neurowreck
09-30-2005, 06:22 PM
Have had a lousy week in general- still adjusting to the regular meds from the extended release, and having to tweek the doses, and not "there" yet... have had at least 2 seizures, and the other night, I dreamed I was having a seizure-- while camping, which I don't do (and was with people I knew sort of, and one I knew fairly well in the dream- very odd), and when I woke up, my mouth was chewed up, I was peeing (always so demoralizing) as I was in the process of waking up, and then just fell back asleep again. See my doc next week. Still feel "off". But, I can't afford the long acting meds, and had to stop the generic Neurontin because it's outrageous. I"m so sick of no insurance, no word from Medicaid, no word from SSD, no word from anything, but lots of bills, and collection people finding me.... Rope is getting short and thin.
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Discododi
09-30-2005, 08:50 PM
Hi (((Neurowreck))),
Sorry you are having such a rough time. Please speak with your doc about your med needs. Most have samples of meds in the office and can give you a months worth to help you get through the rough time. Try calling the office and speaking with a nurse.
Wishing you the best, Dodi
Sorry you are having such a rough time. Please speak with your doc about your med needs. Most have samples of meds in the office and can give you a months worth to help you get through the rough time. Try calling the office and speaking with a nurse.
Wishing you the best, Dodi
Moonrunner72
10-01-2005, 01:50 AM
Hang in there neurowreck. Although I didn't have a seizure while sleeping last night, I had a bit of a nightmare about having another brain operation. I was so relieved to wake up and realize that it was only a dream. Whew! I had a panic attack before I had my real operation and I was about to have one in my sleep last night because of the dream. Is there any connection between your dreams and your seizures? I've had sleeping seizures too but I can't be sure if what I'm dreaming has any influence on the seizures. Maybe vice versa?
bettyst
10-01-2005, 09:58 AM
neurowreck, I am so sorry....just wanted to send you hugs!I wish NO ONE would have seizures ever!!
neurowreck
10-01-2005, 06:09 PM
My doc is great about giving samples when she has them...unfortunately, the main med I've been on for 6 years is too expensive, even in generic form (170 bucks a month on disability with no insurance just won't work), and not new enough to have samples around, so have had to taper off of that, along with the switch to generics from the extended release brand stuff....just feel foggy and sleep is way out of whack....taking too much benadryl, klonopin, soma, and darvocet just to get through the night asleep, and still wake up funky (woke up funky even without the added meds, so it's not just that). I need the Neurontin/gabapentin back, but can't afford it, and the "assistance" programs won't help since my disabilty (private insurance at this point) exceeds their limits for helping someone. It's so frustrating. I have that "almost seizurey" feeling almost all of the time. I'm tired of all of this.
tkdmom96
10-01-2005, 07:05 PM
Hi neurowreck,
Sorry to hear about the rough week you've had...
Katie took Neurontin for 2 years and it was $600.00 a month! That is what we would have had to pay, out of pocket. With insurance, it was $150.00. She was taking that with Keppra, which was about another $380.00. With insurance, $85.00. That was the most expensive "cocktail" she was on. I don't know how people can make it without insurance...the med companies are such a racket! And certain generic meds are different, I don't care what anyone says.
Have you looked into buying from over seas? You can also check into Canadian companies and others...are you taking a chance? Maybe...but is it better to have some meds than no meds? You could also research the Taurine amino acid...there are books out there on alternatives. Just some FYI.
To better tomorrows...
Vicki
Sorry to hear about the rough week you've had...
Katie took Neurontin for 2 years and it was $600.00 a month! That is what we would have had to pay, out of pocket. With insurance, it was $150.00. She was taking that with Keppra, which was about another $380.00. With insurance, $85.00. That was the most expensive "cocktail" she was on. I don't know how people can make it without insurance...the med companies are such a racket! And certain generic meds are different, I don't care what anyone says.
Have you looked into buying from over seas? You can also check into Canadian companies and others...are you taking a chance? Maybe...but is it better to have some meds than no meds? You could also research the Taurine amino acid...there are books out there on alternatives. Just some FYI.
To better tomorrows...
Vicki
neurowreck
10-01-2005, 11:22 PM
They're really expensive for generic Neurontin. I just can't afford it. It had mad a huge diffence in my quality of life, and now there are so many variables with the "new" generics of other meds, I'm not sure what's causing what. When I worked in another state, we had to throw out any med that had been discountinued, or the person died. It was terrible. They were bubble packed, so it's not like they were handled. Those meds could help people with all sorts of problems..instead, every 3 months, we'd have to trash them....sometimes 3-4 huge boxes of them. It's sad when people who want to be compliant can't due to cost.