After my failed attempt with the P.T. a week and a half ago, I decided to try the Epley at home last Saturday. The very first time I tried it, it worked. Haven't had a touch of dizziness since then. I'm very excited. Thank God for Doctor Epley, huh! Dizziness sucks!

If and when it comes back, at least now I won't feel so incapacitated.

Just one question: Is it necessary to do the maneuver daily or weekly when if I have no dizziness? Some say yes, some say absolutely not!

Thanks, all, for your feedback during the past kinda rough year. It is appreciated.

Robin

Hi Robin,

Have a look at the MEP in the archive too. Glad it worked for you.

Scott :cool:

That's great news!!!

No.....I wouldn't suggest to the exercises if you're having no symptoms.

Just go about your normal daily living, including moving your head as you normally do.

When/if it comes back, do the MEP or epley asap 2 - 3 times in a row if the first one doesn't find you relief.

Hope this is a long remission.

quincy

Just want to jump in here to ask if I am correct in thinking that not all BPPV will ever come back.
Does it not depend on the cause? If the BPPV is caused by a head trauma or inner ear injury from, say, labs or VN, is it not potentially a one time issue and once the crystals have dissolved or re-attached, and then the sufferer can be free from BPPV? If however it is a condition as Spikey discussed where the inner ear is dropping the crystals (not the same ones over and over but new ones) from a condition due to a problem with the nerve supplying the inner ear and what she called a poorly nourished inner ear, then the chances of recurrence are higher.
Do I have this right? I also understand that age is related here.
And yes this is hopefull thinking on my part, not being too old and having had a bad case of labs which I blame my BPPV on, I would like to think this puppy is gone for good. Quincy has suggested several times that it is a remission and as his has recurred for many years, is this the potential for all BPPV sufferers???
Anyone? Subs?

Aww nowamember that's brilliant! Well done :) ENJOY!

Just want to jump in here to ask if I am correct in thinking that not all BPPV will ever come back.
Does it not depend on the cause? If the BPPV is caused by a head trauma or inner ear injury from, say, labs or VN, is it not potentially a one time issue and once the crystals have dissolved or re-attached, and then the sufferer can be free from BPPV? If however it is a condition as Spikey discussed where the inner ear is dropping the crystals (not the same ones over and over but new ones) from a condition due to a problem with the nerve supplying the inner ear and what she called a poorly nourished inner ear, then the chances of recurrence are higher.
Do I have this right? I also understand that age is related here.
And yes this is hopefull thinking on my part, not being too old and having had a bad case of labs which I blame my BPPV on, I would like to think this puppy is gone for good. Quincy has suggested several times that it is a remission and as his has recurred for many years, is this the potential for all BPPV sufferers???
Anyone? Subs?

That was my understanding of it, as the VRT guy explained it to me - due to this (probably) congenital condition, that was why I was getting the recurrences, whereas other people have one or two BPPV attacks then have the Epley done and it goes away forever. Judging by the different experiences people on this board describe, I think you're right, it probably depends on the original cause of the BPPV attacks as to whether a person will continue to have them or whether it is a one-off. It makes a lot of sense to me, especially after going through several years of total frustration with doctors and specialists who couldn't give me any answers at all.

Congratulations Robin, great to hear that the Epley worked and your world is normal again, keeping my fingers crossed that you stay BPPV-free!

Julie

You all are so very supportive and nice! Hope you're all feeling well today.

Thanks,

Robin

Just want to jump in here to ask if I am correct in thinking that not all BPPV will ever come back.
Does it not depend on the cause? If the BPPV is caused by a head trauma or inner ear injury from, say, labs or VN, is it not potentially a one time issue and once the crystals have dissolved or re-attached, and then the sufferer can be free from BPPV? If however it is a condition as Spikey discussed where the inner ear is dropping the crystals (not the same ones over and over but new ones) from a condition due to a problem with the nerve supplying the inner ear and what she called a poorly nourished inner ear, then the chances of recurrence are higher.
Do I have this right? I also understand that age is related here.
And yes this is hopefull thinking on my part, not being too old and having had a bad case of labs which I blame my BPPV on, I would like to think this puppy is gone for good. Quincy has suggested several times that it is a remission and as his has recurred for many years, is this the potential for all BPPV sufferers???
Anyone? Subs?

