SRMom
12-09-2005, 01:35 PM
I had a laparoscopy done on Nov. 16 to look for the source of pain I've been suffering from for a year. Yesterday, I saw my ob/gyn for my post op and we talked about the results and my options. She told me I have endometriosis and my uterus is boggy, which could mean internal endometriosis. She also told me I have scar tissue on my peritoneum that is probably from endometriosis that has come and gone.
My options were many. She said birth control pills, but we've tried two already and I felt worse on them (like PMS 24/7). She said I could try depo lupron (I think that's what she called it) to see if that helps. She also said I could see a pain management doctor for medication for chronic pain (anti-inflammatories or narcotics). She said I could try biofeedback. She also said I could do talk therapy to deal with daily pain. And finally, she said I could have a hysterectomy, and that I was a good candidate for it.
I am inclined to want to go forward with the hysterectomy. Aside from my pelvic pain that had bothered me daily for the past year, my periods have caused me great pain and distress for years (PMS/PMDD, migraines, severe cramps/bleeding, anxiety/panic associated too). It seems like I only have one week in the month where I feel somewhat okay.
I've been taking narcotic pain relievers for almost the whole year, averaging about 2-3 pills per day. I am not ready to accept that I should take narcotics for many more years until whenever I happen to get to menopause (I'm 46). I am really leaning toward a sooner and more permanent solution with hysterectomy.
I am wondering/worrying if I am making a good choice. I will have a total hysterectomy, through my c-section scar. I'm aware the recovery may take months...I remember my c-section. The thing I'm wondering about is how uncomfortable I may be with instant menopause as opposed to what I'm going through now? I've had hot flashes and know they are annoying, but they don't hurt. I'm concerned about mood swings. I'm already very moody when I have PMS...will this make me this way all month? For how long...months, years? If I am suffering and decide to take HRT, will that make me feel bloated and fat again, like I do when I have PMS?
Sorry for the long post...I appreciate any input. I think I'm ready to do this, just wondering what I'm getting into.
My options were many. She said birth control pills, but we've tried two already and I felt worse on them (like PMS 24/7). She said I could try depo lupron (I think that's what she called it) to see if that helps. She also said I could see a pain management doctor for medication for chronic pain (anti-inflammatories or narcotics). She said I could try biofeedback. She also said I could do talk therapy to deal with daily pain. And finally, she said I could have a hysterectomy, and that I was a good candidate for it.
I am inclined to want to go forward with the hysterectomy. Aside from my pelvic pain that had bothered me daily for the past year, my periods have caused me great pain and distress for years (PMS/PMDD, migraines, severe cramps/bleeding, anxiety/panic associated too). It seems like I only have one week in the month where I feel somewhat okay.
I've been taking narcotic pain relievers for almost the whole year, averaging about 2-3 pills per day. I am not ready to accept that I should take narcotics for many more years until whenever I happen to get to menopause (I'm 46). I am really leaning toward a sooner and more permanent solution with hysterectomy.
I am wondering/worrying if I am making a good choice. I will have a total hysterectomy, through my c-section scar. I'm aware the recovery may take months...I remember my c-section. The thing I'm wondering about is how uncomfortable I may be with instant menopause as opposed to what I'm going through now? I've had hot flashes and know they are annoying, but they don't hurt. I'm concerned about mood swings. I'm already very moody when I have PMS...will this make me this way all month? For how long...months, years? If I am suffering and decide to take HRT, will that make me feel bloated and fat again, like I do when I have PMS?
Sorry for the long post...I appreciate any input. I think I'm ready to do this, just wondering what I'm getting into.
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ktee_uk
12-11-2005, 08:11 AM
Dear SR
So sorry to hear of your painful problems. I really do sympathise with you as your symptoms sound a lot like mine did.
Regarding surgical menopause...... this will only happen if your surgeon also takes out your ovaries. Many surgeons give women the choice to remove them or keep them (unless they see a problem with them during surgery) and so it is often personal choice. A total hysterectomy means taking out the whole of your uterus including the cervix. Some women have a sub-total which takes out the upper part of uterus but leaves cervix behind. There are also some women whose ovaries fail even when they are left in If you want your ovaries removed this is called oopherectomy.
IMO, I think it would a good idea to talk to your gyno or a specialist in hrt to give you advice regarding how to cope with menopause whether it is immediate or natural. There is also a forum on the healthboards for hormone problems so there might be somone there who can also give guidance and suggestions.
good luck
ktee
So sorry to hear of your painful problems. I really do sympathise with you as your symptoms sound a lot like mine did.
