KittenPaws
11-27-2005, 03:57 PM
There was a snow storm thanksgiving morning and the pressure in the area did some funky thing, not sure if it went up or down but i woke up in so much pain from my hips down to my toes it wasnt even funny. The next non-funny thing was that my legs wouldnt hold me up, i was completely paralyzed durin this moment form the waste down.
This threw me into a complete panic attack and then an asthma attack but i got through those with my inhailor and about 2 hours of crying.
I'm just wondering if anyone experience the above or could explain any of it. I do have some CNS issues and may have lupus as well, am diagnosed with fibro. I'm just completely confused on what happend that day so if anyone can clear up this issue with me i'd be greatful for you.
:D Kitten
This threw me into a complete panic attack and then an asthma attack but i got through those with my inhailor and about 2 hours of crying.
I'm just wondering if anyone experience the above or could explain any of it. I do have some CNS issues and may have lupus as well, am diagnosed with fibro. I'm just completely confused on what happend that day so if anyone can clear up this issue with me i'd be greatful for you.
:D Kitten
Sponsor
inda
11-27-2005, 05:52 PM
Yes I have .. not quite as severe as yours, but when ever we have a front move in.. or as I say the barometer moves I have pain... usually its like this.. it goes up .. i hurt from waist up .. it goes down .. i hurt from waist down.. excrutiating pain ... i lay in bed and scream.. the only thing i have found that helps me is to fold my electric blanket in two and crawl in and turn it on high - both sides and large doses of my pain killers and muscle relaxants :rolleyes:
Glojer
11-27-2005, 08:05 PM
Welcome Indysasha
I have more pain when the barometer moves also, but never have I had the paralyzing thing going on. Just more hip pain and joint pain.
Glojer
I have more pain when the barometer moves also, but never have I had the paralyzing thing going on. Just more hip pain and joint pain.
Glojer
bluelakelady
11-28-2005, 10:38 AM
i once spent 6 months in bed and a wheelchair. that was at the beginning. i am happy to report i have not had a cycle that severe since. that was almost 11 years ago. i finally got happy and gave my wheelchair away this past june to an elderly woman who had become housebound.
relax, this too shall pass. that is the very cool thing about fibro. no matter what is going on in your body today by tomorrow something else will be demanding all your attention.
welcome shasha. it is always a pleasure to see a new face.
peace on earth,
bluelakelady
relax, this too shall pass. that is the very cool thing about fibro. no matter what is going on in your body today by tomorrow something else will be demanding all your attention.
welcome shasha. it is always a pleasure to see a new face.
peace on earth,
bluelakelady
hangin
11-28-2005, 06:34 PM
So true that fibro changes from day to day.
I understand the extreme pain in the legs. THe only time I felt paralyzed was after I had moved. I decided to lay down and could not get up. My body was in so much pain. I had shoved it into the back of my mind. I know that some of it was pure exhaustion. It was scary, my hubby had to come and help me get up and out of my whirling mind. I do not know if I could have gotten up if the house was on fire. Sounds overly dramatic but I remember that helpless feeling.
Sometimes there are no answers and our bodies heal themselves.
Take care. All will be well.
Peace and love, Hangin
I understand the extreme pain in the legs. THe only time I felt paralyzed was after I had moved. I decided to lay down and could not get up. My body was in so much pain. I had shoved it into the back of my mind. I know that some of it was pure exhaustion. It was scary, my hubby had to come and help me get up and out of my whirling mind. I do not know if I could have gotten up if the house was on fire. Sounds overly dramatic but I remember that helpless feeling.
Sometimes there are no answers and our bodies heal themselves.
Take care. All will be well.
