brid
12-18-2005, 06:24 PM
Around 4 month ago i had a huge bump in my right arm, look just like a fried egg,itchy at the beggining, then very hot and painfull, it growed in a day.. 5 days later, statr decreasing, but having a new one, big, painfull, hot, different shap, same arm, start to go away that one, the a new one in the upper arm..etc.. and so and so, doctors gave me antibiotics..imont and a half late had it in my back,right side,and suddenly lots of pain aroung right side of my chest and temperature, went to emergency room, had a cat sacan, i had a pleural hemorragy and sometunig on my lung, got temeprature,, about 38 c..got surgery,thoracotomy.. my blood test hig eosinophilos,white blood cells,etc.. after the surgery,blood tests back to normal.. it has been almost 2 month and a half since the operation and still have fevers,,,re-started a week after the surgery, with my eosinophilos back to a little hig the biopsy showed neumonitis, no malignant cells and an infection either bacteria or parasite. with lots of eosinophilos . i took 2 weeks of albendazole,, (for parasites) my eosinophilos are normal now.. some weeks goes to 37.6, some 27.3, today again i had 37.6, i have had all kind of blood test , every week, they are normal, i had mono test, ana test,pcr, acid urine, everything, all normal..i have a allergy in my skin,was very itchy, ow i take allegra 180 fot 20 days now , less itchy but rash doesnt go away,is like a dermatitis..had a mamogram on friday and lymph node were a little big, 12 mm, on my right side of neck too, went back to 3 doctors and told them about lymphoma or hodgkins disease and they said they dont think so, and since the linf node is not big enough to lets wait, i am very anxious with the temperature thing, rash , and pain and sensation of dizziness on my legs..with some tinglins.. i dont sweat but lately wehen i wake up in the mornings,i feel hot..can someone give me some advice? i am very very anxious.. i want to have the needle biopsy,it tells about lymphoma and hodgkins disease? can it be done with local anesia?? it hurts a lot? thanls a lot!
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Merimac
12-18-2005, 08:27 PM
Around 4 month ago i had a huge bump in my right arm, look just like a fried egg,itchy at the beggining, then very hot and painfull, it growed in a day.. 5 days later, statr decreasing, but having a new one, big, painfull, hot, different shap, same arm, start to go away that one, the a new one in the upper arm..etc.. and so and so, doctors gave me antibiotics..imont and a half late had it in my back,right side,and suddenly lots of pain aroung right side of my chest and temperature, went to emergency room, had a cat sacan, i had a pleural hemorragy and sometunig on my lung, got temeprature,, about 38 c..got surgery,thoracotomy.. my blood test hig eosinophilos,white blood cells,etc.. after the surgery,blood tests back to normal.. it has been almost 2 month and a half since the operation and still have fevers,,,re-started a week after the surgery, with my eosinophilos back to a little hig the biopsy showed neumonitis, no malignant cells and an infection either bacteria or parasite. with lots of eosinophilos . i took 2 weeks of albendazole,, (for parasites) my eosinophilos are normal now.. some weeks goes to 37.6, some 27.3, today again i had 37.6, i have had all kind of blood test , every week, they are normal, i had mono test, ana test,pcr, acid urine, everything, all normal..i have a allergy in my skin,was very itchy, ow i take allegra 180 fot 20 days now , less itchy but rash doesnt go away,is like a dermatitis..had a mamogram on friday and lymph node were a little big, 12 mm, on my right side of neck too, went back to 3 doctors and told them about lymphoma or hodgkins disease and they said they dont think so, and since the linf node is not big enough to lets wait, i am very anxious with the temperature thing, rash , and pain and sensation of dizziness on my legs..with some tinglins.. i dont sweat but lately wehen i wake up in the mornings,i feel hot..can someone give me some advice? i am very very anxious.. i want to have the needle biopsy,it tells about lymphoma and hodgkins disease? can it be done with local anesia?? it hurts a lot? thanls a lot!
