Sco24
12-06-2005, 03:38 AM
anybody experience constant lightheadedness and/or off balance feeling, or like your heart is pumping in the back of ur head or ears? if so, what do you do to relieve it? does it eventually go away on its own as the MS morphs into other sympoms. or is it something ur stuck with for the rest of ur life? (i hope not). any luck with acupuncture or anything else? or is this not a common syptom, meaning it could be something else entirely? anywayz, any info would be great thanks
scott
scott
Sponsor
lilc
12-06-2005, 07:46 AM
For at least 3 years I've had a sort of lightheaded, off-balance feeling most of the time. I have never found anything to relieve it, but I do know that when I didn't know I had MS and I would get very anxious about it I always felt worse. I too would like to know if anyone has found relief from this. I had pretty much resigned myself to just living with it!
Sharon Grace
12-06-2005, 03:54 PM
Hi Scott. Far as I am concerned, Florida has Disney World, MS has Dizzy World! It is a very common problem and not at all fun to live with. Sometimes I feel like the world is just clouded over, like looking out through a veil or something, other times its just lightheadedness. Sometimes I get dizzy just standing still, other times I get the room spinning around me (like I am on a merry-go-round). Not much you can do but live with it. If you feel that it is from stress and anxiety, there are meds that can help decrease the level of anxiety you are having. I started on an anti-anxiety med a few months ago and it has helped with some symptoms. Talk to your neuro about your options. Hang in there :wave: Sharon Grace
Natatude
12-06-2005, 04:05 PM
i have that alot and been having it real bad now for about 3 days,,, my neuro ordered an MRI i have it thursday morning,,, i tried accupressure and it made it worse,,, so now i just rub flexall on places that are pulling that make me feel dizzier,, and take muscle relaxers and lay down for a bit that seems to help somewhat.
Sco24
12-06-2005, 04:21 PM
so do they know what causes it? and also is there any inner ear meds that help cut out the mixed signals coming out? anybody else have any luck with acupuncture or anything?
scott
scott
Kate in Arizona
12-06-2005, 06:11 PM
I've experienced this symp on and off for years- long before I knew I had MS.
I am of the opinion, and I'm not a doc but a journalist:), that while the source of this may be MS related it is something that is exacerbated by environmental factors. For example, I have long noted that I am very sensitive to perturbations which occur 36-48 hours prior to a large earthquake. That's not much of a problem for me in Arizona, but it certainly threw me off balance more than once living in Seattle.
Additionally, the intense solar activity of the last couple of years- including the single largest solar flare ever recorded- has been downright strange. Google "unusual solar activity" or "solar storms/solar flares and effects on human beings" and you'll be amazed. I believe that EVERYONE is feeling the effects of the changes taking place on the Earth and the Sun- but those of us with autoimmune diseases are like canaries in the coal mines. We feel it first and we feel it hardest.
I am of the opinion, and I'm not a doc but a journalist:), that while the source of this may be MS related it is something that is exacerbated by environmental factors. For example, I have long noted that I am very sensitive to perturbations which occur 36-48 hours prior to a large earthquake. That's not much of a problem for me in Arizona, but it certainly threw me off balance more than once living in Seattle.
Additionally, the intense solar activity of the last couple of years- including the single largest solar flare ever recorded- has been downright strange. Google "unusual solar activity" or "solar storms/solar flares and effects on human beings" and you'll be amazed. I believe that EVERYONE is feeling the effects of the changes taking place on the Earth and the Sun- but those of us with autoimmune diseases are like canaries in the coal mines. We feel it first and we feel it hardest.
Sco24
12-06-2005, 06:59 PM
i wouldn't doubt environmental for a second. so here's couple more questions that i would love info on.
so first, if u have dizzy off balance crap, pretty constantly, does this have anything to do with what type of MS u have? like primary progressive or relapsing remitting? cuz i was worried about that. can u have dizzy stuff and still have relapsing remitting?
also, has anyone tried major diet revision, and if they have , have u noticed any changes, posibbly no more dizziness?
also, has anyone moved out of their area, possibly out of allergies they are allergic to, and gone somewhere and felt better?
thanks
scott
so first, if u have dizzy off balance crap, pretty constantly, does this have anything to do with what type of MS u have? like primary progressive or relapsing remitting? cuz i was worried about that. can u have dizzy stuff and still have relapsing remitting?
also, has anyone tried major diet revision, and if they have , have u noticed any changes, posibbly no more dizziness?
also, has anyone moved out of their area, possibly out of allergies they are allergic to, and gone somewhere and felt better?
thanks
scott
Kate in Arizona
12-06-2005, 07:59 PM
Yes, to moving out of the area and noticing a definite decrease in episodes of dizziness. I think it is related to what I mentioned in my eariler post and, as you suggest, to fewer allergens in my current desert environment. When my sinuses are less congested, as they are here, I feel much better.
lilc
12-06-2005, 08:06 PM
Kate, how long have you lived in Scottsdale? I live in Chandler. Have you been through a summer yet?
