curious11
12-18-2005, 11:46 PM
Does anyone know the significance of where the tingling goes when you bend your neck forward? I can remember my neurologists asking me exactly where the tingling went/ where it stopped. Does this mean anything? When it started it would travel down my legs, then it would stop mid-back, and now it goes down my arms. This is all over a 9 month period... but I wonder if it means anything? Anyone know? Thank you and I hope everyone has a Merry Christmas! :angel:
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Natatude
12-19-2005, 12:23 AM
i asked my neuro about it when i went to see him dec 8th and he said it could definately be lhermittes sign,,, but didn;t say anything else about it,,,, cause i asked him if i could have that as well and he said oh yes most definately,,, but didn;t go on about it so i have no clue ,,, is there meds or anything to help with that??
lilc
12-19-2005, 07:51 AM
curious, I don't know the significance of the "signal path", but mine was VERY intense for about 6 weeks (for a few days I couldn't tip my head to put a key in a door) and it did sort of travel. Started with my legs, moved to lower back, arms, it made me crazy because when the doctor asked where the signal went I'd have to bend my neck and say, "Well, TODAY..."
I don't know if it matters, but I had no lesions (or any other problem) at all with my neck - all lesions in brain.
I don't know if it matters, but I had no lesions (or any other problem) at all with my neck - all lesions in brain.
curious11
12-19-2005, 09:34 AM
Yes, lilc... my neuro was very exact about where the vibration stopped. I kept having to bend my head down and figure out exactly where it was going. I figured it must be of some clinical significance, but again, not sure what. I will ask next neuro appt. just for knowledge! I have a solumedrol treatment today, so the l hermittes is on it's way out for a couple more weeks! Natatude... I believe the l hermittes is caused from lesions (damage) in the cervical spine area. So if you have lesions there, your neuro probably expects you to also have that symptom. I don't believe it can be treated... just one of those annoying things we get to live with! Yayyy! :bouncing: haha. Take care everyone :angel:
sunshine149
12-19-2005, 01:23 PM
I have this same symptom and my neuro put me on Neurontin, it helps but doesn't stop it completely. I'm hoping it goes away soon!
lilc
12-19-2005, 03:51 PM
Actually, the first MRI I had was the c-spine. They were completely baffled because there was no lesion, no cord compression, no disk trouble. They did x-rays after that with my neck bent this way and that, no explanation. My neuro said later that the L'Hermitte's must be resulting from lesions(s) in the brain. (Either that is the case or I had an invisible lesion, just don't know!)
I took neurontin for about 6 months, just stopped this week, things seem to be much better. After the BAD L'Hermitte's I ended up with numbness in both arms and the back of my tongue, but even that isn't all that bad any longer. A couple of times my right arm completely fell asleep in the shower, if that happens again I'll have to get more neurontin. For now I'm happy to have one less drug!
It's funny, still have L'Hermitte's, lately when I check it I don't feel it in my arms or back, both legs down to the knees mostly. If I really push it it goes all the way to my feet.
I took neurontin for about 6 months, just stopped this week, things seem to be much better. After the BAD L'Hermitte's I ended up with numbness in both arms and the back of my tongue, but even that isn't all that bad any longer. A couple of times my right arm completely fell asleep in the shower, if that happens again I'll have to get more neurontin. For now I'm happy to have one less drug!
It's funny, still have L'Hermitte's, lately when I check it I don't feel it in my arms or back, both legs down to the knees mostly. If I really push it it goes all the way to my feet.
Jordy199
12-20-2005, 07:15 PM
Sometimes when i shake my foot i can feel the vibrations jolting, same withs hands, i've been worried about me possibly having MS, i get flashes of light when i move my eyes and recently what feels like L hermittes ( mine is humming in my feet and hands) anyone got any advice for me?