Regarding surgical menopause...... this will only happen if your surgeon also takes out your ovaries. Many surgeons give women the choice to remove them or keep them (unless they see a problem with them during surgery) and so it is often personal choice. A total hysterectomy means taking out the whole of your uterus including the cervix. Some women have a sub-total which takes out the upper part of uterus but leaves cervix behind. There are also some women whose ovaries fail even when they are left in If you want your ovaries removed this is called oopherectomy.
IMO, I think it would a good idea to talk to your gyno or a specialist in hrt to give you advice regarding how to cope with menopause whether it is immediate or natural. There is also a forum on the healthboards for hormone problems so there might be somone there who can also give guidance and suggestions.
good luck
ktee
djl
12-11-2005, 08:28 PM
Hi SR MOM
I am 39 and had my hyst 7 months ago with no regrtes. I know we have posted back to eachother on the womans health.
I would DEFFINATELY recomened the Hyst. I am on HRT. I am on the lowest dosege I use it 2-3x a week. It is a patch. I am now also on Xanax for Anxiet attacks when needed.
Even though I am dealing with hot flashes night sweats and mood swings, I would take this over th PAIN I was in preiously !!
To me it is worth it. As you know in previous posts I was a total mess. Now I feel great !! It has been 7 months and I was out dancing up a storm last night !!!!There was absolutly NO WAY I could of done that before the hyst due to all my pain.
If you have any qiestions about the recoop just ask !!
I am 39 and had my hyst 7 months ago with no regrtes. I know we have posted back to eachother on the womans health.
I would DEFFINATELY recomened the Hyst. I am on HRT. I am on the lowest dosege I use it 2-3x a week. It is a patch. I am now also on Xanax for Anxiet attacks when needed.
Even though I am dealing with hot flashes night sweats and mood swings, I would take this over th PAIN I was in preiously !!
To me it is worth it. As you know in previous posts I was a total mess. Now I feel great !! It has been 7 months and I was out dancing up a storm last night !!!!There was absolutly NO WAY I could of done that before the hyst due to all my pain.
If you have any qiestions about the recoop just ask !!
SRMom
12-12-2005, 04:14 PM
ktee...thanks for your response. I didn't think about the hormone health board...I'll look into that. It will be a total hyst...we talked about the cervix and she recommended to take it out. I've been having pain with intercourse and she said taking the cervix would prevent any spotting and also it wouldn't be there to bump into during sex. She also will take the ovaries, because the estrogen they produce is what's causing all the endo trouble. That's my understanding anyway.
djl...great to have you here to help me, thanks. Would you say your moodiness is similar to PMS, or is it less or more bothersome? I would so love to go out dancing...I used to all the time (my husband used to be in a rock band), but there's no way I could go dancing like I am now. Also, did you have your hyst. abdominally, laparoscopally, or vaginally? I'm wondering if the recovery will be a little easier than my C-section was. I can't have it done vaginally because I've never had a vaginal birth and my doc isn't trained to do hyst. by laparoscope yet, so she'll be doing it through my old C-section scar.
Thanks again for all the help everyone.
djl...great to have you here to help me, thanks. Would you say your moodiness is similar to PMS, or is it less or more bothersome? I would so love to go out dancing...I used to all the time (my husband used to be in a rock band), but there's no way I could go dancing like I am now. Also, did you have your hyst. abdominally, laparoscopally, or vaginally? I'm wondering if the recovery will be a little easier than my C-section was. I can't have it done vaginally because I've never had a vaginal birth and my doc isn't trained to do hyst. by laparoscope yet, so she'll be doing it through my old C-section scar.
Thanks again for all the help everyone.
djl
12-12-2005, 04:38 PM
Hi SR Mom
I had my hyst done abdominaly. I couldnt vaginaly because my doc ssaid I didn;t have good enogh support for it. I couldnt do it Laparscopicaly because the doc that actualy does it is not on the insurance. I didnt care just couldnt wait to have it done so I could be pain free.
As for the mood swings, I would say it is worse than PMS, but yah get through it. Like I said it is better than the pain !!
I had my hyst done abdominaly. I couldnt vaginaly because my doc ssaid I didn;t have good enogh support for it. I couldnt do it Laparscopicaly because the doc that actualy does it is not on the insurance. I didnt care just couldnt wait to have it done so I could be pain free.
As for the mood swings, I would say it is worse than PMS, but yah get through it. Like I said it is better than the pain !!
SRMom
12-12-2005, 06:57 PM
Thanks...I'll get a t-shirt with a warning on it :) You're right, it would be better than the pain.
kaye2kaye
12-25-2005, 12:12 AM
I was glad to have the hysterectomy since I had endometriosis and fibroids. The endo destroyed one ovary and part of the other. The fibroids were growing outside of the uterus. I had constant bleeding. I think things would have been much worse if I never had the surgery - maybe cancer. So, it has been 20 years and I am doing very good. Best of luck to you and I hope the physician will lead you in the right direction for treatment and/or cure.
SRMom
01-11-2006, 06:37 PM
I finally got the courage to schedule my surgery for January 25. I'm so hopeful it will cure my chronic pain. I'll have a total hyst., ovaries and all. I should be in the hospital for three days, according to the nurse who scheduled my surgery.
I'm guessing my recovery will be similar to when I had my C-section. Has anyone had both a C-section and an abdominal hysterectomy?
This has been a really tough decision for me...I'm not 100% convinced this is the solution for me, but given my options, this seemed like the best.
I'm guessing my recovery will be similar to when I had my C-section. Has anyone had both a C-section and an abdominal hysterectomy?
This has been a really tough decision for me...I'm not 100% convinced this is the solution for me, but given my options, this seemed like the best.
djl
01-11-2006, 08:08 PM
SR Mom
I wish you luck !! I do believe you made the right choice.
It deffinately worked for me. I cant tell you what a difference it made for me. Listen, if it works and I do belive it will, you will be trading off the pain for hot flashes some night sweats and mood swings. which would you rather deal with??
I know I take menopause over the pain any day!! :bouncing:
I wish you luck !! I do believe you made the right choice.
It deffinately worked for me. I cant tell you what a difference it made for me. Listen, if it works and I do belive it will, you will be trading off the pain for hot flashes some night sweats and mood swings. which would you rather deal with??
I know I take menopause over the pain any day!! :bouncing:
Parlad
01-12-2006, 07:49 AM
SRMom,
I am currently recovering from an abdominal subtotal hysterectomy (left most of cervix and ovaries) done in early December. I have to say that it was the right decision for me - previous major myomectomy to remove a very large fibroid followed by more fast growing fibroids. They have their own "qualities" but doubt the pain came close to what you have with the endo.
My thoughts - 1) This is a very personal decision. Age and family issues will impact how you feel about the surgery. I'm past the childbearing stage and was sure that it was a good medical decision so have not experienced much in the way of regret. 2) the recovery is much more than a caesarean - it's a major operation that requires serious modification in your day-to-day life for quite some time. Suggest the ************* for extensive information, 3) even with ovaries left in, there can be hormonal issues as I'm experiencing daily, 4) this is my 4th surgery, 2nd major surgery, and I would strongly advise that the decision to have or not have the procedure be totally based on your own reasoning - in other words, whatever you decide, make sure you believe you are doing what's best, 5) if you decide to have this done, get the best possible surgeon - it's a common surgery and the med profession often acts like it's no big deal - but it is a very delicate op, especially with added issues such as the endo.
That said, I'm glad I had the surgery. It needed to be done and I know my life will be better for it. It was/is by no means easy. Wishing you the best in making this major decision.
I am currently recovering from an abdominal subtotal hysterectomy (left most of cervix and ovaries) done in early December. I have to say that it was the right decision for me - previous major myomectomy to remove a very large fibroid followed by more fast growing fibroids. They have their own "qualities" but doubt the pain came close to what you have with the endo.
My thoughts - 1) This is a very personal decision. Age and family issues will impact how you feel about the surgery. I'm past the childbearing stage and was sure that it was a good medical decision so have not experienced much in the way of regret. 2) the recovery is much more than a caesarean - it's a major operation that requires serious modification in your day-to-day life for quite some time. Suggest the ************* for extensive information, 3) even with ovaries left in, there can be hormonal issues as I'm experiencing daily, 4) this is my 4th surgery, 2nd major surgery, and I would strongly advise that the decision to have or not have the procedure be totally based on your own reasoning - in other words, whatever you decide, make sure you believe you are doing what's best, 5) if you decide to have this done, get the best possible surgeon - it's a common surgery and the med profession often acts like it's no big deal - but it is a very delicate op, especially with added issues such as the endo.
