doraluma
10-18-2005, 05:58 PM
*sigh*
PALS advised me not to change gp surgery as it would be hard to find one to take me when an i already registered in the area and they would probably flag me as a difficult malingering patient.
i have rung nhs direct a few times. each time with worsening symptoms. the first nurses were lovely but same suggestion...'you should go to your gp'
i explained to the last one that my gp surgery arent referring me to anyone and wont do anything much. he got iritated and said i must stop calling nhs direct and sort it out with my gp.
i went to a&e after my arm and left side went numb. they told me it was my efexor (which my psychiatrist says it isnt) and told me not to come back to A&E as it 'isnt appropriate'. which is true. its not life threatening, i was just scared and frustrated.
the other symptoms like twitching and tremor and vertigo and everything started weeks before the bowel problems. the rectal thing is the latest symptom. im pretty sure something down there has prolapsed. its pretty much blocked now, but the gp wouldnt examine me (psych history)
i rang up and got my bloodtest results today. all normal. so i guess that rules out lupus and rheumatoid arthritis and kidney failure.
but of course wouldnt show anything neurological.
i rang my psychiatrist office twice last week saying it was getting worse. they told me each time she would call me back when she got in the next day. but she hasnt.
i was going to start my risperidone again so they couldnt accuse me of being psychotic.
but the quetiapine seemed the better choice in the end. they prescribed that a couple of months ago but i only took it for a week because it sedated me so heavily.
but hey now it helps cos i cant sleep at night and during most of the day im pretty much oblivious to everything, which is less distressing.
when i saw the optician he wanted to take photos of my eyes with this special cmera thingy. had to rest my chin on the ledge and forehead against the rest. he kept telling me to keep my head still. i couldnt. i was twitching and moving all the time and he kept saying 'i need to to stay still' and i ended up in tears and snapping at him 'i am trying my best'
it feels like my face and hips are slowly going numb now. not the overnight numbness i had in my arms and hand/fingers
but a gradual loss of sensation. oh i can still feel when someone strokes me... just.... but it doesnt feel normal, much less sensation. the left side of my face feels like its starting to droop a little. i cant see any change in the mirror, thats just what it feels like.
my co-ordination is off. oh sure the doc asks me to touch my tips of my fingers to my thumb. yup no problem.... but ask me to put a lid back on a pen or jar or bottle.... different story.
next move????
well
i found a private gp clinic about 150 miles away that specialises in second opinions and can refer me back to a specialist in my area (nhs or private)
or an online private gp that can do the same.
got to figure out a way to get there.
so im thinking about that
sometimes
but i am getting so depressed most days i just accept that im crazy or just totally forget that i even found out about the private gps (bad bad memory)
(dunno if its significant but the few times ive been able to pass anything, its full of the little balls from my venlafaxine xl which never used to happen. concerned i might not actually be absorbing it now. it does say on the sheet that can happen but seems odd that it didnt happen in the last year and is just happening now)
sorry
enough ranting and rambling
dora
xx
PALS advised me not to change gp surgery as it would be hard to find one to take me when an i already registered in the area and they would probably flag me as a difficult malingering patient.
i have rung nhs direct a few times. each time with worsening symptoms. the first nurses were lovely but same suggestion...'you should go to your gp'
i explained to the last one that my gp surgery arent referring me to anyone and wont do anything much. he got iritated and said i must stop calling nhs direct and sort it out with my gp.
i went to a&e after my arm and left side went numb. they told me it was my efexor (which my psychiatrist says it isnt) and told me not to come back to A&E as it 'isnt appropriate'. which is true. its not life threatening, i was just scared and frustrated.
the other symptoms like twitching and tremor and vertigo and everything started weeks before the bowel problems. the rectal thing is the latest symptom. im pretty sure something down there has prolapsed. its pretty much blocked now, but the gp wouldnt examine me (psych history)
i rang up and got my bloodtest results today. all normal. so i guess that rules out lupus and rheumatoid arthritis and kidney failure.
but of course wouldnt show anything neurological.
i rang my psychiatrist office twice last week saying it was getting worse. they told me each time she would call me back when she got in the next day. but she hasnt.
i was going to start my risperidone again so they couldnt accuse me of being psychotic.
but the quetiapine seemed the better choice in the end. they prescribed that a couple of months ago but i only took it for a week because it sedated me so heavily.
but hey now it helps cos i cant sleep at night and during most of the day im pretty much oblivious to everything, which is less distressing.
when i saw the optician he wanted to take photos of my eyes with this special cmera thingy. had to rest my chin on the ledge and forehead against the rest. he kept telling me to keep my head still. i couldnt. i was twitching and moving all the time and he kept saying 'i need to to stay still' and i ended up in tears and snapping at him 'i am trying my best'
it feels like my face and hips are slowly going numb now. not the overnight numbness i had in my arms and hand/fingers
but a gradual loss of sensation. oh i can still feel when someone strokes me... just.... but it doesnt feel normal, much less sensation. the left side of my face feels like its starting to droop a little. i cant see any change in the mirror, thats just what it feels like.
my co-ordination is off. oh sure the doc asks me to touch my tips of my fingers to my thumb. yup no problem.... but ask me to put a lid back on a pen or jar or bottle.... different story.
next move????
well
i found a private gp clinic about 150 miles away that specialises in second opinions and can refer me back to a specialist in my area (nhs or private)
or an online private gp that can do the same.
got to figure out a way to get there.
so im thinking about that
sometimes
but i am getting so depressed most days i just accept that im crazy or just totally forget that i even found out about the private gps (bad bad memory)
(dunno if its significant but the few times ive been able to pass anything, its full of the little balls from my venlafaxine xl which never used to happen. concerned i might not actually be absorbing it now. it does say on the sheet that can happen but seems odd that it didnt happen in the last year and is just happening now)
sorry
enough ranting and rambling
dora
xx