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mama8
08-20-2005, 07:13 PM
I was wondering if anyone here struggles with myoclonus? I have it in my arm/shoulder and am going through the diagnosis procedures. I also have other neuro issues (ataxia, cognitive problems, etc).

Currently, the neuros think it may be autoimmune in nature. I see an endocrinologist this next week, in Birmingham.

Thanks
Ramona

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marsii
09-15-2005, 08:31 PM
my daugter had opsoclonus myoclonus syndrome and it was related to Neuroblastoma. Myoclonus is symptom that warrants extensive work-up in my opinion including lab work, scans, and muscle studies. Hope this helps.





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