I have been diagnosed with fribromyalgia. Sometimes I wonder if they say this because they do not really know what it is. I have heard of a diet that helps but can not find it. Does anyone have info on this. I would appreciaite any info on fribromyalgia also. The pain is unreal. I am 45 and feel 90!!!
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bilij
11-01-2005, 12:09 PM
Goodmorning Brighterday, I like your name...that's what we are all
hoping for, a brighter day.
I know I'm never much help, but I don't want anyone to go through 2 years
thinking the doctors didn't know what they were talking about. At 70, I was
certain it was arthritis and that fibromyalgia was just a ''catch all'' name.
I'd had all the test that rheumatologist, neurologist and an internest usually do
to eliminate other diseases. When I finally accepted the fact, I went back to
my family doctor who was the first to diagnose and she began to treat the
pain and lack of sleep. I've been doing well for 5 years. I still have days or
even weeks when the pain is really bad and on those days I tell myself, ''this
too shall pass.'' You are right, the pain is unreal at times, but it will get better.
Others can tell you about diets, physical therapy, massage therapy and all the
other things that have helped them; as for me, I only take something to help
me sleep, pain medication as needed and stay active. You are so young, I pray
you find help so you can live a long productive life. Please tell us more about
yourself, we really care.
Bilij
ukiahvalleymom
11-01-2005, 12:54 PM
I have been diagnosed with fribromyalgia. Sometimes I wonder if they say this because they do not really know what it is. I have heard of a diet that helps but can not find it. Does anyone have info on this. I would appreciaite any info on fribromyalgia also. The pain is unreal. I am 45 and feel 90!!!
brighterday,
Welcome, I can so relate to the 45 feeling like 90...if your up to reading through some of the older posts, you'll find lots of info regarding treatment options, diet recommendations and other stuff.
If your not quite sure how to search the threads, do let us know. Everyone is very nice and will be glad to help, so that you may get comfortable with moving around the board. (It's best to start a new thread to ask.)
Fibromyalgia is not a 'catch all' wastebasket dx, it is a true illness and so is Chronic Fatigue.
The good news is to have these illnesses, doesn't mean the end of life. There is treatment available to help with the symptoms and to find and treat the underlying issues, like a compromised immune system, active viruses, thyroid dysfunction, adrenal dyfunction, etc...I can testify, personally, to this journey as being life changing for the better!
looking forward to getting to know you, uvm :wave:
rosebuddy61
11-01-2005, 06:39 PM
Brighterday, I love your name! What type of doctor diagnosed you? Did you have any tests? Were you given a treatment plan?
I agree with Ukiahvalleymom and bilij. You will find lots of information and support here. I look forward to getting to know you.
As far as diets go, I know for me, I feel better when i steer clear of simple carbs like white flour and sugar. I also take magnesium and malic acid and b complex. I am 44 and have had this for over a year. I am doing so much better than i was at onset. We don't all have the same symptoms, but we all understand eachother because of what we have in common: the pain of fms and the desire to help eachother when we need support and understanding. Welcome.
I hope that you keep posting.
Donna
pa235
11-01-2005, 09:21 PM
Hi Brighterday,
Welcome to our group. This a great place to vent, to discuss your pain, there are a lot of helpful people here who care and understand.
I am 64 and felt 90 since I first was dxed with this dd, now I feel 190.
Hugs, Linda
brighterday
11-04-2005, 03:41 PM
Hello all! Thanks to Bilig, Ukiahvalleymom,Donna Marie and pa 235 for the welcome and encouragement.
My name I picked out when I would ask for help because my husband had kidney cancer. We needed a brighterday. He is doing better now.
I did not mean to sound as if I thought fribromyalgia was not real. Its just when I went to a doctor(doctors!) they would find out that my husband was sick and immediately think that the pain was due to me worrying about him. That's when I needed to feel BETTER to take care of him. I did not WANT to be sick.
This is a horrible thing to deal with. I would feel bad because he had four surgeries and people would look at me funny when I mentioned that I was in pain. You look normal on the outside but are in anguish on the inside.
I hate that all of you have it but it sure was good to hear from other people that said "I understand". I smiled as I read each comment. That sounds silly but know one understands unless they suffer with it. Thank you again.
hangin
11-05-2005, 05:24 AM
Welcome Brighterday, :wave:
Glad that this board picked your spirits up. It does the same for me.
As others have pointed out the pain can get very bad and then you might go through a period where you feel better. It seems to be the nature of this Fibro.
I know that I went through many doctors until I was diagnosed. I started getting sick in 1994 and I knew what it was but the docs all new better. Finally I found a wonderful doc who has helped me.
Now I go to a PM doc, physical therapy, take something for pain and sleep. TO me sleep is one of the most important things in order for your body to do any healing. RIght now I am in a major flare so I am in bed, trying to sleep when I can, getting up when I can and basically trying to take care of myself.
This board will be a world of information and support and love for you.