My hubby went today and the results of his chest CT scan are not good,it shows active disease again,so after he's completed WBR it's back to chemo.
One good thing is he has no mets to liver,bone,kidneys,or spleen Praise God!!
We will see the hemotology onco on thursday,today we saw radiation onco.
Now I wonder what chemo they will use for second line tx??
Oh this is all so hard how can a body endure all this!?
I don't know how much more he can take!!
Please continue to pray.

God Bless
Karen44

Karen,
So hard to hear such disappointing news...You mentioned all the places it is not active...so where is it active? I do think it is good though he has no mets to the places you mentioned. My husband as them in his lungs, liver, spleen, bone, brain adrenal, lymph. They will do more scans in January to see if it is staying about the same. You asked what they might use for the 2nd round of treatment...I forgot...is his small cell or non? I know they mentioned to my husband they would use something they refer to as PI if it starts growing more but that is for small cell. I will continue to pray for your husband. (and you too!) Where do you live? Do you have a great oncologist?
Kim

Dear Karen, I hate news like this. It seems like the long and winding road just takes a steeper curve. It is good that there are no mets to those areas. If it helps, Bud is so ill with this and yet shows no mets to liver, spleen, right lung, stomach. But as he lays here next to me (I have set up a cot for him so he can be with me throughout the house, wheezing and coughing and hurting, I wonder too, how much more he can take. But he continues to go to work each day and do what he can around the house because "he is not an invalent" as he so succintly put it. I do worry about the frigid weather that has come over our area, as it seems to hamper his breathing abilities. Does this cold weather (not sure where your are from) seem to affect your hubby? What about you Kim? I am at a loss. I wonder if he might not have pneumonia even though they have put him thru 2 rounds of "Z" pack. He goes to his primary physician on Friday and I hope she can help him get some oxygen or something like that since his oncologist said he cannot do that for him. Well, laundry is calling for me and the dog needs to go out. I pray for everyone every day and hope that wherever you are, you can find some peace and rest and hope.

Take care of yourselves and hang tight. We are in for a loooong ride.


Jan

Karen,
Sorry to hear about the discouraging news. My dad is just beginning his journey with small cell, so I am new to this with no encouraging words as for as what is to be expected, but never lose faith- with God all things are possible!Still praying....
Jax

My hubby has SCLC with active disease in his lymph nodes and once again in his chest.
He also has 14 plus mets to brain for which he is having WBR.
He will be starting second line chemo Cisplatin later this week.
He also has a blood clot in his Superior Vena Cava.
This is a long and winding road on which I wished I would have never traveled!!
I pray that someday no one will EVER travel this road!!

Karen44

:bouncing: Oh also wanted to mention the cold air really does a number on my, hubby,he coughs and coughs,I suggested he wear a scarf over his nose and mouth so he will not breathe in the cold air.They also have masks that you can buy.

Karen44

I was reading that they are starting your husband on his 2nd round of Cisplatin. Our doctor told us that if my husband's cancer grew more before 6 months was up he could not do the Cisplatin again. (being resistant) My husband goes in January for more scans but we know he has so many mets to his brain. How is your husband handling the WBR? I think of him everyday knowing my husband needs to do it, but he is wanting to spend the Holiday with the boys without radiation. He is having more pressure lately in his temples, but he tells me that is the stress of my dad being so ill right now. (we know it is just a matter of time) Oh, I have read that having the blood clot in the Superior Vena Cava makes it harder to breathe and you have to watch for so many symptoms. (only what I read) My husband has two blood clots but they are in his left arm. As far as my husband's breathing since Jan was asking since it is colder...we live in Irvine, CA so we are forunate we have pretty mild winters. (I think it got down to 35 last night which is cold for us) I have noticed he is coughing more and wheezing but we have been lucky so far. My oldest son and I even got bronchitis, but my husband must be strong because he did not get it! We were so thankful. The doctor's tend to lead us to believe the cancer in the lungs won't take my husband's life...but the liver. His liver has some large lesions and when he did the Cisplatin they only got about a 30% reduction of cancer and the lungs 50%. (we were thankful there was some shrinkage but had hoped for more!) Karen and Jan my heart goes out to you. When I am getting weak emotional I think of all the other caregivers going thru the same thing I am so I shake it off. It does not help that my dad is in renal failure right now too. I just need to keep my faith as all of you do too. I need to run for now but words cannot express how much it helps reading and sharing these thoughts with all of you. My thoughts and prayers are with you...
Kim

We all have to be strong and concentrate on enjoying what time we do have together.
I know at times I just want to run and run and run,but this is our realitys and we must face it one day at a time!!
My hubby is tolerating WBR well,he's a little upset now because his hair has started to fall out and I mean by the handfuls,so my oldest wants to shave his head,so he will give her the pleasure of that this weekend!!He has a lot of facial swelling that's due to both the clot and the steroids!!
He has had a lot of coughing but that's due to the activity in his chest again so far no shortness of breath Thank God!!
For my hubby they're doing pallative tx just to keep him comfortable.
He knows this but refuses to accept defeat to the cancer,and that's the key to keep him fighting as long as his body is able to!!
Thank God for all of you here who post this is such a Godsend to just be able to talk to others who are going thru this.
I continue to pray for each and everyone of you
God Bless

Karen44