Two weeks ago, out of the blue, I started seeing flashes of light and blind spots in my vision. After about a week my vision itself seemed to be really bad. Well, my eyes are worse than I thought. 20/400 in the right eye, non-testable at the office (worse than 20/400) in the left eye, and glasses won't help (down fron 20/50 and 20/200 corrected just 5 months ago). My eyes themselves (retina, cornea, etc) look good, I don't have glaucoma, she can find no reason for the vision loss. The only thing she can think of is something Neurological. So I'm waiting for an appt. with the Neurologist :eek:

That's a shame, Pip. Do you have a condition that causes both the deafness and blindness, or are they unrelated?

Torre

Everything is unrelated. I lost the hearing and balance function in my left ear when I was 6 from a brain tumor that they didn't find until I was 12. When they removed the tumor they severed the facial nerve and over the years from my eye not closing, the cornea in my left eye has worn away some and had ulcers, etc., and that's why I'm blind in that eye. Most of he hearing in my right ear was taken by an inner ear disorder, Meniere's Disease. Noone has ever been able to find the cause of the blindness in my right eye.

I'm a mess *LOL* :jester:

Yikes.
Can you have a cornea transplant in your left eye?

T.

No, I'm not a candidate because the left eyelid will never close all the way, so another cornea would just get damaged. :rolleyes: :cool:

Pip,

Have you heard of Cogan's Syndrome? Cogan's syndrome is a rare, rheumatic disease characterized by inflammation of the ears and eyes. Cogan's syndrome can lead to vision difficulty, hearing loss and dizziness. Symptoms are as follows:

* Red, painful, light-sensitive eyes or blurred vision
* Hearing loss, which may become profound and permanent
* Vertigo (a sensation of the room spinning; may be called dizziness)
* Poor balance
* Nausea, vomiting
* Fever, fatigue, weight loss

My best friend has this syndrome. She is losing her sight in one eye as a result of this. So mention this to your neurologist. It is often under diagnosed since symptoms overlap with other syndrome/diseases.

Take care

Tanks, Jovach, I will ask about it :)

My hearing loss, dizziness, imbalance, nausea, and fatigue are all due to Meniere's Disease (MM). BUT since MM is a dx of exclusion, there's always a chance that these problems are not MM but from something they just didn't happen to check for. I've heard of Cogan's but don't really know much about it. I'll do some reseaerch on it before I go to the doctor - sometimes symptoms you ignore could be helpful to mention.

I have hit my head a lot this past year, mostly the occipital and parietal regions, but just like coming up and hitting it on a scaffold, fence board, cabninets, etc. I wonder if this could have anything to do with my vision problems :confused: I've also had an increase in migraines over the past year or so, and difficulty with saying the right word or slurring words. I tend to ignore these things, as all people I know with MM seem to suffer with this AND I've had all this mildly from the brain tumor. It's all so confusing :eek:

Gee, Pip, maybe you should start wearing a hockey helmet.

T.

Torre, I need a full body padded suit! Who would believe I grew up dancing and was very graceful? :jester: