wannahelp
08-15-2005, 09:36 AM
My mother had chelation therapy for high levels of lead, bismuth, and cadmium. She had many side effects, with the worst being a full blown psychotic breakdown after the 5th treatment. She has suffered with depression in the past, and we didn't think the chelation caused this. Just yesterday, did I discover a couple of web sites, talking of the dangers of DMPS. I assumed her chelation was EDTA only, so I called my dad and had him look and see if he had any paperwork stating what was in the chelation solution and sure enough it included 250mg of DMPS. I was astounded. I remember my Mom saying that she had never experienced such feelings before, and it was the chelation making her like this.(felt like her brain was separating from her body, felt she was dying and welcomed it, sometimes couldn't find the bathroom) It's been 4wks since her breakdown and she is still suffering beyond words. I read patient testimonials of some who had taken the DMPS, and I could have been reading my Moms. The simularities were amazing. I'm outraged to say the least. Has anyone else had chelation?? I am also looking for any information that can help us with the next step...what will make her well, is there any treatment, ect....
Sponsor
DaVinci
08-15-2005, 12:18 PM
A little background: My boy's autistic and I'm using the DAN(Defeat Autism Now) protocol, and in the world of autism, chelation is one of many many options to help our children. Many parents believe that their children displayed autistic characteristics after being injected with the MMR vaccine.
The first step of the protocol is to see if there are any deficiencies ie. vitamin, minerals, amino acids, EFAs etc. Also to see if there are any obvious or not so obvious food allergies. And a hair analysis is done to see if there is toxic overload(mercury, lead and aluminium are the major culprits here).
The persons system is then corrected as much as possible ie. add needed vits, aminos etc; eliminate allergic foods etc.
A test is then done to see if their bodies can withstand chelation ie are they strong enough.
As far as I know the Di-Sulfhydryl(DMSA) is the safest way to chelate(pill wise) and I wouldn't try anything stronger. And remember on days of chelation minerals should be taken after chelation not before or double up on minerals the next day. Chelatory agents not only take out the toxic metals but also the good minerals we need.
If your worried and rightfully so, look into the site evenbetternow, it has an even more gently way of chelating. :)
The first step of the protocol is to see if there are any deficiencies ie. vitamin, minerals, amino acids, EFAs etc. Also to see if there are any obvious or not so obvious food allergies. And a hair analysis is done to see if there is toxic overload(mercury, lead and aluminium are the major culprits here).
The persons system is then corrected as much as possible ie. add needed vits, aminos etc; eliminate allergic foods etc.
A test is then done to see if their bodies can withstand chelation ie are they strong enough.
As far as I know the Di-Sulfhydryl(DMSA) is the safest way to chelate(pill wise) and I wouldn't try anything stronger. And remember on days of chelation minerals should be taken after chelation not before or double up on minerals the next day. Chelatory agents not only take out the toxic metals but also the good minerals we need.
If your worried and rightfully so, look into the site evenbetternow, it has an even more gently way of chelating. :)
greensky
08-15-2005, 05:31 PM
Yes I have had some 20-30 treatments with IV EDTA. He also added C vitamin, but not DMPS. I had no adverse reaction at all. But I also got no or very little benefit from the Chelation. My hair test actually looked ok when we started, and we did the treatments just to try something, even though my symptoms aren’t typical for what EDTA treatments are used for. So I wouldn't say my lack of benefits count against EDTA.
sneezydiva
08-15-2005, 10:35 PM
Has she been to a doctor and had bloodwork done? Many Vitamin and Mineral deficiencies can cause depression and psychosis symptoms. I don't know anything about chelation, but if the above post is true, about it taking out the good with the bad, then it seems likely your mother might have a vitamin/mineral imbalance.
notpain
08-15-2005, 11:42 PM
There are many horror stories of DMPS onllne. I know I wouldn't use it, but you also have to keep in mind that most people who are sucessful with therapies don't post, it's those of us looking for answers who are NOT sucessful or not yet cured of our ailments who post. It's my understanding DMPS is still considered "experimental" by the FDA. I'm not sure that means much in light of the many recent drugs that have been shown to cause harm which are or were once FDA approved. One has to listen to their body. I made a huge mistake listening to my doctor and not my body regarding a prescription medication. He said to keep taking it and I did and I paid for that. Unfortunatley what is done is done. If you think the DPMS caused the problems then don't do it again and figure out how to best recover from that. As mentioned don't rule out other problems. I find myself quick to jump the gun on things too, we get sick and immedicately expect the worse. I can not tell you how many times I have read "I think I am going to die" in the various posts. Keep your mom calm and do your research. Move forward.