That said, I'm glad I had the surgery. It needed to be done and I know my life will be better for it. It was/is by no means easy. Wishing you the best in making this major decision.
SRMom
01-12-2006, 06:43 PM
Well I had hoped to hear the hyst. will be as "easy" as my C-section was...it was by no means easy, but I didn't take pain meds after the hospital because I wanted to breast feed and I made it without the meds, although it would've been better with them.
I am sure I want to do this, just not 100% sure it will get rid of my pain (I guess because I've had the pain so long I figure nothing will work) and it sounds like I won't even know for several weeks. My doctor is an experienced surgeon and I have faith in her. The lap she did on me was perfect. I appreciate the input and to djl, I really appreciate the positive feedback. You are right, I'll take hot flashes over pain any day. I'll keep you posted.
I am sure I want to do this, just not 100% sure it will get rid of my pain (I guess because I've had the pain so long I figure nothing will work) and it sounds like I won't even know for several weeks. My doctor is an experienced surgeon and I have faith in her. The lap she did on me was perfect. I appreciate the input and to djl, I really appreciate the positive feedback. You are right, I'll take hot flashes over pain any day. I'll keep you posted.
djl
01-13-2006, 04:57 PM
Please keep me posted SR Mom !!
I know what you are saying..I felt the exact same way !! I thought no matter what I would do I would alsways be in pain.. I thought I would just suffer for the rest of my life. But so far so good !!
I know what you are saying..I felt the exact same way !! I thought no matter what I would do I would alsways be in pain.. I thought I would just suffer for the rest of my life. But so far so good !!
MrsQueeZ
01-14-2006, 11:47 AM
I am 42, and I just had a TAH on Dec. 28, for a massive fibroid and a 5+ month size uterus. I also had a colon resection at the same time. The colon was my main surgery, the uterus was just in the way! I have a large abdominal incision, and I am almost 3 weeks out of it now. I have to say I feel WAY better than I expected! My energy level is coming up daily, and I almost feel frustrated, wanting to do things but knowing I shouldn't. I kept my ovaries, but have had some night sweats, etc. I haven't taken anything for pain but Advil since leaving the hospital and I have been fine! Started sleeping through the night at about a week and a half, without waking up to take more Advil. Still not much stamina when I go out. Small trips are all I can handle, but SOOO much better than I would have imagined!! :bouncing:
SRMom
01-15-2006, 03:29 PM
So glad to hear the good news on your recovery. I think I'll do okay too, I'm pretty healthy, despite my endometriosis and possible adenomyosis. Hope everything continues to go well. What was wrong with your colon...if you you don't mind me asking?
kbharley
01-20-2006, 01:38 PM
From your post here it sounds like we have been experiencing the same thing. I have been in pain for over a year and have had tests, tests, and more tests. I even had a colonoscopy just to rule out bowel problems. I had an endometrial ablation and that is when they found the adenomyosis. I'm having my surgery Monday and they are going in through my C-Section scar and taking out everything, including both ovaries.
I just wanted to tell you good luck and I'll be thinking about you.
I just wanted to tell you good luck and I'll be thinking about you.
AmyW
01-20-2006, 01:50 PM
Hi SRMom! Just wanted to wish you luck on your upcoming surgery!
I have suffered from endometriosis since I was 20. I'm now 35. I had horrible pain, totally dibilitating at times, couldn't work, couldn't do anything. Had two lap surgeries (1996 and 99) to manage the pain but it always came back.
Had a total abdom. hysterectomy this past monday after having my son through C section in June 2004. The pain and recovery seems similar to me. I feel VERY sore and a bit nauseated in the morning. Have trouble moving around, have to take it slow for obvious reasons. I think the very worst I've experienced so far was having to urinate for the first time on my own (without the catheter). I had a LOT of trouble. I sat in the bathroom in the hospital for a good 25 minutes trying to go and couldn't. Knew I had to, but it wouldn't happen. Turn on the water faucet when you try. Listening to the water running actually did help. It stings a little when you first go, and you have to totally retrain your bladder. It feels weird, but as time passes, it does get easier.
If you have any other questions I've failed to address, please ask. I'm glad to try and help you out! Good luck and best wishes!
Amy
I have suffered from endometriosis since I was 20. I'm now 35. I had horrible pain, totally dibilitating at times, couldn't work, couldn't do anything. Had two lap surgeries (1996 and 99) to manage the pain but it always came back.
Had a total abdom. hysterectomy this past monday after having my son through C section in June 2004. The pain and recovery seems similar to me. I feel VERY sore and a bit nauseated in the morning. Have trouble moving around, have to take it slow for obvious reasons. I think the very worst I've experienced so far was having to urinate for the first time on my own (without the catheter). I had a LOT of trouble. I sat in the bathroom in the hospital for a good 25 minutes trying to go and couldn't. Knew I had to, but it wouldn't happen. Turn on the water faucet when you try. Listening to the water running actually did help. It stings a little when you first go, and you have to totally retrain your bladder. It feels weird, but as time passes, it does get easier.
If you have any other questions I've failed to address, please ask. I'm glad to try and help you out! Good luck and best wishes!
Amy
kbharley
01-20-2006, 01:55 PM
Amy, are you able to go to the bathroom without assistance? I think that is what is worrying me the most. I may be without help for several hours the Thursday and Friday after my surgery.
AmyW
01-20-2006, 02:15 PM
Amy, are you able to go to the bathroom without assistance? I think that is what is worrying me the most. I may be without help for several hours the Thursday and Friday after my surgery.
At the hospital, right after the surgery, No, I couldn't go without assistance. If it's directly after your operation, you'll feel dizzy and queasy and don't need to try and walk on your own. You could seriously fall and that would be horrible!
If it's a few days after your operation, then yes, you should be able to as long as you take it slow! I mean, really slow! Baby steps while hanging onto anything you can is best. I can walk now freely without help, though it's still a bit uncomfortable and actually going to the bathroom is uncomfortable too.
You'll have difficulty urinating and having a bm, but it comes in time, I promise. It stings slightly and you'll feel weird pressure, but it's generally tolerable.
I wanted to add something to my previous post about what to expect in the hospital:::
*Take some Mylicon Drops (For infant gas) with you unless your doc will order some for you. Mine didn't and I was in hell with gas pains. Talk about horrible!! If you take it with you, make sure you tell the nurse that you'll be taking it before you do.
*Take chapstick with you. Your mouth will be sore and chapped after surgery due to the breathing tube. I got cold sores something awful from mine and my lips were chapped to the point of throbbing. I had to beg a nurse to get me some vaseline from the mother baby unit.
Good luck! Let me know what other questions there may be. :)
At the hospital, right after the surgery, No, I couldn't go without assistance. If it's directly after your operation, you'll feel dizzy and queasy and don't need to try and walk on your own. You could seriously fall and that would be horrible!
If it's a few days after your operation, then yes, you should be able to as long as you take it slow! I mean, really slow! Baby steps while hanging onto anything you can is best. I can walk now freely without help, though it's still a bit uncomfortable and actually going to the bathroom is uncomfortable too.
You'll have difficulty urinating and having a bm, but it comes in time, I promise. It stings slightly and you'll feel weird pressure, but it's generally tolerable.
I wanted to add something to my previous post about what to expect in the hospital:::
*Take some Mylicon Drops (For infant gas) with you unless your doc will order some for you. Mine didn't and I was in hell with gas pains. Talk about horrible!! If you take it with you, make sure you tell the nurse that you'll be taking it before you do.
*Take chapstick with you. Your mouth will be sore and chapped after surgery due to the breathing tube. I got cold sores something awful from mine and my lips were chapped to the point of throbbing. I had to beg a nurse to get me some vaseline from the mother baby unit.
Good luck! Let me know what other questions there may be. :)
SRMom
01-20-2006, 03:25 PM
Good luck! Let me know what other questions there may be. :)
Thanks for all the help Amy. I never would have thought about gas pains. I don't remember that from my C-section. I remember having trouble urinating and they gave me a suppository so I'd have a bowel movement before I left the hospital. That was 16 years ago though. I'll ask my doctor about these things when I see her for my pre op appt. I'll take chapstick and keep it with my glasses.
Hope you feel better soon Amy and good luck to you kbharley!
Thanks for all the help Amy. I never would have thought about gas pains. I don't remember that from my C-section. I remember having trouble urinating and they gave me a suppository so I'd have a bowel movement before I left the hospital. That was 16 years ago though. I'll ask my doctor about these things when I see her for my pre op appt. I'll take chapstick and keep it with my glasses.
Hope you feel better soon Amy and good luck to you kbharley!
kbharley
01-20-2006, 03:35 PM
Thanks for all the help Amy. I never would have thought about gas pains. I don't remember that from my C-section. I remember having trouble urinating and they gave me a suppository so I'd have a bowel movement before I left the hospital. That was 16 years ago though. I'll ask my doctor about these things when I see her for my pre op appt. I'll take chapstick and keep it with my glasses.