The doctors are in a better place to tell you what is going on than any one here. The lymph node biopsy done by needle is not as accurate as the removal of the entire lymph node. The needle biopsy is done with numbing of the surface of the skin if the lymph node is on the surface of your body. If the lymph nodes are deeper in the body they sometimes have to do the surgery with you asleep. Either way it is not a pleasant thing to do and should be a call that is made by the doctor who is treating you.
The doctors are in a better place to tell you what is going on than any one here. The lymph node biopsy done by needle is not as accurate as the removal of the entire lymph node. The needle biopsy is done with numbing of the surface of the skin if the lymph node is on the surface of your body. If the lymph nodes are deeper in the body they sometimes have to do the surgery with you asleep. Either way it is not a pleasant thing to do and should be a call that is made by the doctor who is treating you.
brid
12-18-2005, 10:54 PM
Thanks for your response! when they remove the lymph node, it is to painfull? do i have to stay in bed many days? i have active work.. you think 3 days later i will be fine ready to work? do they do that with local anestesia? thanks a lot!
Debbiefix
12-19-2005, 08:26 AM
When I had my biopsy, I was under versaid (spelling?) and morphine. They said it was like a twilight sleep. I don't remember anything. It took about 15 minutes. I had no pain afterward and went to work the next day. I never felt anything but the tape sticking to me. It was done at the hospital as outpatient surgery.
brid
12-19-2005, 10:14 PM
thankyou!!i just come from the oncologist, he suspects i might have lymphoma, i am having several cat scans on wednesday,from head to toe,he will find the abnormal lymph nodes and see wether i need biopsy and in which one... did you have that done? what was your diagnosis? i am really scare!!! thank you
Debbiefix
12-20-2005, 08:54 AM
I first had some enlarged lymph nodes. I had the biopsy first for the diagnosis. Then I had the CT scan and the PET scan. My diagnosis is a very low grade form of Non Hodgkins Lymphoma that I've apparently had for a at least 20 years. I'm undergoing monoclonal immunotherapy which is like chemo without the side affects. I never felt better in my life. I've never had a clue that I ever had anything wrong with me, until I got the diagnosis.
Oh....and I remember being very scared. I'm not anymore. (if that helps)
Oh....and I remember being very scared. I'm not anymore. (if that helps)
brid
12-20-2005, 10:15 PM
hi!! i just come from the cat scan place and got very anxious about the contrast they use..did you have any raction to the contrst the put you?? thank you!!
Debbiefix
12-21-2005, 09:33 AM
Hi Brid,
After I had the biopsy and found out that I have a very low grade form of Non Hodgkins Lymphoma, they scheduled me for a CT scan and a PET scan. Neither scan hurts and neither scan is uncomfortable. The CT scan takes about 15 minutes. The PET scan takes about 35 minutes. Then I went to the oncologist for the results and a bone marrow biopsy which I didn't even find painful. A little pressure, but not actual pain. It sounds like you're getting everything done that you have to do. Hang in there!
After I had the biopsy and found out that I have a very low grade form of Non Hodgkins Lymphoma, they scheduled me for a CT scan and a PET scan. Neither scan hurts and neither scan is uncomfortable. The CT scan takes about 15 minutes. The PET scan takes about 35 minutes. Then I went to the oncologist for the results and a bone marrow biopsy which I didn't even find painful. A little pressure, but not actual pain. It sounds like you're getting everything done that you have to do. Hang in there!
cutigergirl
12-21-2005, 10:46 AM
Debbie, Where were your nodes enlarged when you were biopsied? Did you notice the nodes or did your doctor? What did they feel like?
brid
12-21-2005, 02:56 PM
thank you very much debbie, i amjusto gojng today in a cpupleof hours to have the cat scan,. i havent havre any biopsy yet... i am paying it will all be normal...i have red some posts of peolple saying the bone narrow biosy is very very painfull and some people cant walk for days or weeks, is that true? did they put you to sleep? local o general anestesia? thank you very much, as you can see i am very very nervious
Debbiefix
12-21-2005, 04:30 PM
Cutie, they found enlarged lymph nodes when I had my mammogram (under my arms). They asked if I had others and I told them for many many years on the right side of the groin I had one. That's the one they biopsied.
