HEY FAMILY. :)

I'VE BEEN HAVING A TOUGH TIME, EMOTIONALLY AND PHYSICALLY, HENCE THE REASON FOR MY ABSENCE. I'VE MISSED U GUYS.

THE SHOTS DONT HURT THAT MUCH. I'M OFFCOURSE STILL TERRIFIED OF NEEDLES BUT I GOTTA DO IT. TONIGHT I'M INCREASEING MY DOSAGE. NOT LOOKING FORWARD TO IT BUT... WHAT CAN I DO? :confused:

MY BACK FEELS JAMMED CONSTANTLY AND IT JUST WONT LET UP. I'VE ALSO BEEN HAVING LOTS OF HEADACHES, BUT THANK GOD THAT IT'S NOTHING LIKE BEFORE. STILL LIMPING AND STAGGERING AROUND. THINK I NEED A SHIRT THAT SAYS "I'M NOT DRUNK, I HAVE MS!!!" PINS AND NEEDLES AND THE BURNING FEET SENSATION HAVE RETURNED.

SAW NEURO LAST THURSDAY, GOT MORE MEDS WHEEEEEEEE!!!! MY BLADDER IS NOW SERIOUSLY ACTING UP SO WAS GIVEN SOMETHING FOR THAT TOO.

I'VE JUST BEEN FEELING EXTREMELY EXHAUSTED AND I DONT EVEN DO ANYTHING. YESTERDAY IT TOOK ME 2 HOURS JUST TO GO IN THE SHOWER!!!
I DON'T KNOW...

OH DID I MENTION THE FUN PART? WENT TO SEE MY DENTIST... NEED ORAL SURGERY. NOT DOING IT UNLESS I CANT STAND THE PAIN OR DISCOMFORT. BASICALLY THEY'RE TELLING ME THERE IS ABOUT $5000 WORTH OF WORK TO BE DONE!! HAHA :p

6 MONTHS AGO THE ONLY PROBLEM WAS 1 CAVITY AND MY 2 BACK MOLARS. NOW ALL OF THIS? SO I WENT AND GOT A 2ND AND 3RD OPINION AND THEY'RE ALL TELLING ME THE SAME THING.

RIGHT NOW I JUST FEEL EMOTIONALLY SPENT AND TIRED OF ALL THIS. MY ATTITUDE RIGHT NOW IS THAT I'M THROUGH WITH DOCTORS. I MADE UP MY MIND. I'LL KEEP GOING TO SEE MY NEURO AND MY OPTHALMOLOGIST. MY EYES ARE ACTING UP SO I NEED TO STAY ON TOP OF THAT. DON'T NEED 2 MAJOR PROBLEMS RIGHT?

SOMETIMES I JUST FEEL LIKE I'M TIRED OF ALL THIS, I'M TIRED OF ALL THE BAD NEWS. I'M TIRED OF ALL THIS PAIN. I'M TIRED OF FEELING LIKE I'M A PRISONER IN MY OWN HOME. IF I'M NOT GOING TO A DOCTORS APPOINTMENT I DON'T GO ANYWHERE! AIN'T IT FUN TO BE ME? :bouncing: :bouncing: I FEEL LIKE I JUST CAN'T CATCH A BREAK!!! :eek: :dizzy:

JUST WANTED TO LET YA'LL KNOW WHAT'S BEEN GOING ON WITH ME.

BUT HEY, I GUESS I GOTTA GO THROUGH ALL OF THIS AND WHEN I DO CATCH A BREAK IT'LL BE A HUGE ONE...RIGHT?? ;) KELLI, THERE IS LIGHT AT THE END OF THE TUNNEL... RIGHT?!!! :bouncing:

'TILL NEXT TIME.

BLESSINGS!!

MRS. KCH-S :angel:

Well hello again,
I was wondering where you have been. I made a post just for you on Monday, but you never got back to me. Now I know why. I'm sorry that thing have not been getting any better for you.
I'm not having as many problems but I know the "I'm sick of the doctors" feeling. I too have been getting headachs, and my lower back is killing me. It feels like a constant pressure. Is that the same feeling your having? We started the Rebif the same day so I'm right there with you. Going up in dose tonight as well.

I hope you start feeling better soon. There's nothing worse then having to pretend that your feeling good when your not. My thoughts and prayers are with you........Keep writing we miss ya :)


Mari :wave:

Thanks Mari! Yeah Thats The Way I Feel. Constant Pressure Pushing In All The Time!!!

Thanks Girl For The Constant Support.

Yeah babe, there IS light at the end of the tunnel and the great news is that it's not a train bearing down on you.

I am so sorry you are in such a shape. You are having a fullblown exacerbation and I pray it ends soon and NEVER comes back.

I understand the dental issues...I was just told that I need at least $3k worth of work. Can't afford it. And can't afford not to have it done. I just found out one of my meds was damaging my teeth.