Hope you feel better soon Amy and good luck to you kbharley!
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
Hope you feel better soon Amy and good luck to you kbharley!
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
kbharley
01-20-2006, 03:36 PM
Thanks for all the help Amy. I never would have thought about gas pains. I don't remember that from my C-section. I remember having trouble urinating and they gave me a suppository so I'd have a bowel movement before I left the hospital. That was 16 years ago though. I'll ask my doctor about these things when I see her for my pre op appt. I'll take chapstick and keep it with my glasses.
Hope you feel better soon Amy and good luck to you kbharley!
Thanks for the wishes SRMom. Right back at you. :D
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
Hope you feel better soon Amy and good luck to you kbharley!
Thanks for the wishes SRMom. Right back at you. :D
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
SRMom
01-20-2006, 03:46 PM
Thanks for the wishes SRMom. Right back at you. :D
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
Yeah...I remember the seatbelts vividly, because after my son was born, he had to go to the NICU in another hospital 45 minutes from my house. I made one trip without the pillow, and it was horrible. I wasn't taking pain meds though, and we probably will be for the hysterectomy. Good to have a pillow just in case.
I just want to say you ladies are so nice and thoughtful. It's really helping me with this. Talk to you soon :)
Thanks for the suggestions Amy. I never would have thought of chapstick or gas pains. Another good idea I saw was to take the pillow with you for the ride home. I have almost an hour ride to my house from the hospital and I'm sure that seat belt is not going to be very comfortable on my incision.
Yeah...I remember the seatbelts vividly, because after my son was born, he had to go to the NICU in another hospital 45 minutes from my house. I made one trip without the pillow, and it was horrible. I wasn't taking pain meds though, and we probably will be for the hysterectomy. Good to have a pillow just in case.
I just want to say you ladies are so nice and thoughtful. It's really helping me with this. Talk to you soon :)
AmyW
01-21-2006, 04:55 PM
You're very welcome, SRMom and kbharley! And a pillow is a brilliant idea! I forgot about that. The ride home might be bumpy and that seatbelt will definately hurt. Press it to your middle as hard as you feel comfortable doing, it really does help. That also helps when you have to cough. I've kept swallowing wrong and had to cough today and whew! Really not a good feeling.
If you have long hair like me, don't forget a hair tie because your hair will get tangled from wallowing around in your hospital bed. Good books/magazines are a must, too. Anything else that helps you relax, such as a sound machine might be good too. It would drown out the annoying sound of other patient's monitors going off all night long! That drove me batty! :bouncing:
Best wishes to both of you and to everyone else!
Amy
If you have long hair like me, don't forget a hair tie because your hair will get tangled from wallowing around in your hospital bed. Good books/magazines are a must, too. Anything else that helps you relax, such as a sound machine might be good too. It would drown out the annoying sound of other patient's monitors going off all night long! That drove me batty! :bouncing:
Best wishes to both of you and to everyone else!
Amy
jblakney
01-23-2006, 04:39 AM
[SIZE=3] I am so glad I found this forum. All of the information has been very helpful and assuring. I am 28 yrs old and I am having a hysterectomy Jan. 31st. I had already thought about the taking a pillow with me, but what about clothing items? I know that I am not going to want to wear blue jeans, but what about some lounge pants, similar to Old Navy, or would you suggest I wear my gown and robe home? My husband said I should just wear my gown and robe home, but I thought I would ask for a woman's opinion. I have about a 45 minute ride home myself. Luckily my husband will be with me for the first week. I am starting to get nervous and scared now, but I do know that for me it is the best option. I refuse to take Lupron, for the simple reason that it has been known to cause migraines. I am currently being treated for headaches as it is without taking some meds that will cause me to have them. I am just ready for the 31st to get here so that I can get this over with. I suffer from anxiety and panic attacks, so needless to say worring about this surgery is really causing me some probs. I keep telling myself I will be just fine. I guess you could say I am more worried about the pain afterwards. Tell me its bad but not that bad??? :confused:
grumpypants44
01-23-2006, 11:19 AM
I had a partial hysterectomy 2 years ago, I was 41. It was such a relief as I had suffered with ongoing/non stop bleeding. It was interfering in my job and my ability to do activites I enjoyed.
