Jordy199
12-16-2005, 10:56 PM
What were your first symptoms before being dx withh MS?
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iluvsiamese
12-16-2005, 11:34 PM
My first symptoms I was seen for was optic neuritis, although my mother said she could see signs of it in me even as a teenager. The first symtom I can really recall was lehermites as a teenager. I was dx when I was 27 although that was just formality. They new I had it at about the age of 24, but didn't want to give me a positive dx because they were afraid it would effect my insurance. I'm 34 now, and have left work on disability. Hope that helps answer your question.
Natatude
12-17-2005, 10:48 AM
the optic neuritis,,,, my eye sight would go bad in the summer and then all of the sudden get better,,,, as a child i always fell down loosing stength in my left hip,, and would break arms and wrists and everything in the summer time i always had a damn cast on somewhere,, my parents think now,, maybe i had MS back then,,, and i would always get sick in the summer,,, i was a majorette in high school and we always had band camp and band practice and i would get so sick have to get in the shade,,, and my eye sight would go bad,,, mom took me to the dr and they just said i had heat exhaustion and to just get in the shade drink lot's of ice water.
Jordy199
12-17-2005, 11:58 AM
My first symptoms I was seen for was optic neuritis, although my mother said she could see signs of it in me even as a teenager. The first symtom I can really recall was lehermites as a teenager. I was dx when I was 27 although that was just formality. They new I had it at about the age of 24, but didn't want to give me a positive dx because they were afraid it would effect my insurance. I'm 34 now, and have left work on disability. Hope that helps answer your question.
What did L'hermittes feel like for you?
What did L'hermittes feel like for you?
iluvsiamese
12-17-2005, 02:13 PM
It's not painful, just annoying, when you bend your head down it's like a wire is short circuiting, and I can litterally hear it. It sounds electrical too, but nobody else can hear it.
Jordy199
12-17-2005, 03:28 PM
It's not painful, just annoying, when you bend your head down it's like a wire is short circuiting, and I can litterally hear it. It sounds electrical too, but nobody else can hear it.
Well I do have that kind of, i feel wierd vibrations in my left foot, when i move my neck around it goes away. Does that sound familiar?
Well I do have that kind of, i feel wierd vibrations in my left foot, when i move my neck around it goes away. Does that sound familiar?
lilc
12-17-2005, 05:48 PM
Ah, yes, it sounds familiar. L'Hermitte's was what caused me to go to a doctor. Last March I was sitting on the couch with my sister showing off my new puppy. I looked down and my legs went numb. It was very sudden and freaky, it went away just as suddenly. I didn't relate it to looking down, thought it had something to do with my sciatic nerve. It kept happening, I tried sitting up straighter, never realizing my neck was involved. Then I had a massage, at the end they were stretching my neck and bending my head forward, I felt vibration run down my spine.
It got VERY bad for a while, I had constant pulsing vibration down my whole spine, like a cat's purr was living in the small of my back. VERY annoying, and yes, I could sort of hear it. It has subsided greatly, to where now when I bend my neck forward the backs of my legs go slightly numb. For the most part I don't notice, I've gotten used to it, and I have learned to hold my head up!
Got my dx of MS in September, started Copaxone last month.
It got VERY bad for a while, I had constant pulsing vibration down my whole spine, like a cat's purr was living in the small of my back. VERY annoying, and yes, I could sort of hear it. It has subsided greatly, to where now when I bend my neck forward the backs of my legs go slightly numb. For the most part I don't notice, I've gotten used to it, and I have learned to hold my head up!
Got my dx of MS in September, started Copaxone last month.
weeble99
12-17-2005, 08:18 PM
i started with tingling in right hand ,had trouble picking up my right foot,and when i tried to get out of bed the room spun around terribly.
StephanieAnne
12-17-2005, 10:49 PM
I have L'Hermittes also, and it is worse when I am stressed out :eek:
I personally think that my relapses are brought on with stress and I probably had this illness for at least 10 years.
I started with numbness in my left foot and by the end of the day my whole left side was numb, you could draw a line right down the middle of me, and one side was numb and other wasn't, but the other side, my right side I was unable to raise my arm past my chin, I almost felt paralized, but with bed rest and no drugs, all those problems went away :bouncing:
But symptoms came back, :confused: numbness in my rt arm, L'Hermittes, by the time I went out of work, I could not write lots of MRI's lots of blood tests, a lumbar puncture and a visit to a MS Clinic, and I was dx'd, I have lesions in my neck and brain.
Go to your Primary Care Provider and have them send you to a Neuro, suggest a MRI because the neuro will want one, and don't worry :nono:
I had L'Hermittes for a few years and never had it checked out, maybe if I did I wouldn't be unemployed and have a numb arm and other little problems that make up MS for me
Best of Luck
Steph
I personally think that my relapses are brought on with stress and I probably had this illness for at least 10 years.
I started with numbness in my left foot and by the end of the day my whole left side was numb, you could draw a line right down the middle of me, and one side was numb and other wasn't, but the other side, my right side I was unable to raise my arm past my chin, I almost felt paralized, but with bed rest and no drugs, all those problems went away :bouncing:
But symptoms came back, :confused: numbness in my rt arm, L'Hermittes, by the time I went out of work, I could not write lots of MRI's lots of blood tests, a lumbar puncture and a visit to a MS Clinic, and I was dx'd, I have lesions in my neck and brain.
Go to your Primary Care Provider and have them send you to a Neuro, suggest a MRI because the neuro will want one, and don't worry :nono:
I had L'Hermittes for a few years and never had it checked out, maybe if I did I wouldn't be unemployed and have a numb arm and other little problems that make up MS for me
Best of Luck
Steph