I, too, am tired of needles and doctors. I had the worst, most intense pain of my entire 42 years just a few days ago... But I refuse to give in. Yes, I slow down when I need to...I even come to a full stop when I have to...but I will NOT surrender my spirit or my mind to this disease. I have too much living yet to do! So do you, doll! Onward!!

MARI U WROTE ME ON THE 24TH I DID RESPOND THE FOLLOWING...

Hey Mari. I've Been Taking It Easy. Still Feel Exhausted. The Shots Are Going Fine. I Just Keep Feeling Nausious And I'm Also Getting Slight Headaches And Bodyaches. Besides That I'm Not Doing Too Bad. It Takes Me A Minute To Do The Injection Though. But I Guess I'll Get Over That In Time.

Hope All Is Well With You And Thanks For Checking Up On Me. It's Greatly Appreciated!!!!

Keren

Sorry Keren,
The post kept getting further down on the page .... it must have got to the second page and I stopped looking.....Either way hope your feeling better soon.
I'm also wondering if the Rebif is what is causing our back pressure and when it will go away!!! It hurts and we don't need anymore problems now do we LOL :nono:
Talk to u soon

Mari :D

Hey Mari, Yes It Is The Rebif Causing Our Back Problems. Side Effects, Side Effects.

Still Dreading To Do This Shot. Haven't Done It Yet. Gotta Wait 'till 11.15.

Let Me Know How Yours Went.

We'll Parler Soon

Keren

Keren, been missing you, and praying for you. Keep fighting, Mrs., we've got your back!

Ok so we doubled out dose.....The only thing I've noticed is that my back pressure is worse!!!! :o

If something want to rip out my spine just do it already ouch this hurts !!!! When does this go away ???

How are you feeling today, I hope better :bouncing:

Talk to u later

me

HEY MARI, WE MORE THAN DOUBLED OUR DOSE, WE WENT FROM 8.8 TO 22!!!

THE BACK THING IS NOT A GAME!!! I HAVE NO IDEA WHEN IT STOPS! YOU'RE THE LUCKY ONE OUT OF THE 2 OF US IF THE ONLY THING U GOT IS THE BACK PRESSURE I GUESS DOUBLING UP.

BESIDES THAT, MY ENTIRE BODY HURTS, GOT UP AT 7 WITH UNCONTROLLABLE SHAKING DUE TO CHILLS, MY ENTIRE BODY ACHES AND MY HEAD IS DRUMMING AGAIN. OH DID I MENTION THAT MY ENTIRE BODY ACHES???????!!!!!!!!!!!!!!! I'M STUFFY, MT THROAT HURTS AND I'M COUGHING. YIKEEESSSSSS. :eek: I PRAY THIS IS ONLY GONNA HAPPEN JUST THIS 1ST TIME OF INCREASING THE DOSAGE.

GOT UP TO TAKE MY MORNING MEDS AND SOME TYNENOL. I GUESS I MESSED UP BECAUSE I DIDN'T TAKE ANY AFTER THE SHOT... OH WELL TOMORROW I DIFINITELY WILL!!!

I'M OFF TO BED I FEEL LIKE CRAP, DON'T WANT TO BE AWAKE RIGHT NOW.

:rolleyes: Poor Keren,
I'm so sorry that your feeling so crapy!!! I wish you could just catch a break already !!! I wonder if you feel the same LOL :eek: I went to a MS specialist today and found out it's def. MS..... I always thought it was but u know how it goes....Once you hear the words YOU HAVE MS !!! your whole life changes..


As for yourself I really hope and pray that you start to feel better soon..Your having such a rough road. If there's anything I can do let me know. I just thank god I found this forum. Everyone here just understands and sometimes that's all we need is to know that someone really just understands. Again I'll keep praying for you.....


Blessing and Good times ahead for us all !!!! :bouncing: :bouncing: :bouncing: :bouncing: :bouncing: :bouncing: :bouncing: :bouncing:




Mari

Thank U So Much Mari. Sweetie I Know What U Mean. When I Heard Those 3 Words My World Crumpled.

But U Know What, Let's Just Try To Stay Positive, Ok!!!

Kelli Told Me There's Light At The End Of The Tunnel... Lets Just Wait And See How Long The Tunnel Is. My Tunnel Seems To Be Never Ending!!

We'll Talk Soon

K

Hi Keren!

I'll make you a deal. I won't look at the length ofmy tunnel if you won't look at the length of yours. Let's just keep running toward that light -together!

I'm praying for you, girl!

Hi Keren!

I'll make you a deal. I won't look at the length ofmy tunnel if you won't look at the length of yours. Let's just keep running toward that light -together!

I'm praying for you, girl!

I Love You Kelli!!!!!!!!!!! I Just Love You!!! When I'm Low You Know Exactly What To Say To Make Positive And To Smile.

Thank You, Thank You Soo Soo Much!!!! Love Ya...

Lady Kerrs... ;) :angel:


AIIGHT :wave: :wave:

Wow, I thought it was me. My family does not seem to understand what's happening and I feel so bad. It's like you were in my mind, I say we all think positively and continuue to lift each other up. I'm so glad I found this place. I don't feel so alone now.