I had my surgery at 11 a.m. and was out of bed at 6:30 a.m. the next day. A friend of mine had told me that I would have some difficulties, but everything she said was not true for me. My experience was very positive, I did not take any pain medications, no problems walking or looking after myself.
Prior to my surgery I looked for positive outcomes as well, I did not want to hear about negative experiences.
If I had to do it over again, I would without any hesitation. It's probably one of the most positive things I could have done. I was back to work in 1 month and haven't looked back since. :bouncing:
I had my surgery at 11 a.m. and was out of bed at 6:30 a.m. the next day. A friend of mine had told me that I would have some difficulties, but everything she said was not true for me. My experience was very positive, I did not take any pain medications, no problems walking or looking after myself.
Prior to my surgery I looked for positive outcomes as well, I did not want to hear about negative experiences.
If I had to do it over again, I would without any hesitation. It's probably one of the most positive things I could have done. I was back to work in 1 month and haven't looked back since. :bouncing:
jblakney
01-23-2006, 01:03 PM
Thank you so much for the positive reasurrance. I needed it. I keep telling myself anything has to be better than doing nothing at all and having to stay in the bed dern near the whole time I am on my period. Sad thing is I am hurting right now because we couldn't schedule my surgery anytime sooner than when I did so that meant I get to endure my period pain one more time. But come one week from tomorrow, I will be on a road to a lifetime of not having to worry about it anymore.
SRMom
01-23-2006, 07:24 PM
Me too! My surgery is on Wednesday and I started my period last Friday...had a migraine last night and having cramps today. I guess I'll celebrate that it's the last :)
jblakney
01-23-2006, 08:13 PM
WWHHOOO HHOOOO!!! Bartender, pour me a cold one!! I swear, does kinda make me want to jump and down, shout, scream and say "THANK YOU DEAR JESUS". But I do have to say a part of me is kind of sad. I am 28 and I do have one child that is biologically mine and 2 step-children. I know that I don't want anymore of my own, it is just the whole issue. Like my husband said "It's like saying goodbye to someone you will never be able to see again, and Hello to a lifetime of comfort and relaxation". I have friends that will have more children I will just go and borrow thier's and take them back when I am done. Besides those are always the best to have!! Not only that my step-son is 15 so just a few more years and there will be more babies in the house. Not that I am going to RUSH that issue.. Don't want to be to young of a Grandma
SRMom
01-24-2006, 03:42 PM
I know what you mean about being a little sad...weird, eh? I'm 46 and my biological son is 16, my stepson is almost 24. I always wished I'd had another baby, but I had plenty of time to make up my mind. The decision was actually made permanent a few years ago when my husband had a vasectomy. He's over 50 and didn't want any surprises. I sure do love babies though :)
jblakney
01-25-2006, 09:21 AM
It was hard for me at first, but I am doing what is best for me. Having something like this forum that I can post my feelings and questions has really helped. My Husband is a sensitive man, but sometimes it is just not that easy for him to understand.
AmyW
01-25-2006, 01:49 PM
Welcome to the forum JB! Glad that you found us. :)
As far as clothing, I took a comfy pair of pajamas with me and was allowed to change into them (With the nurse's help, due to the iv). Much better than that stupid gown. I took a robe as well but never put it on. If you take PJ's, and if it's a pants/shirt ensemble, make sure the pants aren't tight around your waist. I guarantee you won't be able to wear them. Loose is the key!
The pain isn't too bad, at least in my experience so far. I'm 9 days post op and my biggest complaint is bowel problems. The past couple of days I've switched back and forth between constipation and diarrhea. Really not fun! I have really bad cramps but can't seem to go to the bathroom. Hope that's not too much info, just trying to help in case you go through the same thing. Keep in touch with your doc, keep some Benefiber and Immodium handy in case you have problems.
Be sure to eat, also. I've had NO appetite since my surgery and everything I've tried to eat makes me feel nauseated. However, I went without food for too long and had a near-fainting spell. Really scary: broke out into a sweat, nearly passed out, freezing cold sensations in my arms. PLEASE be sure to eat, even if you just nibble all day long on whatever you can stomach.
Let me know if you have any other questions. Best of luck to you!
Amy
As far as clothing, I took a comfy pair of pajamas with me and was allowed to change into them (With the nurse's help, due to the iv). Much better than that stupid gown. I took a robe as well but never put it on. If you take PJ's, and if it's a pants/shirt ensemble, make sure the pants aren't tight around your waist. I guarantee you won't be able to wear them. Loose is the key!
