I found out recently that what my docs thought was shingles is actually oral herpes, a gift from my husband of 37 years and his girlfriend. I have bouts that last for two weeks or more with the breakouts all over the sides and roof of my mouth, inside my lips, down my throat, on my tongue and for the last two weeks on the sides of my tongue way in back causing sore throat, swollen glands and sore ears. Rarely I have outbreaks on my lips and face but I always seem to get double duty outbreaks. Does anyone out there have this? I haven't seen or heard anything anywhere similar to my outbreaks. I am on a Famvir maintenance program but I could use suggestions. It is so painfull and I feel so ill when I have them. Does anyone know where I can get more information.

I found out recently that what my docs thought was shingles is actually oral herpes, a gift from my husband of 37 years and his girlfriend. I have bouts that last for two weeks or more with the breakouts all over the sides and roof of my mouth, inside my lips, down my throat, on my tongue and for the last two weeks on the sides of my tongue way in back causing sore throat, swollen glands and sore ears. Rarely I have outbreaks on my lips and face but I always seem to get double duty outbreaks. Does anyone out there have this? I haven't seen or heard anything anywhere similar to my outbreaks. I am on a Famvir maintenance program but I could use suggestions. It is so painfull and I feel so ill when I have them. Does anyone know where I can get more information.

I haven't heard of anything quite like your case on this board, but there's a lot of information and a lot of archives to search if you have the time. I think I"d search for "oral herpes" and see what you get. The search window is at the top of each page. If you want to search way back, the archive button is at the bottom of each page in the blue strip to the right. I'm sorry I can't help much--I have genital h.