In the furture you may want to investigate:
Garlic and Bears Garlic
Alpha Lipoic Acid
Cilantro (Chinese Parsley)
Chorella (must be pharmacetical grade)
and other "Natural" chealating agents.
Unless suffering severly in my opinon it's best to chealate slow and steady and under the supervision of someone who really knows about mineral balance. How does one find that "someone". That's a good question I can not answer. But you really need to find someone who can do this with substances that occur natrually in the body or are assimilated by the body via food.
Other Chealting agents include: Magnesium Citrate (Mild Chealtor but also a laxative effect) and Oops my brain just went to sleep on me. But I think you get the idea. Chealation can be done with foods and naturally occuring compounds. Gluthione is what I was thinking of. Anyways it may take longer with the foods and supplements but it is probably worth it. Chemicals don't belong in the body unless the problem is acute and there are no other alternatives. Just my 2 cents, but I'm not always right either.
In the furture you may want to investigate:
Garlic and Bears Garlic
Alpha Lipoic Acid
Cilantro (Chinese Parsley)
Chorella (must be pharmacetical grade)
and other "Natural" chealating agents.
Unless suffering severly in my opinon it's best to chealate slow and steady and under the supervision of someone who really knows about mineral balance. How does one find that "someone". That's a good question I can not answer. But you really need to find someone who can do this with substances that occur natrually in the body or are assimilated by the body via food.
Other Chealting agents include: Magnesium Citrate (Mild Chealtor but also a laxative effect) and Oops my brain just went to sleep on me. But I think you get the idea. Chealation can be done with foods and naturally occuring compounds. Gluthione is what I was thinking of. Anyways it may take longer with the foods and supplements but it is probably worth it. Chemicals don't belong in the body unless the problem is acute and there are no other alternatives. Just my 2 cents, but I'm not always right either.
wannahelp
08-16-2005, 10:26 AM
Thank you for your inputs. Her treatments were every other week. The week in between she was given iv of several vitamins and supplements. I've researched the DMPS too, and it's very disturbing. I believe this has been the culprit for her. Anyway, she is not going to have any more of it. From what I can gather she should have been given the DMSA(captomer) taken every other day. Slower, it's FDA approved, cheaper, safer, and would have been more beneficial. Her doctor claims the DMPS is safe. Sorry, but I think she needs to do some more research. Mom takes a slew of supplements every day, including the glutothione(not sure how to spell). I think her doctor means well, and she was very understanding yesterday afternoon when we talked to her, and she promises to do all she can to help her get better, but I'm still looking for as much info as I can gather. High levels of lead in the body can cause depression, and this is why the chelation in the first place. My mom has suffered and been through so much the last 10yrs. Antidepressants, benzos, pain pills, ECT treatments, and now this. We were hoping that a more natural approach would benefit her, and I still have hope that it will. Her doctor put her on a detox diet back in Dec., with lots of vit/supp, and it was amazing how much better she was after just one month. She was looking and acting like my mom again until this chelation began. I'm not speaking against chelation, because i think it can be a positive thing IF it is done by proper protocol, but I don't think DMPS has any place in it. (FDA is doing clinical trials for chelation now because of the many good studies it has shown) Keep in touch with me, and I'll keep you posted on my mom.
SHMILY
08-17-2005, 01:28 PM
My husband took 30 EDTA chelation treatments about 4 yrs. ago and then started the once a month maintainence IV. He noticed a big difference and was able to get completely off his BP meds. (He was taking it for blocked arteries....he had previously had angioplasty and had several other arteries that had some blockage.) However he quit because it was hard for him to get off work for half a day. He has since had to go back on BP meds and does not feel as good. I am trying to get him to start back.
I went with him for most of his treatments and would talk to to the others about what it was doing for them. There was one lady sent there because her feet and toes were turning black because of diabetes and circulation and her doctor wanted to remove her toes and possibly her feet. Someone convinced her to try chelation first and you could just see the color coming back in her feet and toes after several treatments. She did eventually have to have a couple of toes removed but if she had not waited so long for treatment she could have saved them.
There were people that would come in on a walker and several treatments later would be on a cane........then they would come walking in on their own.
Get the book, Bypassing Bypass by Dr. Cranton..........very informative.
Now you do have to make some lifestyle changes for maximum benefits. Also be sure you get a doctor who is certified. Also take your treatments slow and don't rush them or you will not get the full benefit. You should take 2-3 hrs per treatment. Don't take your vitamins and minerasl on the day of your treatment but it is very important to take them every other day.
I just believe chelation therapy works if you get the full dose, don't rush you treatment time, make some lifestyle changes, and take good vitamins and minerals.
I went with him for most of his treatments and would talk to to the others about what it was doing for them. There was one lady sent there because her feet and toes were turning black because of diabetes and circulation and her doctor wanted to remove her toes and possibly her feet. Someone convinced her to try chelation first and you could just see the color coming back in her feet and toes after several treatments. She did eventually have to have a couple of toes removed but if she had not waited so long for treatment she could have saved them.
There were people that would come in on a walker and several treatments later would be on a cane........then they would come walking in on their own.
Get the book, Bypassing Bypass by Dr. Cranton..........very informative.
Now you do have to make some lifestyle changes for maximum benefits. Also be sure you get a doctor who is certified. Also take your treatments slow and don't rush them or you will not get the full benefit. You should take 2-3 hrs per treatment. Don't take your vitamins and minerasl on the day of your treatment but it is very important to take them every other day.
I just believe chelation therapy works if you get the full dose, don't rush you treatment time, make some lifestyle changes, and take good vitamins and minerals.
wannahelp
08-18-2005, 09:28 AM
shmily, I've read his web site. I also emailed him, and according to him the EDTA and DMPS should never be mixed together. He also feels that DMPS should not be used period. This is what started my search for information. I actually called our state medical board to see if there was a license required to used this drug, if permission was needed from FDA, and was a consent form to be signed from the patient. and can you believe they didn't have any idea????!! I guess I'll have to call the FDA.
That's some amazing results you spoke of. I hope your husband is better now. The chelation therapy was developed mostly for blocked arteries and to prevent bypass surgery. It also benefits the aging in several ways. The FDA is doing the clinical studies for this type of chelation now because of the positive studies it has shown. But there's a lot of bad reports on using it for detoxing trace minerals. I just think that there are a lot of doctors out there that are not properly trained and misinformed on the correct procedures to do this. I think this is the case with my mom. She was never informed that DMPS was an experimental drug and not approved by FDA, and was never given a consent form to sign. I just simply want people to do their own research before they ever try anything that they are not familiar with, and this includes any prescription meds they may be given. It seems like these days we have to place more trust in our own education than by simply trusting our doctors.
Lets keep this thread going, and help get the information out there. The positive and the negative. (by the way, my mom seems to be feeling a little better this week. I'll keep you all posted on her progress.)
That's some amazing results you spoke of. I hope your husband is better now. The chelation therapy was developed mostly for blocked arteries and to prevent bypass surgery. It also benefits the aging in several ways. The FDA is doing the clinical studies for this type of chelation now because of the positive studies it has shown. But there's a lot of bad reports on using it for detoxing trace minerals. I just think that there are a lot of doctors out there that are not properly trained and misinformed on the correct procedures to do this. I think this is the case with my mom. She was never informed that DMPS was an experimental drug and not approved by FDA, and was never given a consent form to sign. I just simply want people to do their own research before they ever try anything that they are not familiar with, and this includes any prescription meds they may be given. It seems like these days we have to place more trust in our own education than by simply trusting our doctors.
Lets keep this thread going, and help get the information out there. The positive and the negative. (by the way, my mom seems to be feeling a little better this week. I'll keep you all posted on her progress.)
SHMILY
08-18-2005, 04:33 PM
I asked my husband's chelation doctor if he knew if any of the heart doctors ever took chelation. He said that he was at a meeting in one of the large hospitals and he noticed the cardiologists were not there yet. He asked why and someone said they were in the next room taking their chelation. He said many of them took it but they gave it to themselves. Why would they want to ruin their own profession?