The pain isn't too bad, at least in my experience so far. I'm 9 days post op and my biggest complaint is bowel problems. The past couple of days I've switched back and forth between constipation and diarrhea. Really not fun! I have really bad cramps but can't seem to go to the bathroom. Hope that's not too much info, just trying to help in case you go through the same thing. Keep in touch with your doc, keep some Benefiber and Immodium handy in case you have problems.
Be sure to eat, also. I've had NO appetite since my surgery and everything I've tried to eat makes me feel nauseated. However, I went without food for too long and had a near-fainting spell. Really scary: broke out into a sweat, nearly passed out, freezing cold sensations in my arms. PLEASE be sure to eat, even if you just nibble all day long on whatever you can stomach.
Let me know if you have any other questions. Best of luck to you!
Amy
djl
01-25-2006, 05:44 PM
I took a nightgown with me so I did not have to worry about the elastic from PJs aggrivating the insicion.
When I left the hospital I did where a loose fitting sweat suit.
When I left the hospital I did where a loose fitting sweat suit.
jblakney
01-25-2006, 07:13 PM
Thanks for the info. I have bought me a couple of night gowns. I had to since all I wear at home are sweats and my husbands t-shirts. Real romantic huh!! He even said it is going to be funny to see me in something other than his t-shirt. As far as the bowel thing, I am used to that I have IBS with constipation. Shoot I am lucky to go once a week and when I do all hell breaks loose. I am not too nervous yet but as it draws closer and closer each day adds to the nerves.
AmyW
02-01-2006, 03:25 PM
Thinking about you, JB. Hoping everything is going well for you. I'm not doing very well myself and am hoping you have an easier recovery than I am. Still waiting and watching for SRMom too, as I have forgotten when her surgery was scheduled! :eek:
Best of luck to everyone with upcoming surgeries!
Amy
Best of luck to everyone with upcoming surgeries!
Amy
Debbie680
02-01-2006, 10:08 PM
Thinking about you, JB. Hoping everything is going well for you. I'm not doing very well myself and am hoping you have an easier recovery than I am. Still waiting and watching for SRMom too, as I have forgotten when her surgery was scheduled! :eek:
Best of luck to everyone with upcoming surgeries!
Amy
Hi Amy,
SRMom's surgery was on 1/25. Hope you're feeling better Amy. I'm sure in another 2 weeks you will be much better. Hope JB is doing well also.
Best of luck to everyone with upcoming surgeries!
Amy
Hi Amy,
SRMom's surgery was on 1/25. Hope you're feeling better Amy. I'm sure in another 2 weeks you will be much better. Hope JB is doing well also.
AmyW
02-04-2006, 06:04 PM
Thanks for the info Debbie! I appreciate that. I also hope SRMom and JB are doing well and I hope to be feeling better soon.
:)
:)
jblakney
02-06-2006, 07:44 PM
Thank you for thinking about me. I am doing good. In fact alot better than I thought I would be. My husband is even shocked at how well I have done. Still slow at getting around, but other than that I feel great. Sorry to hear that you aren't feeling that great. I normally don't go commando but I still can't stand the feeling of panties against that area yet. My husband tried making light of the situation by saying that knowing I didn't have any on turned him on (old Pervert), just too bad he can't get none (doesn't hurt my feelings though). What about you? Are you having any problems with wearing them?
AmyW
02-07-2006, 01:11 PM
I'm too afraid to wear them too. Really sore in that area so forget it! :)
Can't type much, my little one just woke up way too early from his nap. Your husband sounds like a lovely, funny person. Hope you continue to do well. I'll post more later!
XOXO
Amy
Can't type much, my little one just woke up way too early from his nap. Your husband sounds like a lovely, funny person. Hope you continue to do well. I'll post more later!
XOXO
Amy
SRMom
02-23-2006, 06:45 PM
Hi all...back again. I posted my story on another thread today, but wanted to say thanks for following my story and asking about me.
About the panties...my bikinis are too tight near my incision. I've been wearing oversized nylon briefs (leftover from when I was heavier). I'm 4 weeks post op and I can just now wear my jeans again, for short periods of time :) I've been in baggy sweat pants since the surgery.
About the panties...my bikinis are too tight near my incision. I've been wearing oversized nylon briefs (leftover from when I was heavier). I'm 4 weeks post op and I can just now wear my jeans again, for short periods of time :) I've been in baggy sweat pants since the surgery.