Hi Firechick,

I had my visit with my 3rd specialist... this is also where Subs went to... it was a nice visit...

I asked all the questions over... and he said that bppv is a recurrent condition... every person is different... some have it 1 year, five year, ten year, etc... there are some cases where some patients have it every so many months... and it doesn't really matter what the cause was but it may come and go... he even mentioned that some could have it once or twice and never again... he himself had it once and it's been five years and he hasn't gotten it again, but he could...

There is no surgery...

I asked if new crystals keep falling and he says no... it's the same crystals...
there are no proven facts if the crystals dissolve, and that most specialists believe that they more likely stick and return where they belong but from time to time they may get loose again...

I realized that every specialists have different theories and beliefs... which makes me sad... it's really up to me, what to believe...

All three specialist stated that the epley is only useful when a person has the actual attack...

One specialist stated after the epley to sleep upright for 48 hrs, and don't bend, etc, for one week , just to be on the safe side that the crystals don't get loose into the canals...

The other two, stated to sleep anyway, and to live life, the way I've always had before I had bppv... and if an attack occurs, to come back and that they'll perform the epley...

No one really knows what happens to the crystals...

But don't be afraid they say... it's very common...

I hope that you're doing well...

I'm getting better but I'm still very sad and scared...

maryanne-k

Hi Maryanne

Glad u made it to the visit---sounds like---he was very candid---which he normally is.

U were concerned about doing the tests again---did they do them??

And---did he prescribe---any VRT---for u?

I would not be to concerned about who is scientifically right or wrong....all that shows is---they have no conclusive scientific evidence proving out one or more of the theory's---that will stand/hold up to peer review---they don't intend to stop their effort to prove one---and the competition for that---will spur them on...

---course it would be good to know exactly why, what and how BPPV happens/occurs or reoccurs---which might/could lead to a more targeted treatment...to get the rocks out...and that would be beneficial

---but it is the compensation period---after the rocks are out---that last the longest and causes the most grief...and their just beginning---to work that one....for example

---in my case---think the rocks were out---within six weeks---but the devastation that they caused---lasted another---13/14 months---so there has to be more to the story---then---rocks rolling or re-rolling around, sticking, dissolving or whatever.....floats their boat....

:cool:

Hi maryanne.....My doc said all the same stuff to me in 1975.....so, some theories haven't changed. I'm pleased to hear it.

It does sound as though your BPV is fairly straight forward....at least you can treat it.

I still believe long compensation would be from the initial cause trigger of BPPV rather than BPPV itself.

Just to add, there are crystals that get stuck on the cupula or in the canal....two theories, and I've had both. The semont works for the cupula, Epley for the canals.

It comes it goes....at least you'll have options to deal with it.

As far as the surgery...you asked me before about it....it's the one to snip the ear/brain nerve -- I totally passed on the offer to even consider it, for some suffer worse than before the surgery with other symptoms. I at least knew what I had and dealing with it was at least familiar. Dang it if it didn't go away a year later!!

Hang in there....just be YOU....no fears, just function normally. If it ever happens again, at least you'll know what to expect and how to get yourself back.

