Hi everybody,sorry i haven't been on for so long..i haven't been very well and my computer had worms(lol) My daughter jess is soo much better at the moment,she manages hospital school 3 times a week for an hour each time!!the drs tell me when she goes back to school next year it will only be part days,but that is hugh compared to the fact a few weeks ago she needed a sleep after having a shower or morphine after an hour with her friend
The local newspaper did another article on jess and this time we have heard from 2 kids with fms,a 13 yr old boy who....believe it or not ..is in the class next to her at her school....and the school said they had never heard of fms(tut tut) and another 11 yr old girl who she is hoping to talk to tonight.
The other thing i'm trying to do is..i'v contacted a tv station and talked to a journalist about doing a program on fms,i explained to the woman that fms and cfs are both silent and nasty,that we look so well and feel like we are dying inside with pain(i hope this makes sense)she is going to talk to the producer and also do research anyway because she is interested(yay)
I told her about this site and how much she would get from it ie:how it effects peoples lives,so cross fingers for us little voices in nz,i will let you know how i get on,jan

hi jan,
how wonderful to hear from you. i am so glad your daughter is doing better and has found friends who are walking the same journey.
soon your angel will be famous. give jess a big hug for me. i have a daughter named jess also. short for jessica. she is 30 and was just told she has chronic myofacial pain. mommy can help her with that one. i already took her a huge book to read, giggle!
peace,
bluelakelady