I just did a search on certified chelation doctors and found a site on doctors' testimonials that was good.
Most of them thought it was quackery until something happened to them or their family that traditional medicine wouldn't help and they would try it just to see if it worked. And when it did, many of them started giving the treatments.
If you just stop and be logical, when you have a blocked artery in your heart.....you most likely have other blocked arteries in other parts of your body. Bypass surgery just temporarily fixes the heart where chelation therepy treats the whole body. After bypass surgery you rarely have the same quality of life as before and there are no effects of chelation.
Before you take it you should research and know as much as you can about it , and be sure you have a doctor certified to give it. I'm sure that there are some quack doctors out there just like there are in any field. That.... and the heart doctors that don't want their profession ruined are what gives chelation the bad name.
Anyway, this is just my opinion.
I just did a search on certified chelation doctors and found a site on doctors' testimonials that was good.
Most of them thought it was quackery until something happened to them or their family that traditional medicine wouldn't help and they would try it just to see if it worked. And when it did, many of them started giving the treatments.
If you just stop and be logical, when you have a blocked artery in your heart.....you most likely have other blocked arteries in other parts of your body. Bypass surgery just temporarily fixes the heart where chelation therepy treats the whole body. After bypass surgery you rarely have the same quality of life as before and there are no effects of chelation.
Before you take it you should research and know as much as you can about it , and be sure you have a doctor certified to give it. I'm sure that there are some quack doctors out there just like there are in any field. That.... and the heart doctors that don't want their profession ruined are what gives chelation the bad name.
Anyway, this is just my opinion.
notpain
08-25-2005, 09:59 PM
I have been getting Vitamin IV Drips and antibiotic drips and they seem to be helping. The clinic I go to does many chealation therapies for High Blood pressure patients, but I have not heard of any of them using DPMS. The people I have spoken to who have had the treatments for high blood pressure say it works and have not have bad reactions. I believe in IV therapy, but I would expect it's only as good as the formulas, expertise, and clinical experience of the doctor providing the treatment. Unfortunately we put our trust in physicians because we simply do not have the time, expertise or training to know about all the treatments ourselves. I will admit I have let them drip things into my body I am not competely sure of what is in the bag, but I'm also pretty desperate after a year of not getting help from Allopathic Physicans. I find it cruely ironic that many MD's turn to Therapies outside of what they would prescribe because they can not cure their own ailments within the scope of the pharmecutical remedies they would prescribe to you or I for the same problems.
wannahelp
08-26-2005, 07:00 AM
Notpain, what is an Allopathic Physician?
I agree with you about MD's. It seems that more MD's are trying more alternative methods these days, but be beware that a lot of them are not properly trained or certified for certain procedures. I've done a search of all Doctors in my surrounding area who are certified in chelation. I've emailed some of them with my question about the DMPS, and all have responded that it should NOT have been used on my mom. I was actually surprised that they responded. My moms doctor is not certified nor does she list any specialties in her profession, so all BEWARE, of who is treating you.
My mother is actually doing really well at this time. Thank God!
I agree with you about MD's. It seems that more MD's are trying more alternative methods these days, but be beware that a lot of them are not properly trained or certified for certain procedures. I've done a search of all Doctors in my surrounding area who are certified in chelation. I've emailed some of them with my question about the DMPS, and all have responded that it should NOT have been used on my mom. I was actually surprised that they responded. My moms doctor is not certified nor does she list any specialties in her profession, so all BEWARE, of who is treating you.
My mother is actually doing really well at this time. Thank God!
NancyH
08-27-2005, 01:29 AM
From what I"ve read in the naturopathic and conventional magazines, it's very controversial. Just recently an Autistic 5 yr old died while having treatment, was in paper yesterday. IT's unclear if the benefits out weigh the risks.
