Our daughter is 23 and has had abnormal paps ranging from ASCUS to currently mod-severe dysplasia over the past few years. She's recovering from her second cone (first one done 1-1/2 years ago). She's had cryos & colp w/biopsies. All biopsies (for cones and colp) have been normal. The Dr says there are no visible lesions (thus the cones). We are concerned about the progression of the abnormal cells. We know the chances of her having vaginal dysplasia is very rare, but she does have high-risk HPV (with 16 & 18 markers). Does anyone have any insight into where we should go from here? She's been seeing a ob/gyn and we are ready now to get a referral to a onc/gyn. We would appreciate any information!

So sorry to hear about your daughter....I feel for anyone who has to go through this. I am also 23 years old. I was diagnosed with moderate (at first) dysplasia in June/July of 2004. I had my first surgery which was a LEEP in August, 2004. From what he had taken during my LEEP surgery he called me back in October/November and said that it has gone from moderate to severe and that we would need to do surgery again. I had my 2nd LEEP in December of 2004. Didn't even really have time to completely heal before they did the 2nd one. Again, he called me a few weeks after the surgery and told me that it was still severe and he was sending out to pathologist. They (pathologist) said that it was precancerous. My doc (at the time) directed me to seek more opinions. I went to 3 different docs., and now have the best OB/Oncologist in Town. I needed my 3rd sugery in May. The 3rd one was a Laser surgery. They (docs) wanted to wait a few more months for it to heal completely before they went in there and did surgery again. And we're talking about an ob/onc who told me he was 100% sure that I would be cured after that. What a crock that was b/c I went there last month and guess what...I need a 4th laser surgery which is scheduled for next Monday (Aug. 22nd). I don't know of anyone who has had as many surgeries as I. And quite frankly I am scared....very scared as well as very sad. There is not one day that goes by that I do not cry. I cry whenever I can on my breaks from work...my lunch break and as soon as I walk out of the door to go home. All I have ever wanted was a child and now I'm not so sure that can happen. After my 2nd LEEP the doc told me that it wouldn't be hard for me to concieve but I will not be able to bear the weight of the child. The doc said that once the baby hits 2 lbs., I will lose it. Even before I start planning for a family I have to back to the hospital and have my cervix sewn shut. Sounds worse than the surgeries if you ask me. This way the baby will have no where to go. So there are options I guess. With me, however, going on a 4th one...I'm not too sure now. THey said I couldn't get pregnant anyway until the dysplasia was gone b/c the drastic change in cells can change the abnormal cells into cancer with one blink of an eye. And if that were to happen they would need to do a hysterectomy asap. Depending on how far along in the prenancy the baby may or may not make it.

So believe me...if anyone knows what it's like...that would be. Again, I'm so sorry for your daughter...no body should have to go through this. Please give her my wishes. Also, if you hear anything that I haven't told you could you please let me know. I'm always down to learn something new about this. If you need anything further, please let me know. I responded b/c no one has done so yet. That sucks. I posted and I see a lot of people reading it but no one is responding. It's making me a little upset. I basically begged anyone out there for advice...and everyone is just walking on by. Talk about helping. Well I hope, at least, I did for you guys and your daughter.

Thanks so much for responding. I check every day to see if there is a reply. It must be very upsetting to be so young, looking forward to having children, and seeing that it may be more troubling than you once thought. But my main concern for you, as for my daughter, is eliminating the risk for cancer. Please be careful not to let this get you too upset. I know that's easy for me to say, but your life is the most important thing. You are getting treatment, and maybe this next surgery will get all the abnormal cells. In my daughter's case, the doctor hasn't been able to pin-point where the abnormal cells are coming from.

Let me know how you're doing after your surgery next week. I'll be thinking about you.

Thank you so much. And I will surely get back to you after next week. I will be out for the week so I will not be near a computer. And that really sucks they dont know where the cells are coming from. To be honest with you, I really think it's the HPV. But it is my understanding that once you have HPV you have it for life...there really is no cure. So do we need to have these surgeries for the rest of our lives. Oh' God I hope not. Then we'll be adopting for sure (which really isn't even an option). I want my own. Something that looks like me. Has my attitude (well not really lol). Well if I were you I would be getting some more opinions. ASAP Don't let it go. Get as many other opinions and you possibly can. That's what I did and now my 3rd opinion...the OB/Onc is the one who has performed these last 2 well the last 1 and is doing the one on Monday. I hate how long the follow up time is though. Anything can happen in 3 months. Makes me so nervous and I hate playing the waiting game. It's always bad news when I go back anyway. Well I hope your daughter is feeling better and doing well, as well as yourself. May God bless you (even though I really don't believe). Ever since this has happened to me I went to church I prayed...and prayed and nothing. So right now I'm little unsure of Him. Well I will be talking to you soon. And thank you for your thoughts :angel: Big hugs to you and your daughter :)