Peace and love, Hangin
Trisha36340
11-29-2005, 03:17 PM
Might you be suffering with hip Bursitis????
inda
11-29-2005, 09:45 PM
{{{{{glojer }}}}}} Thank you for the welcome!! I thought I would introduce myself. I am 50 (51 ion Jan 23) female living in Indiananpolis Indiana . I was dxd in 1991 by my then Internist. I have tried almost all of the things you can try and or do for fibro. I also have famial depression which is made worse by the fibro. Up to 24 months ago I was working.. and then went into a severe depression and just shut down... so now I am exisiting on SSDI and trying to find positives in all the negatives. lol cant always do that. But if I can help anyone or answer any questions I will be glad to.. or even just to let someone vent .. we all need that!!! {{{{{{ huggsies}}}}} :eek:
csavage
11-30-2005, 01:05 AM
Indysasha - You sound so much like me and what I have been goiong through lately! I also have Fibromyalgia, a blood clotting disorder and depression. My body and mind just completely shut down earlier this year - I felt like I had had a mental and physical breakdown. I had to leave a job I loved and had struggled to stay with. I also applied for SSDI, but have had to appeal after being turned down the first time. It has been a struggle dealing with the depression and pain, but I am slowly gaining some ground with the depression. Once I have it at a more manageable stage I will be able to work more at improving the health areas. I know I am stuck with Fibromyalgia and the blood disorder for life, but I have successfully lived with the Fibromyalgia for 15 years and the blood disorder for 2, so I am working on being optimistic at this point. Good luck to you and please feel free to e-mail. :p Carla
bluelakelady
11-30-2005, 09:49 AM
breath my new friends. be welcome here and breath. in time you will find your way with this. i too had to learn to live joyously on a very small income. you will find the positives that come from having an illness that simply has no answer right now.
i also am 50. you get the hang of it. for myself a good shrink was like a jump start on living in my altered body. i "graduate" from head shrinking this next month. after 9 years of sitting at the feet of others learning new skills i am ready to fly solo. this is a healing i can carry thru the rest of my life.
again i welcome all your lovely new faces to our family. my, how we are growing.
peace on earth,
bluelakelady
i also am 50. you get the hang of it. for myself a good shrink was like a jump start on living in my altered body. i "graduate" from head shrinking this next month. after 9 years of sitting at the feet of others learning new skills i am ready to fly solo. this is a healing i can carry thru the rest of my life.
again i welcome all your lovely new faces to our family. my, how we are growing.
peace on earth,
bluelakelady
Jenetti
12-02-2005, 01:45 AM
i havent had the paralysis , but within the last two weeks i have noticed two new symptoms. my legs feel extremely heavy when i first get up in the morning. almost like theyre not working. they dont go in the direction i want them to go and when i take a step it feels like im just dropping dead weight on the floor. looks funny too, like im stomping. it is scaring me as it takes a few hours for it to go away. also alot of pain in the waist hip area. the 2nd sypmtom is that i am dropping things more frequently. feels like someone turned a light switch off and on real quick. my hand is fine, then jerks and drops whatever im holding then split second later like the switch is turned back on and my hand is fine. has anyone had this happen before? what about the legs?
bluelakelady
12-02-2005, 11:00 AM
hey jenetti,
where you been hanging our girl? relax, my body does the same things. i am wondering if you have restless leg syndrome? i do and it is thruout my whole body. i get the hurky jerky and things fly. one nice thing about it is if i drop it and it breaks i don't have to dust or wash it again, giggle. had a rheumy tell me it was the rls causing all that unexpected activity and the lethargic feeling in my legs.
now we can walk sexy together. i get to drag my right leg. oh how time does change things, giggles!
peace and three hugs,
bluelakelady
ps welcome to our family trisha3. may you find peace and lasting friends here.
where you been hanging our girl? relax, my body does the same things. i am wondering if you have restless leg syndrome? i do and it is thruout my whole body. i get the hurky jerky and things fly. one nice thing about it is if i drop it and it breaks i don't have to dust or wash it again, giggle. had a rheumy tell me it was the rls causing all that unexpected activity and the lethargic feeling in my legs.
now we can walk sexy together. i get to drag my right leg. oh how time does change things, giggles!
peace and three hugs,
bluelakelady
ps welcome to our family trisha3. may you find peace and lasting friends here.