notpain
08-31-2005, 09:05 PM
Allopathic is just a reference to doctors designated as MD's. I have read quite a lot on Chelation due to my belief in amalgam toxicity. I am actually having EDTA in my Vitamin Drips now, they make me tired (but it could be any of the things in the drips making me tired). I read there have been several studies, but all small. Studies are great, but they need funding and who is going to fund large scale studies of low profit solutions? I have been to so many MD's that just say "I don't know" and tell me I'm fine that I've concluded for myself that alternative treatments are worth a try, especially those which have been in use for many decades in other countries. One can not know the benefits of the treatment until they try. This is not to say that research should be done and "certified" or "credentialed" physcicans should be found, but how can we know and do everything when we are ill. We go to doctors for their training and expertise, if we knew what we needed then we wouldn't need their training. As crazy as that may sound, sometimes we just have to hope and trust, and unfortunately sometimes it doesn't always work. I do not know the extent to which my IV Chealation is helping (Most of my drips are antibiotics and vitamins). But I trust the doctor doing it because she has helped a friend of mine survive cancer for nearly 5 years when the MD's had all but given up on her chances. I have recently seen a woman that came into the clinic in a wheel chair dying and walk out of the clinic 9 weeks later (not completely healthy) on her own feet after gaining 15lbs and ready to get back to her life. She still has a long road ahead of her, but after talking with her she told me she had been trying to get help for almost 20 years and had flown all over the country to visit the MD experts. So don't give up, just keep learning and trying. There is no one cure or method that works best for every person and every disease that is complicated. Don't give up on MD's, but keep in mind they are limited to treatments that they have studied and those treatments are typically DRUGS. There are those MD's as mentioned that realize drugs are not a cure to disease and when they or family members get sick and fail to respond to drugs look outside of Allopathic Medicene for answers. And when they find something that works then they become a believer. The best medicene is the medicene that works for you. It's scary to be chronically ill (I am still suffering, but feel slightly better after IV treatments) and hope to be "cured". Controversy is part of medicene, and disease is part of life. If only there were easier answers.
wannahelp
09-01-2005, 07:24 AM
Notpain, if I'm not intruding, would you mind telling me what you are having chelation for? I understand if you prefer not too. It sounds like you are really sick, since you are having antibiotics in your drip. I hope you have a full recovery, and feel better.
My mom is doing great at this time. She's been outside doing yard work for the first time in who knows how long. (this is her great love) She still has some bad days, but I think she is definitely on her road to recovery.
Our local paper is going to do an article on Chelation. I think this will be a postive and educational approach to get the message out to people that it is so important to do your own research on chelation and how to go about seeking for a properly trained/certified physician.
Have a great day, and take care, Ok?
My mom is doing great at this time. She's been outside doing yard work for the first time in who knows how long. (this is her great love) She still has some bad days, but I think she is definitely on her road to recovery.
Our local paper is going to do an article on Chelation. I think this will be a postive and educational approach to get the message out to people that it is so important to do your own research on chelation and how to go about seeking for a properly trained/certified physician.
Have a great day, and take care, Ok?
sneezydiva
09-01-2005, 02:28 PM
I find it cruely ironic that many MD's turn to Therapies outside of what they would prescribe because they can not cure their own ailments within the scope of the pharmecutical remedies they would prescribe to you or I for the same problems.
It's because even though many of them would like to give and recommend alternative treatments, they are afraid to. Many doctors who have done so, have had their licenses revoked, or at least suffered an attempt to have it revoked. Also, malpractice suits make many doctors afraid. If they ever were involved in a malpractice suit, giving alternative treatment that is not considered standard medical procedure would cause them to lose the case. In many ways, their hands are tied by their own insurance companies.
I'm not a conspiracy theorist, but medicine is big buisness, and the pharmaceutical companies are doing their best to keep traditional medicine from being integrated with alternative medicine.
It's because even though many of them would like to give and recommend alternative treatments, they are afraid to. Many doctors who have done so, have had their licenses revoked, or at least suffered an attempt to have it revoked. Also, malpractice suits make many doctors afraid. If they ever were involved in a malpractice suit, giving alternative treatment that is not considered standard medical procedure would cause them to lose the case. In many ways, their hands are tied by their own insurance companies.
I'm not a conspiracy theorist, but medicine is big buisness, and the pharmaceutical companies are doing their best to keep traditional medicine from being integrated with alternative medicine.
notpain
09-02-2005, 05:12 PM
chealation is to improve circulation. Antibiotics are to help reduce inflammation. No diagnosis as to specific pathogen. Know what it's not, but not what it is. So they are treating it in a shotgun fashion.