Best to you,
quincy

Thanks for all the info Maryanne
Kind of freaks me out a bit to think I could get this again. Feel like I have already served my time with three years dealing with the labs and that compensation and another year with the BPPV.
But must keep positive, we could be one of those cases who never sees this again. I don't care about the spinning part, it is the comp phase I don't wish to deal with again. The good news is I will know what to do right away if it hits again. One day prior to getting the BPPV big time (waking up with the world spinning), I was in the back seat of a van doing something with my kids. Everytime I looked up the world did a little flip. In hind sight that was the start of the BPPV, if I had know then I perhaps could have done the MEP and stopped the full blown attack. If only I had known then what I know now.
I wonder if doing the MEP on a regular basis would catch a possible attack? Doubt they could answer that one because this stuff is so individual.
Thanks again for the info, I do not have anyone here who seems to know what's going on with this. BEginning to feel like a local expert though thanks to this board. Have now helped two people with the epeley.
Lets keep the title of this thread, 'wooo Hooo - NO more BPPV!!!!
FC

Hi Maryanne

Glad u made it to the visit---sounds like---he was very candid---which he normally is.

U were concerned about doing the tests again---did they do them??

And---did he prescribe---any VRT---for u?

I would not be to concerned about who is scientifically right or wrong....all that shows is---they have no conclusive scientific evidence proving out one or more of the theory's---that will stand/hold up to peer review---they don't intend to stop their effort to prove one---and the competition for that---will spur them on...

---course it would be good to know exactly why, what and how BPPV happens/occurs or reoccurs---which might/could lead to a more targeted treatment...to get the rocks out...and that would be beneficial

---but it is the compensation period---after the rocks are out---that last the longest and causes the most grief...and their just beginning---to work that one....for example

---in my case---think the rocks were out---within six weeks---but the devastation that they caused---lasted another---13/14 months---so there has to be more to the story---then---rocks rolling or re-rolling around, sticking, dissolving or whatever.....floats their boat....

:cool:

Hi Subs!

The visit was ok...

I only had the hearing tests... my pressure of esctuciian tubes and hearing in both ears are completely normal...

He didn't talk about VRT...

What is VRT?

He just said to act normally as I always did before I had bppv...

He said after the epley to sleep anyway I want...

I asked about sleeping upright for 48 hrs. and not bending for 1 week but he said no...

He told me to do whatever...

When you had the epley performed, did you sleep upright for 48 hrs, etc...?

I'm getting better though... still compensating...

Do you know anything about surgery for bppv?

If I lay on the bad ear and I don't get vertigo, then the crystals are all out?

So they should be dissolving or sticking...?

But the fuzzy feeling is the brain compensating...

I just want to be clear... that my crystals are out and my brain is compensating...

I really want to be symtom free for the rest of my life...

I know it can reocur but it's still possible to never get it again... right?

Subs... thankyou so much for all your help and being a great friend...

I'll keep you posted ^.^

Keep enjoying life!

maryanne-k

Hi maryanne.....My doc said all the same stuff to me in 1975.....so, some theories haven't changed. I'm pleased to hear it.

It does sound as though your BPV is fairly straight forward....at least you can treat it.

I still believe long compensation would be from the initial cause trigger of BPPV rather than BPPV itself.

Just to add, there are crystals that get stuck on the cupula or in the canal....two theories, and I've had both. The semont works for the cupula, Epley for the canals.

It comes it goes....at least you'll have options to deal with it.

As far as the surgery...you asked me before about it....it's the one to snip the ear/brain nerve -- I totally passed on the offer to even consider it, for some suffer worse than before the surgery with other symptoms. I at least knew what I had and dealing with it was at least familiar. Dang it if it didn't go away a year later!!

Hang in there....just be YOU....no fears, just function normally. If it ever happens again, at least you'll know what to expect and how to get yourself back.

Best to you,
quincy


Hi quincy,

How are you feeling these days?

I'm getting better...

oh... so surgery doesn't sound to good...

sorry... I seem to repeat myself alot... I try not too...

