intersections. We're having a bunch of people over next weekend to help us crank out a whole bunch to blanket the area with. Yay! :)
The weather here has been quite a bit cooler and less humid lately, which has been helping me feel better. Have things cooled down where you are? How have you been feeling? Let me know how your appointment goes tomorrow!
~Jonny
I'm going to ask pretty straitforward questiions to them, about continuing my current treatment and making sure that it won't be changing.. I mean... everything that we're trying now has just been working so darn well, it would really just be stupid to stop now.
I'm not really going to settle for anything less than a promise that I'm not going to walk into my first appointment with the new doc and get some stupid lecture about being an addict and end up getting yanked off meds for no logical reason AGAIN!
When I first found out about losing my doc, it really threw me for a loop. I had finally gotten into a comfortable place; finally a stable and constant pain med regimen, phys therapy, etc... and then to just have everything just END for the stupid reason of contract issuses.. I lost a lot of sleep over it. At this point, there simply isn't a damn thing I can do about it, so it's just best not to worry. I'm going to say my peace on Thursday and just put my faith in the 1 good doc that I've had in my 3+ years of this nightmare. I really don't think that she would put me into the hands of a doc that would do something to jepordize all the progress that she's seen me make... at least I PRAY that she won't. Let's just hope the new guy doesn't play the Rx hide and seek like Hopkins did! ;)
So until Thurs I'm just going to spend my time job hunting and crossing my fingers.
So you went camping? That's awesome! Where did you go? What kind of things did you do while you were there? I've promised myself (and my girlfriend) that we're going to get away for a few days to this great park about 2 hours from here before the weather gets to cold. I love being in those mountains in the fall, watching all the leaves change!
As a precaution, I've started putting aside 1 or 2 of my 9 daily meds (3 pills per dosing) just for a rainy day... at the very least until I get the existing doctors WORD that she's already talked to Dr. New Guy, and that he's prepared to give me an Rx on the first visit. Of course, I should prolly know better, being that was what I was told after leaving Hopkins. Talked to my gp, was told that the pain doc he wanted me to go to was going to Rx when I saw her, discontinued hopkins for that doc, got there, was given a lecture and told that my pain was in my head, my diagnoses (sp) were all wrong, that I "can't have pain the way I decribe it"... so maybe I SHOULD keep putting aside those meds!
This weekend my girlfriend and I have kept ourselves busy by making huge signs with anti-war/anti-Bush slogans on them... we're posting them tonight on some nearby bridge/overpass type places along with some smaller signs at intersections. We're having a bunch of people over next weekend to help us crank out a whole bunch to blanket the area with. Yay! :)
The weather here has been quite a bit cooler and less humid lately, which has been helping me feel better. Have things cooled down where you are? How have you been feeling? Let me know how your appointment goes tomorrow!
~Jonny
Jonngo
08-31-2005, 01:56 AM
Uh.. my stupid Comcast Email was down again today.
So annoying.. not being able to get Emails
you know?
~fandangojon
So annoying.. not being able to get Emails
you know?
~fandangojon
Jonngo
09-01-2005, 12:24 PM
Well had my last appointment with my existing PM doc... was told what was going to happen next... it's a lot worse than I thought. POOP!
Here we go AGAIN and AGAIN and AGAIN....
~j
Here we go AGAIN and AGAIN and AGAIN....
~j
trowftd3
09-01-2005, 01:13 PM
Do tell, do tell.
What's going on?? AARRRGGGH!! How can this be happening again???
It's so not fair. You don't deserve this crap.
Now to distract you for a moment.......we went camping at Deception Pass which is this beautiful place on Whidbey Island with a huge bridge overlooking the islands.Georgeous water and incredible sunsets.And thanks to our friend Mr. Bush(wink, wink) lots of fighter jets practicing from the nearby navy base! We did lots of hiking(which I could never do without my medication)and looking for agates on the beach. Some fishing and crabbing too. My husband is a fish-a-holic. He spends every day possible out on puget sound in his boat!
Whenever I'm having a particularly crappy day I go to the water to distract myself(if the music isn't working). I use music on a daily basis....I'd be a massive stressball without it!!!LOL
Take care and let me know how you are. Don't give up hope!~Mush
What's going on?? AARRRGGGH!! How can this be happening again???
It's so not fair. You don't deserve this crap.
Now to distract you for a moment.......we went camping at Deception Pass which is this beautiful place on Whidbey Island with a huge bridge overlooking the islands.Georgeous water and incredible sunsets.And thanks to our friend Mr. Bush(wink, wink) lots of fighter jets practicing from the nearby navy base! We did lots of hiking(which I could never do without my medication)and looking for agates on the beach. Some fishing and crabbing too. My husband is a fish-a-holic. He spends every day possible out on puget sound in his boat!
Whenever I'm having a particularly crappy day I go to the water to distract myself(if the music isn't working). I use music on a daily basis....I'd be a massive stressball without it!!!LOL
Take care and let me know how you are. Don't give up hope!~Mush