Debbiefix
12-21-2005, 04:35 PM
Brid, my doctor told me that the bone marrow biopsy could feel like a root canal. That freaked me out. I asked if I could have the versaid and morphine which is what they used when I had the biopsy. She said she doesn't use that for the bone marrow biopsies. I was very surprised when I had it done. I felt a little pinch for the novacaine and no real pain at all for the bone marrow biopsy. She told me exactly what she was doing the entire time. I felt a "knocking" on the bone, but no pain. She told me when they were in the marrow. She kept asking how I was doing. The nurse and the doctor kept saying was doing beautifully. I told them that they were the ones doing beautifully because I wasn't in any pain. It took a total of about 10 minutes. It was done. I had to lie on my back for a few minutes. They put on bandage/bandaid and I left after a few minutes. My friend and I took a drive down to the shore (about an hour away) I was not in any pain. The next day, it was a little sore to lie on my left side. That's the story. Not even a bruise. They did a great job. I wouldn't be scared if I knew I needed another one. She said she won't do another one "unless she has to". Whatever that means.
brid
12-21-2005, 08:58 PM
Dear Debbie, thank you soo much! i just come from my cat scan , the did it from head to pelvis, tomorrow i willno,hopefully will comeout good, or at least not that bad... then i will se the oncologist and i will know,i will will keep you posted, thank you soo much again!
brid
12-21-2005, 10:42 PM
hi debbie,Brid again,one question,with which test the made your diagnostic? why you have to had so many??? have you ever had fevers, like small ones? or rash in your skin o like mosquito bite things?? than you!!
cutigergirl
12-22-2005, 02:25 AM
Good luck Brid!
Debbie, did you have any symptoms other than the node you knew about? Any neck nodes?
Debbie, did you have any symptoms other than the node you knew about? Any neck nodes?
Debbiefix
12-22-2005, 08:15 PM
Brid,
I had a mammogram and they found enlarged nodes.
Then I had blood work done. That came back fine. I had no symptoms of anything at all, except the enlarged nodes.
Then they did the biopsy of the groin lymph node and I was diagnosed within 15 minutes.
I was scheduled for a CT scan and PET scan immediately.
Saw the oncologist for the results and had a bone marrow biopsy.
Started Rituxin...4 weekly treatments
Waited 3 months and new scans.
Partial remission.
I"ve have 3 more Rituxin treatments and I'll be having 5 more...one a week for the next 5 weeks.
That's about it.
I had a mammogram and they found enlarged nodes.
Then I had blood work done. That came back fine. I had no symptoms of anything at all, except the enlarged nodes.
Then they did the biopsy of the groin lymph node and I was diagnosed within 15 minutes.
I was scheduled for a CT scan and PET scan immediately.
Saw the oncologist for the results and had a bone marrow biopsy.
Started Rituxin...4 weekly treatments
Waited 3 months and new scans.
Partial remission.
I"ve have 3 more Rituxin treatments and I'll be having 5 more...one a week for the next 5 weeks.
That's about it.
Debbiefix
12-22-2005, 08:17 PM
Cutie,
I had the enlarged groin lymph node which I thought was normal because I had a couple of those for at least 10 years.
They found the enlarged ones under the arms when I had the mammogram in May.
I do have a few tiny ones on the sides of my neck
Everything is shrinking with these rounds of Rituxin
I had the enlarged groin lymph node which I thought was normal because I had a couple of those for at least 10 years.
They found the enlarged ones under the arms when I had the mammogram in May.
I do have a few tiny ones on the sides of my neck
Everything is shrinking with these rounds of Rituxin
brid
12-23-2005, 12:27 AM
Hi!! i just got my results fron all my cat scans and came back from the oncologist, he wants me to do a biopsy on a lymph node on the left side of my neck (collar) he said it under general anesesia.. too scary! also gave me another option cause i suggested, one from the underarm and a biopsy of one of my mosquito loos alike alergy... and a HIV trest!! i will do it next week, hope is nothing terrible......at least an early stage....please,pray for me!!! have a good night!