Kate in Arizona
12-06-2005, 08:19 PM
hahahahah-
Yes, I've been through a summer! I came down here in July and spent a month out in Carfree before going back to Seattle, moving out of my condo and relocating here in September. Luckily- I love, love, love the heat and am not at all heat-intolerant. Quite the opposite: my legs freeze up with cold weather. I walked over to Starbucks at 92nd and Shea, 2 miles away from my home, this morning about 7 am and it was FREEZING! If the sun hadn't warmed things up, I would not have been able to walk back.
How about you? Are you heat intolerant?
Yes, I've been through a summer! I came down here in July and spent a month out in Carfree before going back to Seattle, moving out of my condo and relocating here in September. Luckily- I love, love, love the heat and am not at all heat-intolerant. Quite the opposite: my legs freeze up with cold weather. I walked over to Starbucks at 92nd and Shea, 2 miles away from my home, this morning about 7 am and it was FREEZING! If the sun hadn't warmed things up, I would not have been able to walk back.
How about you? Are you heat intolerant?
lilc
12-06-2005, 08:29 PM
I moved to AZ from Minnesota in April 2000, FINALLY got my dream of wonderful desert HEAT! The irony is I started having trouble with my beloved heat in 2004, now I know why (got dx 3 months ago). I still wouldn't trade it, HATE being cold. (I get plenty of reminders of how much I hate it, I work in DC, snow on the ground this morning.) I'll be home for 2 weeks for Christmas, sure hope we get back to normal weather by then. Thanksgiving was perfect, wasn't it?
curiousforever
12-06-2005, 08:56 PM
I moved to AZ from Minnesota in April 2000, FINALLY got my dream of wonderful desert HEAT! The irony is I started having trouble with my beloved heat in 2004, now I know why (got dx 3 months ago). I still wouldn't trade it, HATE being cold. (I get plenty of reminders of how much I hate it, I work in DC, snow on the ground this morning.) I'll be home for 2 weeks for Christmas, sure hope we get back to normal weather by then. Thanksgiving was perfect, wasn't it?
Tell me about it-I'm in Yuma-and if the heat isn't on to 77 in my house and me in sweats and socks (and sometimes even then) I FREEZE!!
I'm diagnosed with nothing-except bad elbows right now-had no problems over the summer except almost falling over upon standing and when closing my eyes and foot drop-and took all 4 boys to pool almost every day in the 120 degree weather with no problems...but have lots of problems now and trying to figure it out.
Tell me about it-I'm in Yuma-and if the heat isn't on to 77 in my house and me in sweats and socks (and sometimes even then) I FREEZE!!
I'm diagnosed with nothing-except bad elbows right now-had no problems over the summer except almost falling over upon standing and when closing my eyes and foot drop-and took all 4 boys to pool almost every day in the 120 degree weather with no problems...but have lots of problems now and trying to figure it out.
Kate in Arizona
12-06-2005, 09:39 PM
It was hilarious walking over to Starbucks this morning- all the maintenance workers here at the ranch where I live were all in parkas and snow hats and mittens. I had my Patagonia down jacket and fleece longjohns-
The cold DOES feel bone chilling and it's not normal. But I guess everything is relative when you see pics of the E. Coast blizzard on TV. And, yes, Thanksgiving weather was perfect! 75 degrees and a nice breeze......
The cold DOES feel bone chilling and it's not normal. But I guess everything is relative when you see pics of the E. Coast blizzard on TV. And, yes, Thanksgiving weather was perfect! 75 degrees and a nice breeze......
curiousforever
12-06-2005, 09:49 PM
All of my family's allergies actually are worse here than they were in north carolina though. I thought they'd be gone....it's crazy!
I guess next year we're going to probably move somewhere-hopefully somewhere not too, too cold!
I guess next year we're going to probably move somewhere-hopefully somewhere not too, too cold!
Natatude
12-07-2005, 10:41 AM
Sco i have RRMS and never had alot of priblems with the dizziness until about 2 yrs ago and it keeps getting worse as time goes on,,, also the neuro told me the other day when i asked him about Lhermittes sign if i have that, and he said yes u very well could have that,,, cause i have alot of pain in my neck and spine, so i am trying a new med for it to see if it helps,,, i do not wake up dizzy it's as the day progresses it gets way worse,, and by 11pm i am totally ready to just fall down on the floor so i have to get my rear end to bed. i do not think there is anything they can do to stop it,, cause my neuro has never suggested anything,, so i would just assume we gotta get used to it.
Sco24
12-07-2005, 07:49 PM
they don't say waht causes it? also have u tried diet changes or anything? if so what?
scott
scott
lilc
12-07-2005, 08:55 PM
Scott, there is a "MS Diet" that some folks on the board have tried. Post a thread about it, you should get replies. (I'm not good at ANY sort of diet discipline!)
Over the past 3 years I've had good days and not so good days, but I do find I have more dizzy-trouble when I am stressed. Don't know what causes it, I can only imagine it has something to do with demyelination in certain areas of the brain...
Over the past 3 years I've had good days and not so good days, but I do find I have more dizzy-trouble when I am stressed. Don't know what causes it, I can only imagine it has something to do with demyelination in certain areas of the brain...