Two years ago I had a major seizure and spent two months in the hospital. The doctors have no idea what caused it and still can't figure it out. For the past two years I've mostly only had focal seiures. At this point I'm having about 2 a month (one put me in the hospital over night recently)

I have horrible memory problems (I lost about 10 years of memory when I came out of the hospital). I'm finding that I can't remember things that happened days to months ago - it's like they never happened!

The doctors have gone through so many drugs with me there are just too many to put down here. I've lost so much weight at first that they changed my meds. Now all I want to do is eat and sleep.

Is there anyone else out there like me? I'd love to hear from you and know if you have been able to control your symptoms from drugs and your seizures. :confused:

Sorry to hear of your trouble, but hang in there! You wanted to hear of success stories; well I’ve had my seizures under control for around 25 years now. Yes, it took some time to sort out and my seizures changed, but it’s not bad now. The side affects from the drugs aren’t great, but it could always be worse and we must try to remember that. I still hope for improvement, but am always aware that life could be a lot harder. I’m married, have had 3 children while taking medicine and work and drive. I’m lucky. My memory is not the best either but I’ve learned to work around this by writing every down as I know my limitations. Remember we’re always here to talk to

I can go for a while without seizures, but over the last 19 months, it's been the pits. Meds have been changed, but I'm no longer working, which was my identity, and it's so frustrating to not know when they're going to hit (other medical problems complicate things as well). Now applying for social security disability and medicaid- something I thought I'd never do...I'm professional, and have worked for 19 years with insurance, a paycheck I EARNED, and had a sense of purpose....now I just go from day to day not knowing if it's going to be "good", or 'bad"...... quit eating enough to end up using a tube for fluid and food suppplements for a while, since after seizures, I could sleep for days, and have no interest in food....have lost count of how long it's been since eating 3 meals a day. Can't see my neurologist because of no insurance.
My primary doc is great, and respects my knowledge about my own symptoms, so is careful with meds (still on 6 prescriptions- some for seizures, some for the other stuff). Have had more infections here than before moving back up here after 17 years in another state...plan to move back when I'm strong enough, and can get stuff packed....need to go back where things were going well....

Thank you for letting me know that I am not alone! I go to the doctor tomorrow. I'll probably end up getting my meds changed again.

Luckly I have insurance. I was paying for my own but since my boyfriend and I recently moved in together he was able to put me on his health plan where he works. He is a saint for me. I don't know how he can go through what I am going through, but he is always there. He just dosen't understand why I am going through it. He's coming with me to the dr tomorrow and I know that dr is going to get an earfull from him!

Neurowreck, I can't believe what you are going through, I hope things get better!

I'll let you know what the doc says tomorrow, and please thank you - you guys and anyone else let me know that there is hope out there!

I went to the doctor and she didn't change my meds. I've been having mini weird seizures (looking for things, spacing out for short periods of time, and just plain acting wierd) I got blood work done, so I'm hoping something will show up in that. I've been having the worst memory problems latley too!!!! I can't remember things that I've done within the last few months (movies I've watched with my boyfriend and places we've been) I have to be making him crazy too. Hopefully I'll get the blood results tomorrow and find out whats going on.