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View Full Version : The L8'est Update on treatment for me..


ukiahvalleymom
11-03-2005, 04:01 AM
I ended up having my appt w/ my Fibro & Fatigue Doctor as a phone consultation...this afternoon, 11/02/05. I'm glad on one hand that I stayed home, and passed on the 9&1/2 hour drive down, but felt guilty on the other, because I chose not to be face to face with the doctor, so he could really check me out. My next appt is on 12/08/05 down at the office.

On a scale from 1-10, (1 being least and 10 being most) we went through the symptoms of CFS and/or FMS, I can say:
brain fog 0 with 0 days over the last 12 weeks
brain fatigue 0 with 0 days over the last 12 weeks
body fatigue 0 with 0 days over the last 2 weeks
sore throat today, 0 with 0 days over the last 2 weeks
flu-like symptoms 10 13 weeks ago, 0 over the last 4 weeks
low blood pressure 5, has improved, tho, still flunctuating too much*
Low temperature 5, has improved, have news for the continous.*
CNS hyperactivity along with sound sensitivity 10 13 weeks ago lasting 8 weeks, over the last 5 weeks it has been 0-3 off and on.
all over joint pain had been 10, starting 13 weeks slowly subsiding w/ treatment of the neurotoxins and viruses to 2 weeks at 0.
tender points or trigger points pain 10 w/ 18 active points starting 13 weeks ago, some days down to 0, today 8 only in shoulders and back of hips, not bad!
Tired new symptom, started slowly...found out it has to do with my thyroid...

Then he noted that my lab results showed I had low thyroid, I had been on a a very low dose of natural hormone T3. Based on the latest levels it is being changed to a T3-T4 combo. It should bring my energy level back up, along with my blood pressure and temp.

I've been taking Zithromax since March '05 for the viruses, it seems to not be working anymore...so my doctor has changed the antibiotic to something different, not Cipro, (tho, that worked real well,) another one, I'll see what it is tomorrow when I pick it up.

He also is starting me on Liver Extract (shots), twice a day. It's suppose to have great results for minimizing CFS. I'll let you know :)

all in all I'm feeling much better, and know once the thyroid meds arrive, I'll be ready to :bouncing: :bouncing: all over, uvm
time to get some zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz zzz's, good nite!

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