I'm much happier now ^.^

Yeah, at least I know what I have and what to do in the future... but I still pray for a miracle that I won't ever get bppv again ^.^

Thanks for all your help...

keep warm it's getting chilly...

maryanne-k

Thanks for all the info Maryanne
Kind of freaks me out a bit to think I could get this again. Feel like I have already served my time with three years dealing with the labs and that compensation and another year with the BPPV.
But must keep positive, we could be one of those cases who never sees this again. I don't care about the spinning part, it is the comp phase I don't wish to deal with again. The good news is I will know what to do right away if it hits again. One day prior to getting the BPPV big time (waking up with the world spinning), I was in the back seat of a van doing something with my kids. Everytime I looked up the world did a little flip. In hind sight that was the start of the BPPV, if I had know then I perhaps could have done the MEP and stopped the full blown attack. If only I had known then what I know now.
I wonder if doing the MEP on a regular basis would catch a possible attack? Doubt they could answer that one because this stuff is so individual.
Thanks again for the info, I do not have anyone here who seems to know what's going on with this. BEginning to feel like a local expert though thanks to this board. Have now helped two people with the epeley.
Lets keep the title of this thread, 'wooo Hooo - NO more BPPV!!!!
FC

Hi Firechick,

How are you doing now?

So you've had labs and then bppv?

How long after labs did you get bppv?

The reason I ask is because, people who have labs usually has a single bout of vertigo attack and never again...

How many attacks have you had?

Did you get tests done and did a doctor tell you that you had bppv?

Because there are also those who have labs and later develop bppv, and in that case then it mar reocur...

So there are two theories...

Are you very active and roll over and sleep on the bad ear?

I still pray for a miracle for no more bppv...

But I'm getting better... just a sore neck but that's getting better too...

Keep enjoying life ^.^

Thanks,
maryanne-k

Hi Maryanne
I had a very bad case of labs in December of 2001, I was off active duty for a couple of months, it took me about 2 years before I could say I was doing normal routine stuff. But for me that means going at about 240mph with no pit stops. My life is very go go go and this really threw me for a loop. 15months ago I was feeling pretty crap and the BPPV hit me. I actually self diagnosed that one because of the classic spinning on rolling over in bed or moving my head up or down. I first thought I had another case of labs but thought that the odds were something like being struck by lightening twice.
My friend's husband is a doctor and did some research for me and found the MEP. I did it and the vertigo was gone in a day. Took another year or so for compensation. Still have bad days here and there but for the most part am great, back to 240mph again! I don't know if the labs was responsible as it was so far apart from the BPPV attack. Maybe I did have another labs incident which brought on BPPV right away. WHo knows, all I know is that I would like to be rid of this forever. Wish I knew then what I know now!
Glad you are feeling better, compensation will come!
FC

Hi Maryanne
I had a very bad case of labs in December of 2001, I was off active duty for a couple of months, it took me about 2 years before I could say I was doing normal routine stuff. But for me that means going at about 240mph with no pit stops. My life is very go go go and this really threw me for a loop. 15months ago I was feeling pretty crap and the BPPV hit me. I actually self diagnosed that one because of the classic spinning on rolling over in bed or moving my head up or down. I first thought I had another case of labs but thought that the odds were something like being struck by lightening twice.
My friend's husband is a doctor and did some research for me and found the MEP. I did it and the vertigo was gone in a day. Took another year or so for compensation. Still have bad days here and there but for the most part am great, back to 240mph again! I don't know if the labs was responsible as it was so far apart from the BPPV attack. Maybe I did have another labs incident which brought on BPPV right away. WHo knows, all I know is that I would like to be rid of this forever. Wish I knew then what I know now!
Glad you are feeling better, compensation will come!
FC

Hi Firechick,

I'm glad that you're doing well!

Keep living a happy life! ^.^

I'm getting better to but now and then I feel off but it's better than having vertigo or being dizzy...

Which ear is your bad ear?

Mine is the left...

I'm not even sure how I got this but now I know what to do...

Do you move around and look up and down and sleep on the bad ear?

I try to be more normal...

I hope that all this will all go away forever and never come back again...

Keep warm... it's getting so chilly...

maryanne-k